Puzzled: Hi guys right so I got diagnosed with RA... - LUPUS UK

LUPUS UK

32,072 members28,393 posts

Puzzled

Dion50 profile image
0 Replies

Hi guys right so I got diagnosed with RA ,connective tissue disease, pulmonary fibrosis around 7ish yrs ago iv had probably every test ,exray, scan ,biopsy,bloods known to man ,countless chest infections but not for months,now only 7 I think since Sept so for Me that's really good I take a antibiotic 3 times a week ,a immunesuppresant 4 a day,so when I was told what I had they said it usually 3/4yrs but I no everyone is different but even when I visit my consultant he looks at me puzzled and just says erm you are a unique case ,well I know that and I get that I don't fully think that they know ,and I know at somepoint game over,but what if somethings been overlooked ,iv even had vats surgery and I'm on oxygen 2lt at rest ,6lts walking ,I'm thinking this as got to be the calm before the storm ,I no everyone is diffent🤫 but what's everyone experiences please.

Written by
Dion50 profile image
Dion50
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

Feeling fed up needed a moment

This is my first post, iv loved reading everyone elses stories and advice they have received and it...

Fed up with IBS diagnosis! Ridiculous!

Hi guys I haven't been on for a while as iv been so very I'll. In May I lost 2 and a half stone in...

Itchy skin after showering or bathing?

Hi I'm a 19 year old with Lupus. I've been diagnosed for about 4 years now and I was just wondering...

Hi, Apologies for the long post that follows, but I really need advice and support at the moment...

Hi, I have MS, I was dx when I was 28 - now 37. It is a definite diagnosis. I had what I thought...

Vasculitis, Liver Cirrhosis, and Ascites

Hi Everyone, I have a doctor’s appt tomorrow. Just got back my most recent lab results. Before...