Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,918 members • 28,241 posts

All posts for April 2013

Been turned down for DLA and ESA now!!!!

Whilst I appreciate that the government doesn't have an open money pot to hand out benefits it really had annoyed me that I have to appeal, to keep having to...

Whilst I appreciate that the government doesn't have an open money pot to hand o...

beckybooboo

•11 years ago

11 Replies

Oh God, it doesn't half hurt today.

Not having a very good day, hurting, better half in hospital (poisoned legs n breathing difficulties), don't know when he's coming home, unable to visit, oh...

Not having a very good day, hurting, better half in hospital (poisoned legs n br...

jayniey

•11 years ago

13 Replies

Plaquenil and Quinoric

50 year old male have been on Plaquenil since 1989 have noticed that since I started on Quinoric a few months ago I started having dizzy spells and blurred...

50 year old male have been on Plaquenil since 1989 have noticed that since I sta...

Liberton

•11 years ago

10 Replies

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Please,please anybody tell me what to do now

my arms and legs are killing me I feel sick and sweating but no temperature. This started yesterday for no reason.funnybsesation in arms esp left leg side boob...

my arms and legs are killing me I feel sick and sweating but no temperature. Thi...

letslaugh63

•11 years ago

11 Replies

A long, hot, sticky night in flares, & I don't mean down the local disco for a 70's extravaganza.

I've always had night fevers & achy joints when my lupus flares, but last night was something new, & quite nasty. A bit like those purple flares I wore for a...

I've always had night fevers & achy joints when my lupus flares, but last night ...

roobarb

•11 years ago

11 Replies

Sheffield Lupus Group first ever meeting :)

Hi All :) After having to postpone our first meeting in March due to horrible weather I am pleased to let you know that the meeting has been reorganised...

Hi All :) After having to postpone our first meeting in March due to horrible...

Silvermyst

•11 years ago

6 Replies

has anyone else lost babies due to their lupus and gone on to have a 'successful' pregnancy?

im just wondering what to expect from my 'pre-conception' appointment and i am more than a little aprehensive as is my hubby. ty in advance x x

im just wondering what to expect from my 'pre-conception' appointment and i am m...

mummybumble

•11 years ago

12 Replies

IV steroid drip

Hi everyone, hope you all had a good day, I did today and took my babies to the seaside. It was a good day and nice to feel a bit normal. I start an IV steroid...

Hi everyone, hope you all had a good day, I did today and took my babies to the ...

amandamummy

•11 years ago

10 Replies

I have Lupus (sle) but also have other autoimmune illness's but doctors have'nt a clue about me,Is there any1 else in same situation?

I have been steroids for nearly 7yrs now which have caused me to break my hip twice in last 8 weeks & i'm only 34yrs.Am really scared of breaking it again

I have been steroids for nearly 7yrs now which have caused me to break my hip tw...

Lisa78

•11 years ago

8 Replies

Reference Pregabalin withdrawal - again!!

I've found amitriptyline along with dihydrocodeine (if u don't object to a bit (big bit) of constipation) 2 b the most help. After all, what's a sore tailpipe...

I've found amitriptyline along with dihydrocodeine (if u don't object to a bit (...

jayniey

•11 years ago

2 Replies

London Lupus suffers-April meeting date??

I recall that some London members had a meeting a little while ago and were talking about doing another one in April, which I was hoping to...

I recall that some London members had a meeting a little while ago and were talk...

bam1993

•11 years ago

14 Replies

breathlessness , anyone ????????

i have been suffering from breathlessness for a few years now, but these last few days its been very debilitating especially if i am doing anything physical...

i have been suffering from breathlessness for a few years now, but these last fe...

rockchic

•11 years ago

7 Replies

Anyone interested in starting a nutters club?

I propose Sher 78 as the Chairperson. I'd join, I could do with a good laugh. Long live Harvey & Rabbit! Love 2 all. Ciao 4 now. J. XX

I propose Sher 78 as the Chairperson. I'd join, I could do with a good laugh. L...

jayniey

•11 years ago

33 Replies

SLE for sale!!!!

Any takers, I can throw in pregabalin withdrawal 4 free if u like? I could even b talked into giving it all 4 free, if u drive a hard bargain! I'm generous 2 a...

Any takers, I can throw in pregabalin withdrawal 4 free if u like? I could even ...

jayniey

•11 years ago

4 Replies

Confused!

I've been recently diagnosed. 8 weeks and 2 days to be exact, and I still don't know how to take it. To make matters worse, my sister was then diagnosed with...

I've been recently diagnosed. 8 weeks and 2 days to be exact, and I still don't ...

E-Say

•11 years ago

7 Replies

Why don't they get it?

I'm going nuts over here, I'm fed up with people making me feel like a hypochondriac , went out tonight for a while, tongue went numb an white, pain ,couldn't...

I'm going nuts over here, I'm fed up with people making me feel like a hypochond...

Lupdaloop

•11 years ago

14 Replies

Pregabalin withdrawal and hallucinations getting worse!

