Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,834 members • 28,174 posts

All posts for June 2012

Does the Mirena coil cause flare ups and / or make them worse?

I was diagnosed with lupus 6 months ago. I was treated for endometriosis about 3 years ago now, had a D&C and at that time was fitted with a Mirena...

I was diagnosed with lupus 6 months ago. I was treated for endometriosis ...

ChocolateTeapot

•12 years ago

8 Replies

Cost of medication is madness.

I was thinking how lucky I am about not needing to pay for my med's and wondered if others knew about "HC2" forms?? I got my form from my Dr's it isn't to...

I was thinking how lucky I am about not needing to pay for my med's and wondered...

Minimum

•12 years ago

7 Replies

DISCOID LUPUS

Hi everyone I'm new to this site and is looking for a bit of advice. i was diagnosed with discoid lupus 18 months ago after suffering with lesions on...

Hi everyone I'm new to this site and is looking for a bit of advice. i was di...

glasgowgal

•12 years ago

7 Replies

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sjgroens

Hello Well for many years I was told that I suffered from this condition having been confirmed via St Thomas 20 plus years ago and then the Roye Eye...

Hello Well for many years I was told that I suffered from this condition ha...

daisy11

•12 years ago

3 Replies

Hello everybody, here I am with 'that petition' again.

I have SLE lupus, (finally diagnosed at age 47), despite clinical symptoms since teenage years, I also have psoriatic arthropathy, sjogrens, hughes syndrome...

I have SLE lupus, (finally diagnosed at age 47), despite clinical symptoms since...

MaryF

•12 years ago

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Lovely stay in the cardiac care unit

When I have a flare I get quite used to getting pleuritic pains. This time round they were different. No pain on inhalation, but instead I had burning...

When I have a flare I get quite used to getting pleuritic pains. This time roun...

Davros

•12 years ago

2 Replies

Bruises

anybody who has lupus have really bad bruises . i have come out in really dark purple bruises with like a yellow center . when i had my first one i put it down...

anybody who has lupus have really bad bruises . i have come out in really dark p...

fairy_leggins

•12 years ago

17 Replies

I am feeling so down, unhappy and scared. Really struggling at the moment and don't know what to do.

I have 2 gorgeous girls, 6 and 3, and am currently pregnant with our third baby. I have lupus, chronic asthma, steroid induced osteoperosis, focal nodular...

I have 2 gorgeous girls, 6 and 3, and am currently pregnant with our third baby....

Chantelle

•12 years ago

7 Replies

Finally got first apointment with a reumy next month wot can i exspect are they just as bad as the other qaucks

suemac

•12 years ago

3 Replies

Am I the only one to feel lonely?

I am new to this site, I was diagnosed with SLE in January, and was wondering if anyone else felt lonely to start with, my husband is great but people I...

I am new to this site, I was diagnosed with SLE in January, and was wondering if...

Floss82

•12 years ago

34 Replies

Does anyone else get burning pains?

I've had a tingling burning pain in my left arm around my elbow and down my forearm for the past 3 months and it just hasn't gone away. It often feels like an...

I've had a tingling burning pain in my left arm around my elbow and down my fore...

Maya23

•12 years ago

4 Replies

I've had enough of this stupid diet!!!

So the reality of this diet is that so far (a month in) I have NOT noticed any improvement in my symptoms or pain levels (I know this because I kept a...

So the reality of this diet is that so far (a month in) I have NOT noticed any i...

Maya23

•12 years ago

15 Replies

Hi has anyone got any advice on taking Echinacea?

Hi has anyone got any advice on taking Echinacea? I was told by a self help group for rheumy problems that it helps Lupus as well. I have been doing some...

Hi has anyone got any advice on taking Echinacea? I was told by a self help gr...

kb281

•12 years ago

8 Replies

how long

i ve been on low dose steroids for ten years .,also plequnil. a friend said this seem s to long and my dr has told me this maybe why i get infections after my...

i ve been on low dose steroids for ten years .,also plequnil. a friend said this...

moss

•12 years ago

4 Replies

I have got DLA it took a while but I have got it now and unless I get better!!! I don't think I have any more forms to fill in. x

Hi all I do get DLA and yes it took a long time, and many appeals. I too have SLE, discord lupus, lichen planus of the mouth and spinal problems to mention a...

Hi all I do get DLA and yes it took a long time, and many appeals. I too have ...

Minimum

•12 years ago

19 Replies

I know the answer to this question will be: 'We can't really answer this question!' ...........but please try!

I'm sure that I have SLE and am in the process of having tests done. During a recent flare I went to my GP begging him to either give me something for my...

I'm sure that I have SLE and am in the process of having tests done. During a re...

Angelcake

•12 years ago

21 Replies

Essex Support Group Meeting

This Sunday the Essex group are having their first meeting in Romford. From 1pm at BBs Coffee & Muffins on the second floor of the Mercury Shopping centre....

This Sunday the Essex group are having their first meeting in Romford. From 1pm ...

Paul_Howard

Partner•12 years ago

Be the first to reply

Help.... My GP thinks im crazy!!

Hey every one, just come accross this website for a bit of advice.. ive recently been waking up with crippling pain in my knees during the night, which wakes...

Hey every one, just come accross this website for a bit of advice.. ive recentl...

louber

•12 years ago

11 Replies

head

my back is still has sore as anthin, the pressure in my head is still bad feel like my head ready for explodin, my knees r also hurtin badly bad week all...

my back is still has sore as anthin, the pressure in my head is still bad feel l...

lpatterson

•12 years ago

2 Replies

Part Time Employee

I transferred jobs about four years ago - the post I took was part time (80%) mainly due to SLE - can I claim any tax allowance because of this - many thanks -...

I transferred jobs about four years ago - the post I took was part time (80%) ma...

pirate-yaker

•12 years ago

2 Replies

Hi all! Has anyone had problems with holes appearing in the diaphragm and loops of bowel going up into chest cavity? Can't breathe, had CT

Scan today. Now waiting for results to reach GP and for him to send me on to have a bit of chicken wire stuck in this hole or to have a consultant tell me...

Scan today. Now waiting for results to reach GP and for him to send me on to hav...

jayniey

•12 years ago

3 Replies

Does anyone else suffer hot flashes and shakiness?

Does anyone else got sort of hot flashes?my forehead gets so hot and sweaty even on a cold day,im not on steroids so i know its not that,also i have started...

Does anyone else got sort of hot flashes?my forehead gets so hot and sweaty even...

katknapp

•12 years ago

13 Replies

Week 4 of the Lupus Diet

What a roller coaster this has turned out to be. Who would have thought it would be so difficult emotionally to give up animal proteins? But of course it just...

What a roller coaster this has turned out to be. Who would have thought it would...

Maya23

•12 years ago

1 Reply

Lupus sufferer Big Brother 10 contestant Sophia Brown dies aged just 30.

http://www.dailymail.co.uk/tvshowbiz/article-2146289/Sophia-Brown-Big-Brother-star-dies-aged-30-Davina-McCall-leads-tributes-Twitter.html

http://www.dailymail.co.uk/tvshowbiz/article-2146289/Sophia-Brown-Big-Brother-st...

charm81

•12 years ago

5 Replies

anyone have dates for meetups in brighton !?

larissa

•12 years ago

9 Replies

Housing !

I am going through a really bad patch with my OH and in the back of my mind i worry about housing , should we ever split up. I do own half the house but as...

I am going through a really bad patch with my OH and in the back of my mind i wo...

larissa

•12 years ago

7 Replies

Refused insurance again!

I can't believe it I have been refused life insurance again. I'm so upset. I tried to get insurance through a broker this time but all insurance companies...

I can't believe it I have been refused life insurance again. I'm so upset. I t...

Paula1968

•12 years ago

5 Replies

I have scoliosis since 13 years old, im now 34 and diagnosed with lupus about year ago. What is normal?

I have major flare ups/swellings and feet, legs, Arms and hands. I suffer a lot with pluerisy, now have pins and needles in head with swollen left side of...

I have major flare ups/swellings and feet, legs, Arms and hands. I suffer a lot ...

mummyswift

•12 years ago

7 Replies

fun with kids

hi all just a wee winge went out with kids had a fab day sun roasting did all the usual stuff cream out long sleeves denims thought shoukld be ok ohhhhhhhh boy...

hi all just a wee winge went out with kids had a fab day sun roasting did all th...

angieskye

•12 years ago

3 Replies

STEROID ADVICE

steroids back up as i previously posted. had couple of good days and now i down with really sore throat. it seems everytime they are increased i get either...

steroids back up as i previously posted. had couple of good days and now i down ...

moss

•12 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2012

Does the Mirena coil cause flare ups and / or make them worse?

Cost of medication is madness.

DISCOID LUPUS

sjgroens

Hello everybody, here I am with 'that petition' again.

Lovely stay in the cardiac care unit

Bruises

I am feeling so down, unhappy and scared. Really struggling at the moment and don't know what to do.

Finally got first apointment with a reumy next month wot can i exspect are they just as bad as the other qaucks

Am I the only one to feel lonely?

Does anyone else get burning pains?

I've had enough of this stupid diet!!!

Hi has anyone got any advice on taking Echinacea?

how long

I have got DLA it took a while but I have got it now and unless I get better!!! I don't think I have any more forms to fill in. x

I know the answer to this question will be: 'We can't really answer this question!' ...........but please try!

Essex Support Group Meeting

Help.... My GP thinks im crazy!!

head

Part Time Employee

Hi all! Has anyone had problems with holes appearing in the diaphragm and loops of bowel going up into chest cavity? Can't breathe, had CT

Does anyone else suffer hot flashes and shakiness?

Week 4 of the Lupus Diet

Lupus sufferer Big Brother 10 contestant Sophia Brown dies aged just 30.

anyone have dates for meetups in brighton !?

Housing !

Refused insurance again!

I have scoliosis since 13 years old, im now 34 and diagnosed with lupus about year ago. What is normal?

fun with kids

STEROID ADVICE

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