Posts - My Ovacome | HealthUnlocked

My Ovacome

18,206 members•20,349 posts

All posts for November 2023

ca 125

what is the CA 125 level number supposed to be? Is it anything between 0-35

Le-gra143

•1 year ago

13 Replies

Update on trametinib (Mekinist) for low grade serous ovarian cancer

Good morning everyone We are delighted that NHS England has recommended that the MEK-inhibitor trametinib (Mekinist) should be routinely available as an...

Good morning everyone We are delighted that NHS England has recommended that th...

OvacomeSupport

Partner•1 year ago

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Unable to do transvaginal scan

Hello, I'm new here and will try to be brief but wonder if anyone can advise me. I had a US scan last week as my ca125 result was 91. The radiographer was...

Hello, I'm new here and will try to be brief but wonder if anyone can advise me....

jib70

•1 year ago

13 Replies

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Awaiting scan

Hi, I had a GP appointment Thursday and have been referred for an emergency ultra sound and blood test. I'm feeling really anxious. I thought I had peri...

Hi, I had a GP appointment Thursday and have been referred for an emergency ultr...

Liane29

•1 year ago

7 Replies

Recurrence symptoms

Hello everyone, If you've had a recurrence (or two or three) can you please tell me what your symptoms were the second/third time around and how they...

Hello everyone, If you've had a recurrence (or two or three) can you please te...

FlowerRose

•1 year ago

9 Replies

not posted for a while

Been in hospital for 2 weeks, blue lighted to Christie’s with tummy pain . Turns out because my immune system has crashed ended up with cyst on my bowel , had...

Been in hospital for 2 weeks, blue lighted to Christie’s with tummy pain . Turns...

Cazy1010

•1 year ago

9 Replies

scared ..

I just need to talk .. My background. I’m 51 with very little family for support. Last natural period feb 22, tried various hrt options between may -...

I just need to talk .. My background. I’m 51 with very little family for suppo...

Snowhite6

•1 year ago

20 Replies

What's on at Ovacome next week? (week commencing 13 November 2023)

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•1 year ago

Be the first to reply

Have you had chemo via cannula?

Hello Ladies, After a summer of multiple surgeries and the diagnosis of rare aggressive mucinous ovarian cancer, I had the good news that the cancer hasn’t...

Hello Ladies, After a summer of multiple surgeries and the diagnosis of rare ag...

OCacc

•1 year ago

39 Replies

Advocating for myself or being a nuisance?

Sorry long post.. I've just got home after a 12 hour stint at A&E mostly in chairs and so long as blood tests were lost. Spent an interested 4 hours with...

Sorry long post.. I've just got home after a 12 hour stint at A&E mostly in cha...

Tray4321

•1 year ago

24 Replies

Metastic clear cell...

Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes...

Hi, everyone. How are you? I just came back from my clinic appointment and was t...

carrotmunch5

•1 year ago

6 Replies

Trametinib!

Have been diagnosed with 3c stage low grade ovarian cancer back in 2016, after debunking and several rounds of chemotherapy remission for 7 years, now the big...

Have been diagnosed with 3c stage low grade ovarian cancer back in 2016, after ...

Izoominka

•1 year ago

2 Replies

Confused which seeds are ok to add to diet

Trying to work out whether or not flax seed or chia seed is ok to add to my smoothies. Some articles say it reduced OC risk but then say if you have an...

Trying to work out whether or not flax seed or chia seed is ok to add to my smoo...

Jholly4

•1 year ago

9 Replies

Survey to understand experiences of inhibin testing for granulosa cell tumours in the U.K.

Good afternoon everyone This post is to let you know about a survey to understand experiences of inhibin testing for granulosa cell tumours in the U.K....

Good afternoon everyone This post is to let you know about a survey to understa...

OvacomeSupport

Partner•1 year ago

Be the first to reply

constant flu

my mom are now on doxil, she has almost all the time flu, 37-38:( she has antibiotics and small amount of stereoids but temp is anyway, that she try to go to...

my mom are now on doxil, she has almost all the time flu, 37-38:( she has antibi...

Inguc_is

•1 year ago

3 Replies

Caelyx and hair loss

Hello,This journey against ovarian cancer stage IV with bcra1 mutation started in June 2016, with chemo, debulking hysterectomy surgery and more...

Hello,This journey against ovarian cancer stage IV with bcra1 mutation started i...

Pumpkininja

•1 year ago

32 Replies

How was your Ovarian cancer diagnosed?

