I have been suffering from a dry persistent cough with breathlessness for a year now. The frequency of the cough is increasing and getting uncomfortable and l am becoming more breathless. I have been on Mycophenolate, Steriods and Plaquenil for the past 11 years. I saw a consultant in May 2012 and he ordered a chest X-ray. I see a rheumy once a year. (So far l have seen 3 different consultants in the past 3 years)
My appointment was last week and l was quite prepared and asked the right questions including the results of the x-ray. I was quite upset but not shocked when it became obvious that there was no record of my x-ray results in my 2012 notes! More baffling was that the current consultant could not see any referral of my concerns in the 2012 notes. I could only conclude that the last consultant had not even bothered to write any of the above in my notes. I am not surprised because the consultant l saw in 2012 was cold, distant, detached and dismissing of my concerns.
A CT scan has been ordered and l will be ringing the lupus clinic for my results as I am too anxious to wait another year.
I am feeling fed up and having a persistent cough whilst having headaches and joint pain is keeping me wide awake.
On a cheerful note this consultant was more human and cheerful.
Regards to all