Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,933 members • 28,261 posts

All posts for April 2013

Talk talk

I know talking is good and a lot of people says it helps with healing or just relieves stress and I totally agree.My problem is I can't really talk to anyone...

I know talking is good and a lot of people says it helps with healing or just re...

letslaugh63

•11 years ago

11 Replies

Can anyone help?

Hi, anyone have problems with (grim I know) phlegm? I was diagnosed last June but in the run up to this was suffering shortness of breath and loss of voice a...

Hi, anyone have problems with (grim I know) phlegm? I was diagnosed last June bu...

mainlyconfused

•11 years ago

11 Replies

Meeting in Nottingham

Can anyone tell me more about a meeting in Nottingham on the 21st wot time and were in Nottingham many thanks

Can anyone tell me more about a meeting in Nottingham on the 21st wot time and w...

suemac

•11 years ago

3 Replies

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hospitals

hi all hope all is well with every1 had some news i am going to get my throat stretch on the 30th april bit scared but hope it helps i also going for a pelvic...

hi all hope all is well with every1 had some news i am going to get my throat st...

angieskye

•11 years ago

9 Replies

Meditation

Hi everyone ! I've been meditating for 10 mins a day for a few weeks and i find it really helps me feel calm and positive . I know it dosent take my...

Hi everyone ! I've been meditating for 10 mins a day for a few weeks and i fi...

larissa

•11 years ago

32 Replies

At my wits end :(

I've suffered with lupus for 10 years, although I've just been diagnosed a few months ago. For years people made me think I was imagining my symptoms, or I was...

I've suffered with lupus for 10 years, although I've just been diagnosed a few m...

Spoonie20

•11 years ago

8 Replies

Hair!!!

I had to share with everyone, "MY HAIR IS GROWING BACK" after a few years of it getting thinner and thinner I noticed I have about 3/4 inc of hair all over...

I had to share with everyone, "MY HAIR IS GROWING BACK" after a few years of it ...

Minimum

•11 years ago

28 Replies

More meds!

Had an appointment with the rheumatologist today, last saw her in November, can anyone tell me what RSA levels are, mine was 18 back in November and is 30....

Had an appointment with the rheumatologist today, last saw her in November, can...

uzi41

•11 years ago

Be the first to reply

i have lupus and really want to get off the steroids, as soon as i cut down im crippled with pain. any suggestions? thank you

mckeowen01

•11 years ago

9 Replies

fruit loopys who luvv chocolate

hi just to say i have opened a facebook group called fruit loopys luvvv chocolate feel free to join its a light hearted page aimed to brighten up ur day with...

hi just to say i have opened a facebook group called fruit loopys luvvv chocolat...

kittykat68

•11 years ago

3 Replies

Pain

Does anyone suffer with trochanteric bursitis? A recent steroid injection has helped a little but the pain in my elbows has remained rheumy said there's...

Does anyone suffer with trochanteric bursitis? A recent steroid injection has h...

Briggsy

•11 years ago

7 Replies

Loss of feeling in hand

Hi, I seem to have lost the feeling in my left hand from the top of my wrist to the tips of fingers, it just feels dead and I cant feel anything touching it....

Hi, I seem to have lost the feeling in my left hand from the top of my wrist to ...

Dumpypug

•11 years ago

4 Replies

Fits

Iam having fits my body keeps twitching and my legs keep giving away 6weeks I ended up in hospital as I knocked myself out and ended up in Resus I got...

Iam having fits my body keeps twitching and my legs keep giving away 6weeks I en...

scottty

•11 years ago

10 Replies

Over did it again

Why can't I learn to pace myself? Grrr. Have returned to work and Rheumie told me not to go from 'zero to hero' and make sure i have rest every evening but...

Why can't I learn to pace myself? Grrr. Have returned to work and Rheumie told ...

Loopylooby

•11 years ago

12 Replies

How rare ?

well I was under the impression lupus was a rare disease my friends neighbour has it,so what I thought but yesterday I bumped into a friend haven't seen in a...

well I was under the impression lupus was a rare disease my friends neighbour ha...

letslaugh63

•11 years ago

8 Replies

Anyone else get the sensation as if room spinning even when sat still?

Currently feel like the room is spinning round and starting to feel nauseous from it. Anyone else experience this? Any suggestions on things to alleviate this?

Currently feel like the room is spinning round and starting to feel nauseous fro...

Jenniep85

•11 years ago

11 Replies

Told they are now putting me on Hydroxychloroquine ?

Been seeing an Rheumo and Nuero for past year. Told I had MS but MRI was clear head and neck, so then told it was not. Told although I had positive P Anca...

Been seeing an Rheumo and Nuero for past year. Told I had MS but MRI was clear h...

