I was recently diagnosed through a positive ana result and still waiting to see a rheumatologist. I have had symptoms that started with extreme chronic fatigue, which initially GP put down to PBC(liver) and/or hypothyroidism, which I have both but he hadn't linked all the little things that had been going on for over a year...pain in my feet, pain in right hip, the rash for being the sun, my hair falling out, migraines, flu like symptoms( temp and nasal/sore throat) and being tested for kidney stones due to the pain! It was only a locum that having a chat with me asked about my family medical history.... Mum has Addison's disease, vitiligo and fibro. Dad has MS (all auto immune) and the fact I also have auto immune diseases PBC, hypothyroidism, coeliac and vitiligo she decided to run tests to check my auto immune antibodies....and up popped LUPUS!
So it's still all very new to me, but I am now trying to get back to work, slowly! It's learning to spot the flare up signs for me, I had a good week then all of a sudden went so very tired, felt like I was getting a cold/flu, followed at bedtime by pain in my feet,legs and hips...managed to get to work the following morning but after 5 hours felt terrible and went home to bed! That was Thursday and feeling a little better today my GP wants to wait for the rheumatologist appt before starting medication. Is that normal because all I have for the pain at the moment is tramadol and that now has no effect? Something to do with bloodwork he said... Can anyone suggest anything?