Benlysta

[Tonkotsu]

Hi everyone! I was diagnosed with lupus last year and the doctors want to give me Benlysta. What is it like? I know it suppresses your B-cells which means you're more susceptible to infections (like COVID). What has been your experience? Did you have to take plaquenil as well? Any advice would be wonderful! There are no patients or support groups where I live.x

[Username52021]

Hi I have been on plaquenil for almost two years and I take Humira injections every two weeks for my arthritis Lupus and Arthritis are under control I caught the covid omicron variety once and all are good

Just keep clean and sanitise all the time and avoid crowds as much as you can

[Tonkotsu in reply to Username52021]

Thanks for sharing your experience! Did you wear a mask all the time? Even outside in the open air? And did you still go to restaurants? I am only now just starting to not wear my mask outside. I used to wear it anytime I stepped out of my house. I have a baby you see so I am very scared that I can also catch something through her too.