Posts - My Ovacome | HealthUnlocked

My Ovacome

17,728 members • 19,972 posts

All posts for February 2020

Not a very good outpatients appointment. Your thoughts please!

I had my outpatients appointment with new oncologist last week prior to chemo no. 5 for first recurrence. Neutrophils were only 0.7 therefore no chemo unless...

I had my outpatients appointment with new oncologist last week prior to chemo no...

sticky3006

•4 years ago

25 Replies

Nausea 1 week after carbo taxol

Hey all, I'm on day 7 of my first round of chemo and have been nauseous since day 4 when I finished the antiphalactic nausea meds. I took the as-needed...

Hey all, I'm on day 7 of my first round of chemo and have been nauseous since da...

FtMwithOC

•4 years ago

12 Replies

Abraxane Carbo dizziness/heart flutters

Anyone have these side effects from this combo? I passed out once from my treatment before last thinking it was due to not eating. This time I e gotten dizzy a...

Anyone have these side effects from this combo? I passed out once from my treatm...

Stage4Gir

•4 years ago

8 Replies

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Niraparib

After my blood transfusion of 1 unit I felt really good, last week my Haemoglobin was up at 92. They dropped the dose of Niraparib down to 2 x 100mg, sadly a...

After my blood transfusion of 1 unit I felt really good, last week my Haemoglobi...

Hidden

•4 years ago

11 Replies

Travel insurance query

Dear All We have had a query via the support line which I hope you can help with. One of our members is having difficulty getting insurance when she is asked...

Dear All We have had a query via the support line which I hope you can help with...

OvacomeSupport

Partner•4 years ago

15 Replies

12 years tomorrow

I know some of you are really struggling with this cancer, & we have lost too many ladies to it, but I hope my milestone might encourage someone a little....

I know some of you are really struggling with this cancer, & we have lost too ma...

Di16

•4 years ago

33 Replies

Disappointment on the DICE trial

Hello everyone, I hope you all are doing well in your own personal battles. Meanwhile, I have just entered the 6th cycle of the DICE trial, where I have been...

Hello everyone, I hope you all are doing well in your own personal battles. Mean...

Lindaura

•4 years ago

53 Replies

Immunotherapy trial question

I’ve been tested for acceptance into an immunotherapy trail but as of now I don’t have enough measurable disease, go figure. Please forc thy at but frustrated...

I’ve been tested for acceptance into an immunotherapy trail but as of now I don’...

Calluv

•4 years ago

20 Replies

Olaparib side effects?

Hi there ladies, I’ve been on Olaparib for around five - six weeks. I find I seem to get diarrhoea around every four days and my appetite has dropped right off...

Hi there ladies, I’ve been on Olaparib for around five - six weeks. I find I see...

Frenchhouse3

•4 years ago

28 Replies

Ovacome in Coventry - 5 March 2020

Dear All We would love for you to join us in Coventry this Ovarian Cancer Awareness Month, to find out about the new local services that we will be providing...

Dear All We would love for you to join us in Coventry this Ovarian Cancer Awaren...

OvacomeSupport

Partner•4 years ago

3 Replies

Back to my oncologist this afternoon to hear the result of my scan - anyone on weekly taxol?

Just got home yesterday from doing my scan in time for my oncologist to call telling me he was going to bring forward my scan to which I informed him I had...

Just got home yesterday from doing my scan in time for my oncologist to call tel...

Shorty864

•4 years ago

18 Replies

Neck Ct scan and X-ray results n

All tests are back but dr appt not for 2 weeks to get results is that good or bad news typically? Neck fusion was done 2 years ago but mild nerve damage in...

All tests are back but dr appt not for 2 weeks to get results is that good or ba...

Mcook1968

•4 years ago

2 Replies

In focus: lymphoedema - compression garments and bandages

Hello In last week’s post we looked at what lymphoedema is and why it can happen following treatment for ovarian cancer. Today we’ll start to look more closely...

Hello In last week’s post we looked at what lymphoedema is and why it can happen...

OvacomeSupport

Partner•4 years ago

17 Replies

Just started taxol/carbo a few days ago..crazy leg pain

Hi everyone, I'm new here. I was diagnosed with 1C clear cell ovarian cancer a few months ago, I'm 30 years old. Don't know any one personally at my age that...

Hi everyone, I'm new here. I was diagnosed with 1C clear cell ovarian cancer a f...

mimmi2089

•4 years ago

28 Replies

Niraparib Update..............

Hello Ladies, the Transfusion I had last Friday as done the trick and my Haemoglobin is up at 92, so I am going to restart Niraparib at a reduced dose of 200....

Hello Ladies, the Transfusion I had last Friday as done the trick and my Haemogl...

Hidden

•4 years ago

19 Replies

Ovacome 2020 consultation

Hello All Every other year Ovacome undertakes a consultation with those who have used our services, our supporters and healthcare professionals. This...

Hello All Every other year Ovacome undertakes a consultation with those who have...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Ova to You Southampton 11 February 2020

Hello We're running our next regional Ova to You support event tomorrow. Join Ovacome in Southampton for an opportunity to connect with others whose lives have...

Hello We're running our next regional Ova to You support event tomorrow. Join Ov...

OvacomeSupport

Partner•4 years ago

Be the first to reply

Side-effects

Good morning dear ladies, I have been very down these days, mostly because of the side-effects Avastin has given me - such terrible fatigue (wanting to sleep...

Good morning dear ladies, I have been very down these days, mostly because of th...

Shorty864

•4 years ago

17 Replies

How soon is too soon for chemo after surgery?

Hi, This is my first time posting here. I'm 37, trans (ftm), though with all the "lady parts" of my reproductive system until this winter. I was diagnosed...

Hi, This is my first time posting here. I'm 37, trans (ftm), though with all th...

FtMwithOC

•4 years ago

19 Replies

Question about pleural effusion catheter procedure

I'm having a catheter drainage tube put in for a pleural effusion. also, while they do this they will be taking out a sample from a nodule in my pleural space....

I'm having a catheter drainage tube put in for a pleural effusion. also, while t...

Natsmb

•4 years ago

10 Replies

Blood Transfusion

Hello Ladies - Unfortunately Niraparib has caused my Haemoglobin to fall, I am due to have a blood transfusion tomorrow so that I can hopefully resume...

Hello Ladies - Unfortunately Niraparib has caused my Haemoglobin to fall, I am d...

Hidden

•4 years ago

18 Replies

mouth ulcers

Hi I am on number three of carbo/caylex and the mouth ulcers are driving me mad it is difficult to eat , and talking is nigh on impossible, i already tried...

Hi I am on number three of carbo/caylex and the mouth ulcers are driving me mad ...

megb246

•4 years ago

23 Replies

Hello ladies, any tips for alleviating awful joint pain from having Avastin? Any tips would be greatly appreciated.

Hello Ladies, I am on my 8th infusion of Avastin and I have not managed to figure out how to manage the joint pain. Currently taking Naproxen and Massaging...

Hello Ladies, I am on my 8th infusion of Avastin and I have not managed to fig...

Meridian14

•4 years ago

21 Replies

I’m new here

Hello, I’m coming up to one year since diagnosis and will shortly be heading back to work. I was operated on last April and was found to be stage 1c3 clear...

Hello, I’m coming up to one year since diagnosis and will shortly be heading bac...

Yorkiepudd

•4 years ago

19 Replies

In focus: lymphoedema - introduction and finding a therapist

Hello Our ‘Health in Focus’ posts this month will be looking at the topic of lymphoedema. In this first post we’ll give an overview of what lymphoedema is, why...

Hello Our ‘Health in Focus’ posts this month will be looking at the topic of lym...

OvacomeSupport

Partner•4 years ago

2 Replies

Stoma? I’d advise you to wear abdominal support garments from the get go.

Hi all, Back in June 2019 I came out of surgery with a stoma, which I was not expecting. I was very careful to listen to and take the advice about...

Hi all, Back in June 2019 I came out of surgery with a stoma, which I was not ...

Meridian14

•4 years ago

14 Replies

Stage 4 Clear Cell Ovarian Cancer

Hi I am new on this site. I was originally diagnosed with Clear Cell Ovarian cancer grade 1c in September 2018 with an 80% recovery rate. I had a full...

Hi I am new on this site. I was originally diagnosed with Clear Cell Ovarian ca...

susras

•4 years ago

18 Replies

Avastin

I am in the UK and have my final 18 avastin dose soon. Has anyone had more than 18 treatments. It has worked well for me and I don't want to stop treatment of...

I am in the UK and have my final 18 avastin dose soon. Has anyone had more than ...

Iwillbeatit

•4 years ago

13 Replies

don't worry lol!

ok ca125 now 1833 after one infusion of caelyx,told this is quite normal due to chemo causing cancer cell death! hmmm lets hope no2 is better!

ok ca125 now 1833 after one infusion of caelyx,told this is quite normal due to ...

jools53

•4 years ago

13 Replies

All clear

Well ladies, after waiting 8 weeks for an appointment for the results of my CT, 2 days before it I received a letter saying it was all clear..followed by a...

Well ladies, after waiting 8 weeks for an appointment for the results of my CT, ...

Hidden

•4 years ago

12 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for February 2020

Not a very good outpatients appointment. Your thoughts please!

Nausea 1 week after carbo taxol

Abraxane Carbo dizziness/heart flutters

Niraparib

Travel insurance query

12 years tomorrow

Disappointment on the DICE trial

Immunotherapy trial question

Olaparib side effects?

Ovacome in Coventry - 5 March 2020

Back to my oncologist this afternoon to hear the result of my scan - anyone on weekly taxol?

Neck Ct scan and X-ray results n

In focus: lymphoedema - compression garments and bandages

Just started taxol/carbo a few days ago..crazy leg pain

Niraparib Update..............

Ovacome 2020 consultation

Ova to You Southampton 11 February 2020

Side-effects

How soon is too soon for chemo after surgery?

Question about pleural effusion catheter procedure

Blood Transfusion

mouth ulcers

Hello ladies, any tips for alleviating awful joint pain from having Avastin? Any tips would be greatly appreciated.

I’m new here

In focus: lymphoedema - introduction and finding a therapist

Stoma? I’d advise you to wear abdominal support garments from the get go.

Stage 4 Clear Cell Ovarian Cancer

Avastin

don't worry lol!

All clear

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