Just about had enough :-(: Lupus has done me in... - LUPUS UK

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Just about had enough :-(

clarky1 profile image
9 Replies

Lupus has done me in feel like throwing in the towel !!

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clarky1 profile image
clarky1
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9 Replies
farmerfester profile image
farmerfester

felt like that a few times but i am still here went to see the reumatologist in january with the intention of telling her that i was going to stop al treatment i was very low at the time it was like she was exspecting it things were said and done and am glad now that i carried on with treatment lupus can drive you down but i am not going to let it drive me out go see your gp or reumi or both or talk to some one good luck g

Pipido36 profile image
Pipido36

Lupus is what I call " The Demon within". Don't let it take over your life. I have had it for more than 12 years and so far have developed Fibromyalgia, urticarial vasculitis, empty sella syndrome, chronic anaemia etc and at times feel like what you feeling now but I have learnt to manage it and pace myself when I feel a flare up coming. There are no words to express the feeling but it is just yourself who can feel it and explain it though it is hard to tell someone who has no idea of what it is!!! I guess the best you can to is talk to your doctors. You might as well join a group in your area. Don't give up! Stay strong and positive!!!! Xxx

stefgilbert profile image
stefgilbert

It's a pig.I have been on holiday for two weeks,then come home overdone it ,bang flare

Olibop profile image
Olibop

My heart goes out to you darlin !!! Try to stay strong and remember your not alone !! X

Manolo33 profile image
Manolo33

Take care and remember we are all here for you. X

joannebond360 profile image
joannebond360

Sounds a very familiar feeling. Thinking of you, tomorrow is a new day. Big hugs xxx

I know how you feel. Like everyone says on here,you are not alone. Dont give up try to stay strong and positive. A group near you would be good. I am currently looking for a group near me. Ive not had much luck yet.

Like joannebond360 says tomorrow a brand new day! I am here if you ever want to chat. Sending you ((massive cuddles)).

esky profile image
esky

You are not alone hun. I think everyone has days where we all feel the same (god knows i have). I wanted to stop taking my meds and forget the whole thing. But i decided i have lupus it doesnt have me. The members on this site have been my lifeline and i thank them all truely. Us lupies are the only ones who know how we really feel. Dont give up hun. We are all here if u need us. Loads of hugs and love. Esky xxx

mstr profile image
mstr

Hi, yes...hang on in there because there are better days too for which I am now really grateful. I always think when it's bad it's horrid and at other times it's manageable (ish with meds). I too have days when I want to come off the meds and even doubt that have this when I get good days....then it comes back to remind me. I hope things get better for you xx

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