Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,918 members • 28,241 posts

All posts for April 2013

Tip for Lupus pain that feels a bit like Sciatica

Whilst on holiday I had a horrible flare up of the sciatica type pain I get in one of my buttocks. The pain makes it impossible to walk, stand or sit...I...

Whilst on holiday I had a horrible flare up of the sciatica type pain I get in o...

Keepingsmiling

•11 years ago

11 Replies

twitching

Does any one else get loads of twitching through their whole body? it wakes me up at night

Does any one else get loads of twitching through their whole body? it wakes m...

XliddybX

•11 years ago

9 Replies

From bad to worse

Hey everyone;)I had my appointment monday with the rheumy,i ve been particular bad for 12 months and really bad for last six,infact the last three months im...

Hey everyone;)I had my appointment monday with the rheumy,i ve been particular b...

brave

•11 years ago

11 Replies

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Mrs Lupus

Just for you all.

janiceray

•11 years ago

14 Replies

Anyone have Pernicious Anaemia?

I am anaemic and my ferratin level is low and I am going to have my B12 tested. Is there a connection between PA and auto-immune disease?

I am anaemic and my ferratin level is low and I am going to have my B12 tested. ...

DaleDiva

•11 years ago

8 Replies

its creeping up again..........

hello fellow loopies! apologies for a random blog but i need honest answers/comments on what to do. should i stand my ground or back down? my twin and i...

hello fellow loopies! apologies for a random blog but i need honest answers/c...

caninecrazy

•11 years ago

9 Replies

Has anyone been prescribed protopic 0.01% for lupus

My dermy has just put me on this but im a bit worried about using it as it surpressess your immune system, an makes you sensitive to sunlight UVA/aUVB. Well im...

My dermy has just put me on this but im a bit worried about using it as it surpr...

traceymcx

•11 years ago

2 Replies

Lupuzor - ImmuPharma

It was great news that the recent report from Decision Resources highlighted Lupuzor (owned by ImmuPharma) to potentially have substantial benefits over...

It was great news that the recent report from Decision Resources highlighted Lup...

Bcomms

•11 years ago

3 Replies

which hospital?

Has anyone had experience with Broomfield hospital or Basildon University hospital? Thanks for reading this.

Has anyone had experience with Broomfield hospital or Basildon University hospit...

Hidden

•11 years ago

3 Replies

ESA Medical

Right gang, looks like I'm finally gonna have 2 have 1 of these stupid medical things. Why they can't just take the word of our Doctors, Rheumys, Neuros etc is...

Right gang, looks like I'm finally gonna have 2 have 1 of these stupid medical t...

Sher78

•11 years ago

6 Replies

Urgent Help... I need the email address to request a letter of support for esa assess so I can post form on Sat !

anne59

•11 years ago

2 Replies

Numbness in hands

Does anyone suffer with numbness in hands during the night? I have it every night and it drives me crazy. Neck and brain MRI and nerve conduction test ruled...

Does anyone suffer with numbness in hands during the night? I have it every nig...

Purpletop

•11 years ago

21 Replies

Anyone colour blind in one eye due to lupus

millysue

•11 years ago

8 Replies

Could I have been misdiagnosed with Rosacea?

I have had a number of general complaints over the last couple of years that have always resulted in me being tested for stuff by my doctor and the results...

I have had a number of general complaints over the last couple of years that hav...

laurastacey

•11 years ago

15 Replies

Location

Has any1 else noticed that their location has suddenly disappeared from their profile? Mine WAS set 2 show where I was but I've noticed that all of a sudden...

Has any1 else noticed that their location has suddenly disappeared from their pr...

Sher78

•11 years ago

7 Replies

Is it Lupus

I'm just in the process of being diagnosed - 8 years after a borderline bioposy on my back and just wanted some feedback! I was told 8 years ago that it was...

I'm just in the process of being diagnosed - 8 years after a borderline bioposy ...

tjperfick

•11 years ago

3 Replies

Off to see my rheumie

Hi guys Off to see my rheumie this evening for a follow up appointment. This will be the second time I've seen him. I have lots of questions I need to...

Hi guys Off to see my rheumie this evening for a follow up appointment. This ...

