Is lupus a possibility?

[Anm202]

Hi everyone I was just wondering if anyone has had a similar experience, thoughts or recommendations.

I have been having pains all through my body (including joints) for about 2 years now. I was also experiencing fatigue and headaches, as I still do now. I went to the doctor last summer and they did labs that all came back normal, except my b12 levels were low- 160 with a reference range of 180-900. I was recommended to take oral supplements, which I did for 2 months with no improvement so I stopped.

I went back after a couple of months and was prescribed injections as a test trial. I just finished this trial- 1 shot a week for 10 weeks, and still having symptoms.

In fact I’m having more symptoms than before. About a month ago I started getting a rash on my face, it lasted multiple days where it would subside and also become more prominent. A couple weeks later and it’s back and lasting for multiple days again where its not prominent all the time but still there. It seems to have that butterfly shape and is red and sometimes feels like it’s radiating heat. I’ve also been having pains in my side and lower back just one side. And the last couple of times I’ve had a urinalysis there has been unexplained blood in my urine.

I went back to the doctor this week and presented my new symptoms and they were kind of brushed off and it was suggested rash was due to allergies. My labs were drawn again to re-check my b12 levels but I’m not sure if there’s other test they’re running. It was also suggested that fibromyalgia might be a possibility if my levels come back normal but I really don’t think that’s it.

I feel like my symptoms are consistent with lupus but my Ana back in June was negative. Could it still be a possibility, or is there something else that seems similar to what’s going on?

[Spanielmadlady]

Hi Anm.so many AI illnesses overlap so it's not possible for us to say.stick with the injections as they are needed for life if you have b12 defiency anaemia which is auto immune.i have them every 8 weeks and get symptoms when my injection is due.keep a symptoms diary and photos of rashes.there is an 11 point criteria for lupus you may find useful.john Hopkins University lupus Centre maybe a good place for info for you.i don't know how much things differ.have they done dsDNA or compliment bloods ? Have they checked your creatinine and gromular filtration rate ? Stay out of the Sun and use a high factor suncream ,hat and sunglasses and see if that makes any difference.

Other than that be persistent. In the UK it's a long journey to diagnosis. Kind regards xxx

[Betty909090]

Try a read of this:lupusuk.org.uk/wp-content/u...

[Sashappy]

Drink lots of water for kidneys. I lacked Bs and D's but didn't improve when I managed to balance it naturally as couldn't tolerate the vitamin tabs. It took from 2005 to 2020 to diagnose me as Lupus masked behind other underlying conditions like thyroid disease. I tested negative over and over again. Had deep biopsies and bloods regularly. Was hospitalized due to joint pain and swellings. Nothing came up in my bloods. Could sleep for upto 18 hours a day. You're not alone. I was eventually referred to a London hospital under a professor where all the historical findings were looked at and they found markers showing In had Lupus for years... Just started treatments in 2021 and am being seen every 3 months.