My skin is now raw, blistered and swollen. Lost a tooth this morning. Docs offered me dermovate (which I react badly 2, great how these docs listen 2 us aint...

My skin is now raw, blistered and swollen. Lost a tooth this morning. Docs offer...

jayniey

•11 years ago

12 Replies

Mycophenalate side effects?

I have just increased my dose and and soooo tired but not like my usual Lupie flare tired. My glands are a reasonable size. All my joints are stiff, not just...

I have just increased my dose and and soooo tired but not like my usual Lupie fl...

DaleDiva

•11 years ago

6 Replies

Problems

Im having pains in my lower back, chest pain underneath my right breast, headaches like ive been hammered across the head, brain fog- eqivelent to dementia...

Im having pains in my lower back, chest pain underneath my right breast, headach...

Danielle2419

•11 years ago

12 Replies

went for rheumy on monday

hiya all hope you all feeling not to bad i had a appointment on tuesday i have 2 disc in back which is shot the nerves are rubbing against the bone cannot...

hiya all hope you all feeling not to bad i had a appointment on tuesday i have 2...

else5

•11 years ago

5 Replies

Young and coming to terms!

Hey I have SLE for over 3years It became active at 19 and I was diagnosed at 21 and I am still struggling health wise sore joints tiredness ect. Even though my...

Hey I have SLE for over 3years It became active at 19 and I was diagnosed at 21 ...

shay1

•11 years ago

7 Replies

Hi everyone. Does any body know if there is any LUPUS group meetings in or near Warrington. thanks. x

gazzasoens

•11 years ago

3 Replies

Is this usual?

I'm fed up! Is it usual to feel er.......er.......crap! Sorry can't think of another word right now. Seriously I ache from top to toe as though I have been...

I'm fed up! Is it usual to feel er.......er.......crap! Sorry can't think of ano...

talula

•11 years ago

21 Replies

Copper/magnetic bracelets

Has anyone used either copper or magnetic jewellery and have they found any benefits? I was thinking of buying a bracelet. Thanks.

Has anyone used either copper or magnetic jewellery and have they found any bene...

Jaxqueline

•11 years ago

11 Replies

Hi guys, I'm back asking for another favour haha!

Thank you all soooo much for voting for my cupcake bouquet last month, unfortunately I didn't win :( BUT the same people are doing another competition at the...

Thank you all soooo much for voting for my cupcake bouquet last month, unfortuna...

hippo_dignity

•11 years ago

16 Replies

have a laugh on me

I thought I was doing well today and decided to do a roast dinner, I put the meat in the oven turned the temp control and the other nob so the oven would go...

I thought I was doing well today and decided to do a roast dinner, I put the mea...

luupysue

•11 years ago

14 Replies

thought it was going to well....

after my previous posts my body decides to go mad again, developed the worst headache and major increase in twitching, managed to finish my shift but was then...

after my previous posts my body decides to go mad again, developed the worst hea...

scoobydoo1

•11 years ago

7 Replies

Went to my first Lupus Group meeting.

I went to my first Lupus group meeting last saturday, it was held at a local garden centre I was slightly apprehensive as to what it would be like! We sat in...

I went to my first Lupus group meeting last saturday, it was held at a local gar...

T3KAO

•11 years ago

16 Replies

Mononeuritis Multiplex

Does anyone have Mononeuritis Multiplex as a complication of SLE? If so what treatments have you had and were they sucessful? xxx

Does anyone have Mononeuritis Multiplex as a complication of SLE? If so what tr...

InSpain

•11 years ago

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Lupuzor anyone?

Just been doing some digging on meds,thanks to reading other people's blogs and questions, I've been alerted to various things of interest,medication trials...

Just been doing some digging on meds,thanks to reading other people's blogs and ...

Lupdaloop

•11 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2013

Been turned down for DLA and ESA now!!!!

Oh God, it doesn't half hurt today.

Plaquenil and Quinoric

Please,please anybody tell me what to do now

A long, hot, sticky night in flares, & I don't mean down the local disco for a 70's extravaganza.

Sheffield Lupus Group first ever meeting :)

has anyone else lost babies due to their lupus and gone on to have a 'successful' pregnancy?

IV steroid drip

I have Lupus (sle) but also have other autoimmune illness's but doctors have'nt a clue about me,Is there any1 else in same situation?

Reference Pregabalin withdrawal - again!!

London Lupus suffers-April meeting date??

breathlessness , anyone ????????

Anyone interested in starting a nutters club?

SLE for sale!!!!

Confused!

Why don't they get it?

Pregabalin withdrawal and hallucinations getting worse!

Mycophenalate side effects?

Problems

went for rheumy on monday

Young and coming to terms!

Hi everyone. Does any body know if there is any LUPUS group meetings in or near Warrington. thanks. x

Is this usual?

Copper/magnetic bracelets

Hi guys, I'm back asking for another favour haha!

have a laugh on me

thought it was going to well....

Went to my first Lupus Group meeting.

Mononeuritis Multiplex

Lupuzor anyone?

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