Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,002 members • 28,325 posts

All posts for June 2012

Anyone have a child or grandchild with Lupus ?My grandson was diagnosed last year aged 11 but had for suffering for at least a year .

All survivors of this horrendous illness seem to be female and older . I would like to be able to connect with someone who knows a younger male .. Love and...

All survivors of this horrendous illness seem to be female and older . I would ...

happygrandma

•12 years ago

8 Replies

lupus vs ms

i have cns lupus and ms dx in 1999, i am expiercing ataxia and grand-mal siezures since jan, this yr had petit-mals since 2008, one doc says there caused by...

i have cns lupus and ms dx in 1999, i am expiercing ataxia and grand-mal siezure...

ndluv

•12 years ago

1 Reply

If you are a teacher with lupus, have you received any type of special accomodation such as no break duties or flexible schedule?

I am trying to find out how the management of a school accomodate their teachers if they have lupus. Meaning the person can work but it helps to do less of the...

I am trying to find out how the management of a school accomodate their teachers...

monpe

•12 years ago

5 Replies

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Meeting for Lupus Survivors ( i refuse to say I suffer) In Gloucestershire

Initial get together on Tuesday 19th June in Stroud as seems to be midway point for a couple of us.. Suggested meeting place is either Costa Coffee or Cafe...

Initial get together on Tuesday 19th June in Stroud as seems to be midway point ...

tinkerbellquo

•12 years ago

7 Replies

SJOGRENS SYDROME

Having been diagnosed with Lupus many years ago now, at 61 they tell me after some tests etc that I have also got Sjogrens syndrome. I knew i had some other...

Having been diagnosed with Lupus many years ago now, at 61 they tell me after so...

annlister

•12 years ago

11 Replies

Just diagnosed with Lupus

please can I ask your advice. I have had hypothyroidism for at least 7 years and recently had a bad TSH result with auto immune indicators! I had an emergency...

please can I ask your advice. I have had hypothyroidism for at least 7 years and...

Zoeblu

•12 years ago

8 Replies

Quick update.

A few weeks ago I had a kidney infection. Then 3days into it I went numb down my right side & was taken to hospital where every doctor I saw had a different...

A few weeks ago I had a kidney infection. Then 3days into it I went numb down my...

Nanuuk

•12 years ago

6 Replies

Best £6.83 ever spent

Funny how things change. You think you know how things are going to be and put yourselves in a place where you accept it and then it all changes - suddenly....

Funny how things change. You think you know how things are going to be and put ...

Davros

•12 years ago

11 Replies

sharp pains shooting down the left side of my head

been up most of the night in pain, but having shooting pains down the left side of my head very intense then it goes away and comes back about an hour or 2...

been up most of the night in pain, but having shooting pains down the left side ...

luupysue

•12 years ago

7 Replies

neg bloods -what treatment next after steroids

has anyone else with neative bloods and a ?SLE diagnosis moved on from steroids to immuno suppressants. if so what do you take and has it helped. i am trying...

has anyone else with neative bloods and a ?SLE diagnosis moved on from steroids ...

moss

•12 years ago

4 Replies

Has anyone had Omeprazole suggested when taking prednisolone long term?

loopy-lou

•12 years ago

29 Replies

Newly diagnosed, curious

I was diagnosed with SLE in mid-May 2012. I have suffered with terrible lesions on my upper arms, chest, and face for almost 10 years, with a diagnosis of...

I was diagnosed with SLE in mid-May 2012. I have suffered with terrible lesions...

megp728

•12 years ago

5 Replies

The lupus tiredness and how others cope with not feeling so guilty!!!

Hi There - I've been diagnosed with lupus, fibromyalgia, rheumatoid arthritis and a few more which I won't bore you with, for 15 years now. I know the answer...

Hi There - I've been diagnosed with lupus, fibromyalgia, rheumatoid arthritis an...

BetsieBoo

•12 years ago

18 Replies

respite?

Hi all ! well Ellie seems to be haing a respite form Lupus at the mo ? Is there such a thing ? we have had a good 6 days I`m delighted to say ! Appt (finally)...

Hi all ! well Ellie seems to be haing a respite form Lupus at the mo ? Is there ...

Northerner123

•12 years ago

4 Replies

I have always been fine in the sun.... will is affect me? I've just been diagnosed with lupus sle

I was diagnosed with spondylitus in Nov 2006 and the pain has become increasingly worse until it became unbearable about 3 months ago. After many tests I have...

I was diagnosed with spondylitus in Nov 2006 and the pain has become increasingl...

Keepingsmiling

•12 years ago

7 Replies

medication

tried to stop taking plaquenil. starting to hurt again just been on holiday/wedding. leg started aching again.think wont do anything for a while. went to a...

tried to stop taking plaquenil. starting to hurt again just been on holiday/wedd...

tracyxx

•12 years ago

2 Replies

Problems when not in the sun

I have always had to be careful about exposure to the sun as I don't only get weals on any exposed skin, but all my other symptoms get worse. I thought I...

