I was diagnosed with lupus 6 months ago.
I was treated for endometriosis about 3 years ago now, had a D&C and at that time was fitted with a Mirena coil. (The Mirena releases a progestin hormone called levenorgestrel into the uterus and was recommended to me at the time to help prevent heavy periods and risk of recurring endometriosis.)
A few months after insertion, I was hospitalised with what was thought to be meningitis. Following a recent re-examination of results of samples taken of spinal fluid at the time, it turns out that what I had actually experienced was swelling of the meninges due to lupus.
I am now wondering if the Mirena had anything to do with that flare up... On the net I have come across a number of discussion threads where people claim that the Mirena has either caused lupus or made it worse. I have also read it should be used "with caution" in lupus patients. Just wondering if anyone has any thoughts, please...
Since the "meningitis" episode I have never felt right and I have no energy or stamina. My lupus symptoms have got a lot worse since the Mirena was fitted, although the endometriosis obviously preceded it.
If I have it taken out, my heavy periods and PMS will return and I guess I am at risk again of endometriosis.
I have an appointment with my Rheumatologist on Thursday morning and I am debating about whether I should ask her for a referral to the Gynae to have the Mirena removed.
Any thoughts greatly appreciated.