Gymbabe

•11 years ago

6 Replies

Lupus and hormones

I am at that (peri-menpausal) age where my periods are playing up. As they were erratic and heavy I had a Mirena coil inserted but bled for 10weeks after so...

I am at that (peri-menpausal) age where my periods are playing up. As they were ...

DaleDiva

•11 years ago

5 Replies

Hating Tuesdays!

Tuesday and Wednesday are the most dreaded days of my week as today is a Methotrexate day. Cue feeling nauseous and being too scared to eat more than toast...

Tuesday and Wednesday are the most dreaded days of my week as today is a Methotr...

E-Say

•11 years ago

14 Replies

Does anyone have recurrent problems with dry nostrils?!

This seems very insignificant when compared with the pain, exhaustion and other problems Lupus can cause but just wondering if this is Lupus related and if...

This seems very insignificant when compared with the pain, exhaustion and other ...

Tinksie

•11 years ago

16 Replies

Anyone in Hertford, Ware or Harlow area?

Hi everybody - I am doing my bit for lupus awareness on Wednesday evening - giving a little talk at the Great Amwell Parish Hall SG12 9SA to the Women's Club,...

Hi everybody - I am doing my bit for lupus awareness on Wednesday evening - givi...

marypw

•11 years ago

1 Reply

Air conditioning!

morning all. now i know a lot of you are like me and don't cope with the heat at all. Get above 18 degrees, nausea kicks in and I feel like I am ready to...

morning all. now i know a lot of you are like me and don't cope with the heat at...

tiredmum

•11 years ago

6 Replies

How to get your doctor to take you seriously?

HI, I went to see my GP, the other day, as I have a butterfly rash on my face and have had it some time, it got much worse on holiday, as well as rash all...

HI, I went to see my GP, the other day, as I have a butterfly rash on my face a...

Hidden

•11 years ago

22 Replies

Tight chest

Weening myself off the steroids for the last 2 weeks and have noticed that my chest is tight every night around the same time. It's like I miss a breath. This...

Weening myself off the steroids for the last 2 weeks and have noticed that my ch...

Geordie-chick

•11 years ago

2 Replies

bibasal fibrosis

Hi, just had the latest report back from the rheumy. She suggest that I have bibasal fibrosis? any one heard of this? She wants me to have MMF. What's that?...

Hi, just had the latest report back from the rheumy. She suggest that I have bib...

lowicklady55

•11 years ago

2 Replies

Hey guys is does anyone else have lumps that have an appearance like warts on their hands and feet from lupus?? :(

Rhee

•11 years ago

21 Replies

Seronegative connective tissue disease - Dr thinks Lupus!!?!

Hi everyone, I have read others accounts of having seronegative Lupus so it must exist. My diagnosis on paper is - ? Seronegative connective tissue...

Hi everyone, I have read others accounts of having seronegative Lupus so it m...

Jo883

•11 years ago

19 Replies

Just moved to derby

Hi I've just moved to Derby I have Lupus, fibromyalgia, diabetes and recently Guillain barre was wondering if anybody in area as alone all day while partner at...

Hi I've just moved to Derby I have Lupus, fibromyalgia, diabetes and recently Gu...

Dawnie06

•11 years ago

5 Replies

It's not a question; it's a statement - I Can't Cope!

The fatigue levels have increased. I'm sleeping my life away. I'm constantly advised to diet and exercise, but this increases the fatigue and feelings of...

The fatigue levels have increased. I'm sleeping my life away. I'm constantly adv...

LynnHall

•11 years ago

17 Replies

SLEEP SLEEP SLEEP

How I wish I could sleep the nights are getting longer and longer I am so tired but never get anymore than 2 hours sleep, I don't sleep during the day and the...

How I wish I could sleep the nights are getting longer and longer I am so tired ...

luupysue

•11 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2013

Talk talk

Can anyone help?

Meeting in Nottingham

hospitals

Meditation

At my wits end :(

Hair!!!

More meds!

i have lupus and really want to get off the steroids, as soon as i cut down im crippled with pain. any suggestions? thank you

fruit loopys who luvv chocolate

Pain

Loss of feeling in hand

Fits

Over did it again

How rare ?

Anyone else get the sensation as if room spinning even when sat still?

Told they are now putting me on Hydroxychloroquine ?

Lupus and hormones

Hating Tuesdays!

Does anyone have recurrent problems with dry nostrils?!

Anyone in Hertford, Ware or Harlow area?

Air conditioning!

How to get your doctor to take you seriously?

Tight chest

bibasal fibrosis

Hey guys is does anyone else have lumps that have an appearance like warts on their hands and feet from lupus?? :(

Seronegative connective tissue disease - Dr thinks Lupus!!?!

Just moved to derby

It's not a question; it's a statement - I Can't Cope!

SLEEP SLEEP SLEEP

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