I have always had to be careful about exposure to the sun as I don't only get w...

margareth8537

•12 years ago

3 Replies

Spots/Rash on my arms

I was diagnosed with lupus SLE in 2006 but have been ill as far back as I can remember. I was eventually told I have ME in the Nineties. The lupus has...

I was diagnosed with lupus SLE in 2006 but have been ill as far back as I can re...

Maureenpearl

•12 years ago

11 Replies

HELP ADVICE PLEASE

hi. all i have a ? sle/connective issue diagnopsis and been on plequnil and steroids for years. over past 6-9 months my steriods have been upped then lowered...

hi. all i have a ? sle/connective issue diagnopsis and been on plequnil and ster...

moss

•12 years ago

2 Replies

Cheltenham support group?

I was diagnosed in Feb having had a lupus crisis with little indication of lupus before so it was a shock. Does anyone know of a local support group. The...

I was diagnosed in Feb having had a lupus crisis with little indication of lupus...

Lg1968

•12 years ago

13 Replies

For those of you on here who have Lupus and Hughes Syndrome together!

An informative film from our recent Patient's Day at St Thomas. lots of the main professors talking about Hughes Syndrome and in part Lupus: I have...

An informative film from our recent Patient's Day at St Thomas. lots of the main...

MaryF

•12 years ago

1 Reply

PRIVATE ECHOGRAM

For quite awhile now I have been having palpitations whether I am sitting down or walking and my GP who is great sent me for a ecg and it came back with a few...

For quite awhile now I have been having palpitations whether I am sitting down o...

daisy11

•12 years ago

Be the first to reply

Numbness

Has any body experienced numbness all over its annoyin if i say,

lpatterson

•12 years ago

6 Replies

added details to any ideas

My Niece has developed a immune disfunction, but the doctors have no idea, what it is. About 6 months ago, she felt really tired, and her joints hurt. She has...

My Niece has developed a immune disfunction, but the doctors have no idea, what ...

frog

•12 years ago

2 Replies

I've found a great little film about lupus and diet

For all those curious like me about whether lupus can be helped by diet- it's very sensible advice! Have a watch on you tube:...

For all those curious like me about whether lupus can be helped by diet- it's ve...

Maya23

•12 years ago

2 Replies

Black Bruising: Update

In reference to a previous thread I just wanted to give a quick update on the mysterious appearing black bruises. I found a huge bruise about 3 inches across...

In reference to a previous thread I just wanted to give a quick update on the my...

Acorn1

•12 years ago

2 Replies

June's Blog Topic

Our Topic of the Month for June is coping with Oral Thrush. Oral Thrush is a type of yeast infection in the mouth which has a higher prevalence in people with...

Our Topic of the Month for June is coping with Oral Thrush. Oral Thrush is a ty...

Paul_Howard

Partner•12 years ago

4 Replies

Any Ideas please

My Niece has developed a immune disfunction, but the doctors have no idea, what it is. About 6 months ago, she felt really tired, and her joints hurt. She has...

My Niece has developed a immune disfunction, but the doctors have no idea, what ...

frog

•12 years ago

1 Reply

Topic of the Month: May - Discussing lupus in a relationship

A chronic illness can have a profound effect on a relationship and lupus is no exception to this. Perhaps one of the greatest issues around lupus is that in so...

A chronic illness can have a profound effect on a relationship and lupus is no e...

Paul_Howard

Partner•12 years ago

4 Replies

Medication??

I have been taken off Hydro due to it causing shortness of breath, so now i am left wide open with no meds... Feeling terrible. Does anyone know what the...

I have been taken off Hydro due to it causing shortness of breath, so now i am l...

RebeccaAnn

•12 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2012

Anyone have a child or grandchild with Lupus ?My grandson was diagnosed last year aged 11 but had for suffering for at least a year .

lupus vs ms

If you are a teacher with lupus, have you received any type of special accomodation such as no break duties or flexible schedule?

Meeting for Lupus Survivors ( i refuse to say I suffer) In Gloucestershire

SJOGRENS SYDROME

Just diagnosed with Lupus

Quick update.

Best £6.83 ever spent

sharp pains shooting down the left side of my head

neg bloods -what treatment next after steroids

Has anyone had Omeprazole suggested when taking prednisolone long term?

Newly diagnosed, curious

The lupus tiredness and how others cope with not feeling so guilty!!!

respite?

I have always been fine in the sun.... will is affect me? I've just been diagnosed with lupus sle

medication

Problems when not in the sun

Spots/Rash on my arms

HELP ADVICE PLEASE

Cheltenham support group?

For those of you on here who have Lupus and Hughes Syndrome together!

PRIVATE ECHOGRAM

Numbness

added details to any ideas

I've found a great little film about lupus and diet

Black Bruising: Update

June's Blog Topic

Any Ideas please

Topic of the Month: May - Discussing lupus in a relationship

Medication??

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