Hi everyone, hope you all had a good day, I did today and took my babies to the seaside. It was a good day and nice to feel a bit normal. I start an IV steroid drip on Tuesday as my Reumy doesnt understand why i'm still in pain on 60mg of prednisilone and loads other meds. Had Lupus for 18 years and Aps last month. He said to be on the safe side i need the IV as my bone marrow is getting involved and i have just got over Pleurisy also got protein in my urine but he didnt say how much but tested my glycoprotein in my blood. Anyone know what this means. Has any one had the Iv drip and how often will i have to have it. Felt like i was rushed when i saw my Reumy because he was 2 hours behind and wasnt listening to me properly. Been flaring up since October and having more symptoms this time. Also are there any groups in the Doncaster area or is it just Yorkshire.
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