Loopylooby

•11 years ago

7 Replies

Please help! Can't comment or reply- feel isolated

I'm new to the site but have been reading questions & replies etc & love the mutual support. However, I can't seem to reply or comment on anything. I click on...

I'm new to the site but have been reading questions & replies etc & love the mut...

CMac13

•11 years ago

8 Replies

Has anyone else had Guillain Barre Syndrome prior to developing lupus ?

lupylucy13

•11 years ago

2 Replies

ANA Test

Just got off the phone to my GP my blood test were abnormal, and the doctor has accepted my telephone request for the ANA test, form awaiting me at the local...

Just got off the phone to my GP my blood test were abnormal, and the doctor has ...

Lupdaloop

•11 years ago

7 Replies

Anyone on dehydroepiandrosterone (DHEA)?

Hi everyone found this quote on the American Mayo clinic website, quoted as an alternative medication. Has anyone heard of it or being treated with it?...

Hi everyone found this quote on the American Mayo clinic website, quoted as an a...

twist1

•11 years ago

3 Replies

Brainstorming required

I have asthma as well as lupus and someone explained to me that having an asthma attack is like trying to breathe with a plastic bag over your head that only...

I have asthma as well as lupus and someone explained to me that having an asthma...

twist1

•11 years ago

19 Replies

Headaches..... Ugh

Was diagnosed 13 years ago and have been on plaquenil that long......now for a week my headaches have returned.... Every morning when I get up and every night...

Was diagnosed 13 years ago and have been on plaquenil that long......now for a w...

Lilylupy

•11 years ago

8 Replies

Any one ever had glandular fever when they were younger? Bit random but just wondered

happyday

•11 years ago

16 Replies

What is white blood count

ladylou

•11 years ago

4 Replies

Brain Fog

I read a post recently on this site from a member who was having trouble with fatigue and foggy thinking after finishing a course of antibiotics. I'm sorry I...

I read a post recently on this site from a member who was having trouble with fa...

lupuswriter

•11 years ago

9 Replies

Help save and monitor the NHS - LET YOUR VOICE BE HEARD. https://secure.38degrees.org.uk/nhs-campaign-poll

38 Degrees is a non affiliated organisation which tries to keep it's finger on the pulse so to speak, a government watchdog keeping the public interest at the...

38 Degrees is a non affiliated organisation which tries to keep it's finger on t...

Hidden

•11 years ago

15 Replies

Any body had Rituximab

My Daughter (16) was diagnosied with SLE and Nephtis 4 just 12 months ago. since then she has exterme light senistive, raynaulds, liver troubles, the skin on...

My Daughter (16) was diagnosied with SLE and Nephtis 4 just 12 months ago. sinc...

MiaMunch

•11 years ago

5 Replies

SLEDIA score?

Has anyone else had there disease activity rated by the above means? I'd never heard of it, although I like to think I am pretty much genned up on most thing...

Has anyone else had there disease activity rated by the above means? I'd never h...

roobarb

•11 years ago

5 Replies

Fits ????????????

Well,i'm hoping this makes sense to some of you ! This morning , while laying in bed , i felt aware of my head moving ,but not in control atall ,like i was an...

Well,i'm hoping this makes sense to some of you ! This morning , while laying i...

larissa

•11 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2013

Tip for Lupus pain that feels a bit like Sciatica

twitching

From bad to worse

Mrs Lupus

Anyone have Pernicious Anaemia?

its creeping up again..........

Has anyone been prescribed protopic 0.01% for lupus

Lupuzor - ImmuPharma

which hospital?

ESA Medical

Urgent Help... I need the email address to request a letter of support for esa assess so I can post form on Sat !

Numbness in hands

Anyone colour blind in one eye due to lupus

Could I have been misdiagnosed with Rosacea?

Location

Is it Lupus

Off to see my rheumie

Please help! Can't comment or reply- feel isolated

Has anyone else had Guillain Barre Syndrome prior to developing lupus ?

ANA Test

Anyone on dehydroepiandrosterone (DHEA)?

Brainstorming required

Headaches..... Ugh

Any one ever had glandular fever when they were younger? Bit random but just wondered

What is white blood count

Brain Fog

Help save and monitor the NHS - LET YOUR VOICE BE HEARD. https://secure.38degrees.org.uk/nhs-campaign-poll

Any body had Rituximab

SLEDIA score?

Fits ????????????

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