Rutuximab : Hiya Everyone. I am going to have a... - LUPUS UK

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Rutuximab

Turquoise1999 profile image
4 Replies

Hiya Everyone.

I am going to have a rutiximab infusion for the first time in about a 2 weeks.

I have a dental appointment as my teeth have become very weak and have caused the to crack. I may need an extraction.

I have been reading and some people have said you have to be careful in terms of of infections.

Does anyone have any information on this or any advice on what I should do ?

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Turquoise1999 profile image
Turquoise1999
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4 Replies
Loopy1971 profile image
Loopy1971

Hello. I’ve just had my second Rituximab infusion yesterday and all went well. I always wear a mask when I’m out due to vulnerability of infection. Won’t take any risks. The infusions themselves are fine. If your taking Prednisolone just let them know what mg as they’ll adjust the Prednisolone Pre-meds accordingly.

Good luck. Thinking of you ❤️❤️

Babsy2 profile image
Babsy2

I had to have a tooth extraction, but I get 2 units of platelets beforehand. I have had an infusion of rutiximab but made no difference to my platelet count so therefore just get platelets x Good luck .

mobilitymiss profile image
mobilitymiss

You need to speak to your nurse , it’s different for different people who may have multiple conditions. Infection is a risk factor with rituximab x

Paprika60 profile image
Paprika60

Retuximab wipes out your B cells completely from what I understand. Therefore it makes you very vulnerable to any infection. It is very important you read the booklet thoroughly, provided by your doctor, and also stay away from alcohol completely. You will need to rest a lot too as it is your first time. Loopy is right. You need to be aware of the premed (with hydrocortisol) and make sure your prednisolone take is fine. I was never given any warning neither by doctors or nurses at the infusion unit. So I ended up suffering.Good luck!

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