It's me again. Wondering whether anyone has experienced this or can provide any advice.
So I went to see the Rheumy for the third time tonight. Reported back that the Prednisolone was not working as am still having symptoms esp joint pain, muscle pain and fatigue.
We agreed that we didnt want to go for a higher dosage of the steroids. Instead he has given me a prescription of hydroxicholoroquine and told me to stop taking the steroids just like that.
Now im only on 5mg of the steroids but this news startled me somewhat as from my reading steroids need to be tapered. Maybe it is because the steroid dose is so low that it can be stopped straight away?
Also, arent the steroids a 'stronger' medication for lupus than hydroxi? If this is the case i cant understand why he has dropped me down from steroids to hydroxi given that my symptoms arent being controlled.
Ask your Rheumy i hear you say......No such luck. My first meeting with him i thought he was a superstar for giving me a diagnosis of sorts after so many years but the second time and tonight he was an arrogant (i'd like to say idiot but clearly he is medically trained) plonker who doesnt actually listen to what i'm saying to him.
He even told me that 'those who are pre-disposed to a touch of depression often see the gloomier side of things' when i raised some cognative issues ive been having!! Bloody cheek - just because people suffer from depression doesnt mean they are liars!
Anyway...rambling off the subject. I am changing my Rheumy and hoping to be referred to St Thomas'.
I'd be grateful for any advice you guys have about suddenly stopping steroids, swapping from one med to another and the strength of both types of medication.
He did say that if the hydroxi doesnt work then the next step is methotrexate and i want to avoid that one!
Thanks guys xxxxxx gentle hugs to you all