bibasal fibrosis

[lowicklady55]

Hi, just had the latest report back from the rheumy. She suggest that I have bibasal fibrosis? any one heard of this? She wants me to have MMF. What's that? Gawd just when I thought I'd cracked it! And she wants to put me on AZT

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MMF = Mycophenolate Mofetil. It is a heavy duty immunosuppressant. Used to stop people rejecting transplanted organs and now also used in serious lupus (eg kidney involvement - and maybe also for your lungs*). I take it and have no issues with it (except insomnia - but I had that from steroids anyway).

AZT + Azathioprine. Another immune suppressant. Make sure you have a test for the enzymeTPMT first. You need TPMT to synthesize AZA efficiently I think, and 30% of us don't have it, or enough of it.

Not sure what bibasal fibrosis is exactly - but it has to do with your lungs and lung function, I think (someone will tell me if I am wrong, I hope).

Don't panic - it sounds as though the rheumatologist is on the ball.

[lowicklady55]

Thanks Maggie. I don't have insomnia with my steroids. My plaquenil knocks me out! lol