Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2022

Benlysta

Hi everyone! I was diagnosed with lupus last year and the doctors want to give me Benlysta. What is it like? I know it suppresses your B-cells which means...

Hi everyone! I was diagnosed with lupus last year and the doctors want to give m...

Tonkotsu

•2 years ago

2 Replies

Lupus, life, and counselling

Well fellow lupies, 😜 I've had my first appt with a psych today, bar neuropsych 😆, and have got it done privately. Costly, but if it's something I need then...

Well fellow lupies, 😜 I've had my first appt with a psych today, bar neuropsych...

LottieLou96

•2 years ago

27 Replies

Phone for heart and Lupus.

Hello all you lovely Lupies, I know it isn’t an original idea but I thought you might like to see our village phonebox which has been converted to house our...

Hello all you lovely Lupies, I know it isn’t an original idea but I thought you ...

Spotty-ewe

•2 years ago

47 Replies

Want to take advantage of all our features? Just log in!

medication sensitivity, problem with getting the right brand.

Hi everyone, I was wondering, does anyone have difficulty with getting the right brand medications due to hypersensitivity. I am hypersensitive to meds and...

Hi everyone, I was wondering, does anyone have difficulty with getting the right...

field

•2 years ago

2 Replies

Plantafacia or policeman heel.

Does anyone else suffer with Plantafacia (sorry about the spelling) or soreness and acute pain under the foot on on the shins. have started to suffer with...

Does anyone else suffer with Plantafacia (sorry about the spelling) or soreness...

sabine

•2 years ago

15 Replies

Lupus and eyesight

Has anyone with Lupus got problems with their sight?

Corcan

•2 years ago

15 Replies

16 and been diagnosed with lupus

My son was diagnosed with lupus last year December. I feel so sorry for him he’s suffering with a lot of pain in fingers. I never knew that at the age of 16...

My son was diagnosed with lupus last year December. I feel so sorry for him he’s...

djsema

•2 years ago

4 Replies

Support

Hi I'm Angie 45 years old, not yet diagnosed waiting on MRI, EMG, Rheumatologist, Colonoscopy. Looking forward to learning more about Lupus

Hi I'm Angie 45 years old, not yet diagnosed waiting on MRI, EMG, Rheumatologist...

Nylahs

•2 years ago

3 Replies

Lupus Symptoms

Has anyone with Lupus experienced swollen temples?

Nylahs

•2 years ago

7 Replies

Azathioprine

Hi, I’ve been on azathioprine for a few months now. It’s really helping ! I wondered if anyone else on it has found they are more sensitive to the sun. Pre...

Hi, I’ve been on azathioprine for a few months now. It’s really helping ! I wo...

LouLamb

•2 years ago

9 Replies

Puzzled

Hi guys right so I got diagnosed with RA ,connective tissue disease, pulmonary fibrosis around 7ish yrs ago iv had probably every test ,exray, scan...

Hi guys right so I got diagnosed with RA ,connective tissue disease, pulmonary f...

Dion50

•2 years ago

Be the first to reply

Rutuximab

Hiya Everyone. I am going to have a rutiximab infusion for the first time in about a 2 weeks. I have a dental appointment as my teeth have become very weak...

Hiya Everyone. I am going to have a rutiximab infusion for the first time in a...

Turquoise1999

•2 years ago

4 Replies

Raynaud's Dr.'s Appt. Outcome Am I Expecting Too Much

I actually had an appointment with just the rheumatologist. First time with no residents. Now I see like Kay said, the residents are important. The doctor did...

I actually had an appointment with just the rheumatologist. First time with no r...

Pumpkin2009

•2 years ago

21 Replies

Is lupus a possibility?

Hi everyone I was just wondering if anyone has had a similar experience, thoughts or recommendations. I have been having pains all through my body (including...

Hi everyone I was just wondering if anyone has had a similar experience, thought...

Anm202

•2 years ago

3 Replies

Clinical letter

Hi all anybody know what is meant by something written on a clinical letter I have States all my ills and then goes through history etc On some bloods it...

Hi all anybody know what is meant by something written on a clinical letter I ha...

Littlemiss_v

•2 years ago

3 Replies

Oh My God 😯 Three dazed and confused Cardiologists.

Some not so junior heart specialists just admitted they don't know what to do with me. An angiogram showed a narrowing of the Lateral Anterior Descending...

Some not so junior heart specialists just admitted they don't know what to do wi...

Freckle1000

•2 years ago

3 Replies

Is this lupus?

Hi everyone I was wondering if anyone could shed some light, I have this across my face and nose which I thought was pigmentation. It started last year, went...

Hi everyone I was wondering if anyone could shed some light, I have this across...

