I hope you all are doing well in your own personal battles.
Meanwhile, I have just entered the 6th cycle of the DICE trial, where I have been on the trial arm of weekly Taxol and three days of the trial drug, TAK228 each week for five months.
This trial has not been a walk in the park for me, and even with reduced dosages of both drugs, it has greatly impacted my quality of life, which would be fine if the trial worked to stop the progress of my cancer.
But, after a promising start, with my CA-125 dropping from 143 in October to 29 in December, it rose to 53 in January and 91 in February.
My last scan showed my very small nodules increasing in size. My next scan is in 3 weeks.
The trial has definitely slowed progression, but not stopped it. I see no point in continuing it, as it makes me feel lousy five out of seven days each week.
My question: it looks like my cancer is confined to three small nodules in my abdomen, which are measured precisely for each scan.
Can I send a request myself to Prof F for her opinion on a second surgery? Or do I have to get a referral from my Oncologist or GP?
Thanks for listening,
Hugs to all,