Does anyone else suffer hot flashes and shakiness?

[katknapp]

Does anyone else got sort of hot flashes?my forehead gets so hot and sweaty even on a cold day,im not on steroids so i know its not that,also i have started getting shaky attacks where all my body seems to shake or sometimes its just my hands,is this part of Lupus? does anyone else suffer either of these?cathyx

[lupydragon]

Hi Cathy, I do get hot flushes, a combination according to rheumy, My age, Lupus its self, and side effect of one of the tablets, but cant remember which one, I take evening primrose oil daily, cold flannel helps as well, which seems to keep the flushes down, doesn't stop them but makes them more barable. I dont get shakes that show, but feel as insides are shaking sometimes, Seeinh rheumy next week so will add to list of things to mention, Guess both are all part of Lupus, seems never a ending list,

[katknapp]

Hi Lupydragon,yes it does seem to be a never ending list lol,these hot flashes are embarrassing especially when my fringe and back of my hair is all wet, thats how hot i get,but its not fevered as you get when you are having a flare up if you know what i mean.

[loopy-lou]

I had this for years (before I was diagnosed) and was told at that point it was due to my underactive thyroid...I don't know if it was that or the lead up to my menopause. This happened from my very late 30's. I looked like I had just come out of a shower with soaking wet hair! I had no fever with it. I am now post menopause (I took menopace) and have not had it since taking plaquenil. All I know is it has stopped but never totally got to the bottom of it. I do feel for you as it is awful. I have also had bad shaky times recently but these have felt like my insides shaking and happened at night...very odd. I thought it was stress but may have been part of lupus-it usually is! Good luck.

[janiceray in reply to loopy-lou]

loopy-lou

My Husband kept getting very wet from the flushes and his heart racing.

He has what 100s get and don't know they got is Arterial Fibrillation

Doc tested his blood presser which was high and give him a ecg.

thought this might help you.

[loopy-lou in reply to janiceray]

Hi Janiceray

Thank you for this. If I ever get it again I will mention this to the GP...luckily for me it has stopped. (Hopefully it will not return) I know my blood pressure is normal. I have never had my heart racing-I just got so wet like a shower. Just read lesaliblues reply I had fans all over the house exactly like this and would have to stop and stand in front of the fan.

[lesaliblue]

Dear Katknapp - I have had these sweats/flushes for years really, my husband says it's like sitting next to a radiator! - I just put it down to the Lupus and meds, no distinction - I have a fan on in the kitchen, as one whiff of heat and off I go - otherwise, I don't take any notice - however, I don't have the shakes - hope it all sorts out for you -

[Amethyst]

If the shakiness is accompanied by chills then this is known as 'rigor' and can be an aspect of lupus. Hope that helps

[Looby]

Hi there Katknapp - I call them "burn-ups".....glad to know they seem to have subsided for a while...for you.

I haven't managed to determine whether it is the SLE or a reaction to the meds that triggers them (I've been on Plaquinel for over a year now and recently on Nortriptyline). I'm well over the menopause - and anyway "hot flushes" are kinda different. These do actually feel as though your body is "cooking" from the inside, with a red rash on head, neck and chest.....I sleep with a small fan near to the bed, both Summer and Winter - and I often wake up with wet hair...

Thankfully - I haven't experienced "shakiness" but do have positional vertigo sometimes, and take Betahisthane when this happens. I guess you could say that life is never boring......our bodies continue to surprise us! I do have a theory that what/when we consume food and drink is a factor in this...I can no longer tolerate spicy foods or over acidic drinks.

I have mentioned these to both my GP and Rheum Consultant, but neither of them can suggest anything to alleviate the discomfort - so it is carry on fanning!

[katknapp]

Amethyst,do you know i think i do get chills after shakiness,its horrible my hands tremble and its my chin and down my back,very strange! thank you all for answering me im glad im not the only one to have these horrible hot flashes,i hardly ever wear a coat as when i get a hot flash i start to feel faint and panicky if im wrapped upx

[river]

This happens to me from time to time and when I get a hot flush my heart races very fast which is frightening.

[Lisa78]

I to experiece hot flushes,shakiness.I have been on steroids & azathrioprine for 6yrs now and was started on plaquinel 2 months ago.I also can get very clamy too but docs just say probably the meds but its pretty worrying.U are not alone hun.xxx

[tremarel]

Me too, I'm like it all the time. My heart races, the blood pumps so fast around my body & I feel the sweat running off me. I hate it when I'm in company it makes me really panicky & nervous. What we have to put up with hey guys !

[Karm]

I get the shaky hands (have literally just done a post about it lol) and I get mainly night sweats but in the day I can feel myself all of a sudden getting hot flashes. Thinking about it , it's a little in the day and night!