Hi everyone I was just wondering if anyone has had a similar experience, thoughts or recommendations.
I have been having pains all through my body (including joints) for about 2 years now. I was also experiencing fatigue and headaches, as I still do now. I went to the doctor last summer and they did labs that all came back normal, except my b12 levels were low- 160 with a reference range of 180-900. I was recommended to take oral supplements, which I did for 2 months with no improvement so I stopped.
I went back after a couple of months and was prescribed injections as a test trial. I just finished this trial- 1 shot a week for 10 weeks, and still having symptoms.
In fact I’m having more symptoms than before. About a month ago I started getting a rash on my face, it lasted multiple days where it would subside and also become more prominent. A couple weeks later and it’s back and lasting for multiple days again where its not prominent all the time but still there. It seems to have that butterfly shape and is red and sometimes feels like it’s radiating heat. I’ve also been having pains in my side and lower back just one side. And the last couple of times I’ve had a urinalysis there has been unexplained blood in my urine.
I went back to the doctor this week and presented my new symptoms and they were kind of brushed off and it was suggested rash was due to allergies. My labs were drawn again to re-check my b12 levels but I’m not sure if there’s other test they’re running. It was also suggested that fibromyalgia might be a possibility if my levels come back normal but I really don’t think that’s it.
I feel like my symptoms are consistent with lupus but my Ana back in June was negative. Could it still be a possibility, or is there something else that seems similar to what’s going on?