So, I'm 42 and have been on waiting list for nearly 12 months having been diagnosed with multiple fibroids. My GP recently ordered an ultrasound for me, to...

So, I'm 42 and have been on waiting list for nearly 12 months having been diagno...

EmmaS1980

•1 year ago

19 Replies

My cancer vlog

I am starting to document my experience of cancer and cancer care. There will be funny moments. However, as not overwhelmingly positive (don't get me wrong,...

I am starting to document my experience of cancer and cancer care. There will ...

candyapplegrey

•1 year ago

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Rucaparib - your experiences needed

Hello All We are currently preparing two submissions to NICE for their reviews of rucaparib (Rubraca) and we would really like to hear from you if you have...

Hello All We are currently preparing two submissions to NICE for their review...

OvacomeSupport

Partner•1 year ago

8 Replies

1st Recurrence

Hi, we received the results of my mums recent scan last week and it showed that she has lesions on both of her lungs and her liver. They are numerous and all...

Hi, we received the results of my mums recent scan last week and it showed that ...

Pitchperfec

•1 year ago

4 Replies

looking for positive stories….

Hi, following on from my last post I wondered if anyones prognosis has been wrong? I am not sure our moderators will allow my post but I am in a sad hole.. My...

Hi, following on from my last post I wondered if anyones prognosis has been wron...

Laz66

•1 year ago

19 Replies

Hello. Low grade Serous

Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’ve had 2 massive ops and chemo and now take Letrozole. My recent scans have...

Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’...

GoldieH

•1 year ago

17 Replies

Peripheral neuropathy

Hi everyone, I hope everyone is safe during this awful weather I have been told in my latest review that I have Stage 1 peripheral neuropathy. Bit of a blow...

Hi everyone, I hope everyone is safe during this awful weather I have been tol...

Skyeplus

•1 year ago

13 Replies

Post surgery issues

Hi thereLooking for advice/experiences post surgery. I had Interval Debulking/Radical Hysterectomy on 26 October. The surgery went well and I came home after...

Hi thereLooking for advice/experiences post surgery. I had Interval Debulking/Ra...

Jpembs

•1 year ago

14 Replies

Hormone Replacement for Surgical Menopause

Hi dear ladies, have any of you used HRT to cope with the horrors of surgical menopause resulting from OC treatment, if that diagnosis happened to you prior to...

Hi dear ladies, have any of you used HRT to cope with the horrors of surgical me...

Doggies221

•1 year ago

20 Replies

STAGE 1C1 Grade 2

Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the...

Hello all Hope everyone is doing ok. I am new here. I found out end of Aug...

Kscott10

•1 year ago

23 Replies

scan results

Hi everyone thank you so much for your kind encouraging messages. I had a call from my CNS after their MDT meeting and my scan is clear the small lymph node...

Hi everyone thank you so much for your kind encouraging messages. I had a call ...

Hota

•1 year ago

10 Replies

Follow-up to my post

Thank you for all of your replies. My husband is now being very supportive and we had a good talk. I was so nervous on Tuesday when I went to get my blood...

Thank you for all of your replies. My husband is now being very supportive and w...

Chanterelle

•1 year ago

11 Replies

What's happening at Ovacome next week? (week commencing 6 November 2023)

Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good morning everyone This is our weekly post to let you know about the differe...

OvacomeSupport

Partner•1 year ago

Be the first to reply

Feeling really low

I posted here a few weeks ago regarding having an MRI for ongoing back pain. The MRI only showed degenerative changes, but also picked up a small lymph gland...

I posted here a few weeks ago regarding having an MRI for ongoing back pain. The...

Hota

•1 year ago

8 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for November 2023

ca 125

Update on trametinib (Mekinist) for low grade serous ovarian cancer

Unable to do transvaginal scan

Awaiting scan

Recurrence symptoms

not posted for a while

scared ..

What's on at Ovacome next week? (week commencing 13 November 2023)

Have you had chemo via cannula?

Advocating for myself or being a nuisance?

Metastic clear cell...

Trametinib!

Confused which seeds are ok to add to diet

Survey to understand experiences of inhibin testing for granulosa cell tumours in the U.K.

constant flu

Caelyx and hair loss

How was your Ovarian cancer diagnosed?

My cancer vlog

Rucaparib - your experiences needed

1st Recurrence

looking for positive stories….

Hello. Low grade Serous

Peripheral neuropathy

Post surgery issues

Hormone Replacement for Surgical Menopause

STAGE 1C1 Grade 2

scan results

Follow-up to my post

What's happening at Ovacome next week? (week commencing 6 November 2023)

Feeling really low

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