Mumms

•2 years ago

17 Replies

How can you tell…

A lupus rash from rosacea? I get this on my face when I am over tired, not feeling well or stressed. It is on both sides, and exactly the same place both sides...

A lupus rash from rosacea? I get this on my face when I am over tired, not feeli...

Willow7733

•2 years ago

10 Replies

Urine testing

Hello all - I would like to be able to test my urine at home, rather than waiting for appointments with my rheumatologist or GP. I previously bought urine...

Hello all - I would like to be able to test my urine at home, rather than waitin...

Ophelia1

•2 years ago

14 Replies

Chronic pain

Interesting read here, sorry it’s not a link but a screen shot was the was the only way I could get this here.

Interesting read here, sorry it’s not a link but a screen shot was the was the o...

Hidden

•2 years ago

17 Replies

Feel lost

Hi all just looking for some advice if possible please. Has anyone had lupus diagnosed without a positive ana ? I have all the symptoms aside from swelling but...

Hi all just looking for some advice if possible please. Has anyone had lupus dia...

Haylz2109

•2 years ago

44 Replies

Post-Menopausal Bleeds and Lupus Flares

Has anyone seen a connection between post-menopausal bleeding and your lupus flares?

Has anyone seen a connection between post-menopausal bleeding and your lupus fla...

ShannonB

•2 years ago

4 Replies

What diagnosis and medication can I expect with ear rashes and swells painful fingers ? Being the first time, I am quite concerned.

Hello Lupus Uk community. For a year I have had rash in the ears and in the scalp behind my ears. Two months ago ( during winter months) my fingers started...

Hello Lupus Uk community. For a year I have had rash in the ears and in the scal...

NY22

•2 years ago

5 Replies

Happy World Lupus Day

Hello everyone I hope you all haven't got too much 'cuteness overload' with all the lovely Spring Births!. I couldn't resist these dancing lambs at Bleinham...

Hello everyone I hope you all haven't got too much 'cuteness overload' with all ...

misty14

•2 years ago

32 Replies

It’s World Lupus Day

Gentle hugs to everyone and have a lovely day 🤗🤗💕

svfarmer

•2 years ago

11 Replies

North West Lupus Group Information Day - 14th May 2022

Hi everyone, Just a quick reminder that the LUPUS UK AGM and Lupus Information Day will take place this Saturday, 14th May 2022 at Village Manchester Bury...

Hi everyone, Just a quick reminder that the LUPUS UK AGM and Lupus Information D...

Paul_Howard

Partner•2 years ago

2 Replies

Sunlight and Lupus

I know sunlight can make some of us sensitive to the sun and it can cause flares but recently when I’ve been in the sun my face feels like some has scrubbed it...

I know sunlight can make some of us sensitive to the sun and it can cause flares...

Bobbydoodle

•2 years ago

11 Replies

I know I'm a broken record - but why won't they listen or help?

Picture of my lil dog at his favourite place, the beach xx I know I'm not the best advocator for myself, in part, because if you act as a medical professional...

Picture of my lil dog at his favourite place, the beach xx I know I'm not the be...

LottieLou96

•2 years ago

5 Replies

Any Advice Please - Raynaud's, Vasculitis and Dr. Appt.

I have been having increasing problems with freezing fingers for no reason and then being cold all over and debilitating exhaustion. Then the other day, I was...

I have been having increasing problems with freezing fingers for no reason and t...

Pumpkin2009

•2 years ago

35 Replies

Sunsense

It looks like Sunsense sun protection is back in stock. After been told by Boots they wldnt be able to provide it anymore a while ago, I submitted a...

It looks like Sunsense sun protection is back in stock. After been told by Boots...

smudge1980

•2 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2022

Benlysta

Lupus, life, and counselling

Phone for heart and Lupus.

medication sensitivity, problem with getting the right brand.

Plantafacia or policeman heel.

Lupus and eyesight

16 and been diagnosed with lupus

Support

Lupus Symptoms

Azathioprine

Puzzled

Rutuximab

Raynaud's Dr.'s Appt. Outcome Am I Expecting Too Much

Is lupus a possibility?

Clinical letter

Oh My God 😯 Three dazed and confused Cardiologists.

Is this lupus?

How can you tell…

Urine testing

Chronic pain

Feel lost

Post-Menopausal Bleeds and Lupus Flares

What diagnosis and medication can I expect with ear rashes and swells painful fingers ? Being the first time, I am quite concerned.

Happy World Lupus Day

It’s World Lupus Day

North West Lupus Group Information Day - 14th May 2022

Sunlight and Lupus

I know I'm a broken record - but why won't they listen or help?

Any Advice Please - Raynaud's, Vasculitis and Dr. Appt.

Sunsense

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive