Happy World Lupus Day: Hello everyone I hope you... - LUPUS UK

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Happy World Lupus Day

misty14 profile image
misty14
β€’32 Replies

Hello everyone

I hope you all haven't got too much 'cuteness overload' with all the lovely Spring Births!.

I couldn't resist these dancing lambs at Bleinham Palace probably getting excited at the Queen's forthcoming Platinum Jubilee!. I do hope you enjoy them too.

Hope your all as well as possible and keeping safe in the sun.

MistyX

P.s my foot's steroid injection is working well and im still pain free which is lovely.πŸ˜€

Not so great is the biliary pain im getting after meals and trying to get an earlier gastro appt which is not easy. πŸ˜ͺ Sums us up really doesnt it, the highs and the lows.? X

32 Replies
β€’

Happy World Lupus Day to you too Helen. What a gorgeous picture, but then I would love it wouldn’t I with lovely lambs leaping all over the place. How I wish I had just a quarter of their energy! πŸ€ͺ Sorry to hear you are suffering horrible biliary pain Misty. 😫 So I really hope you manage to get an earlier gastro appt.πŸ™ Yes it sums us up - hugs and lows but also that β€˜there is always something!’ Just when we feel better from one ailment another rears it’s ugly head. 😑 Thanks for posting such a joyful heart-warming picture for the rest f us when you feel so bad yourself. Take care lovely Misty. πŸ€—πŸ’–πŸ˜˜πŸπŸ‘xxx

misty14 profile image
misty14 in reply to Spotty-ewe

Thank you spotty for your lovely reply. I so agree with you re wishing for the lamb's lovely energy!!. Its the one symptom apart from pain that i think is specially tough with this illness. Treatments are so hit and miss and doctors don't really know what to suggest to help the fatigue. Im hoping to get my gp's help tomorrow so 🀞i get a gastro appt soon or at least hear from the nurse. πŸ™

It sounds like your still struggling with the fatigue so i hope you feel better too. Any news of your jab?.

Keep safe . Xx🐏❀🐏🀞❀🐏❀🀞🐏❀

cuttysark profile image
cuttysark in reply to misty14

Adorable lambs!!!! They lift our spirits and we can share their joy!!!

Hope you get the GP to speak up for you tomorrow about that hospital appointment and a trial of the bile acid.

Sorry you are having a bad time too with fatigue Spotty-ewe , will be in touch very soon.

Thanks for posting Helen on World Lupus Day , certainly are needing all those little lambs to cheer us .xxπŸ‘πŸ‘πŸ‘πŸ’•

Spotty-ewe profile image
Spotty-ewe in reply to cuttysark

Good to see you on the forum Cuttysark and look forward to hearing how you are getting on. Take care. πŸ€—πŸ˜˜πŸ€—πŸ˜˜xx

Spotty-ewe profile image
Spotty-ewe in reply to misty14

Good luck for tomorrow Misty and I hope too your GP will be able to helpπŸ™πŸ». Yes, fatigue is still a major problem with me but never mind at least my bowel is back to normal and the nausea gone. So I’m VERY grateful for that. Hoping you get your appt soonπŸ™ πŸ€—πŸ‘πŸ˜˜πŸ€—πŸ‘πŸ˜˜xx

misty14 profile image
misty14 in reply to Spotty-ewe

Hi spotty, just to let u know I've got an appt with my GP next weds. He's not sure if I qualify to be faster tracked with this pain but wants to see me to devise a plan of action!!. We'll see!!. If only they could experience it too, they'd understand better!!. It's going to be a long week!.

Hope your fatigue improves and let's you have a lovely weekend. Take care. XxπŸ’•πŸ

Spotty-ewe profile image
Spotty-ewe in reply to misty14

That is super news Misty!πŸ‘πŸ» It sounds like you have a good GP. I’m keeping everything crossed for you in the hope your GP comes up with a β€˜fast track’ plan. πŸ€žπŸ™πŸ»πŸ€ž Thanks for your kind wishes, but my fatigue is nothing compared with your pain. 😩 Take care Misty and try to enjoy your weekend. Thanks for your lovely message and I’ll be in touch soon with some funnies I was sent which I hope will help. πŸ™πŸ» πŸ’•πŸ€—πŸ˜˜xx

Lovely, happy picture misty !! The last time we went to visit my husband’s family who live near the Sperrins there were lots of young lambs skipping about. They are so cute πŸ’•πŸ’•. I hope you feel better soon , my husband had to have his gallbladder out, the pain and sickness he had before hand was awful , im sorry you’re going though similar πŸ™πŸ™.

I hope you can see some one soon πŸ™πŸΌπŸ™πŸΌπŸ™πŸΌπŸ™πŸΌ.

Take care and I hope it settles down , hopefully you will be able get out for more walks

Ps my hip injection is starting to work 😘😘😘

misty14 profile image
misty14 in reply to weathervane

Thanx so much weathervane for your lovely message. I love the exuberance of lambs at this time of year. New season etc. You must have always looked forward to seeing them when visiting the inlaws.

Your husband must have felt awful and been so relieved to have his gallbladder out. Pain is so strong. I think mine is my liver , its been wonky a while now with wonky bloods.

So pleased your hip injection is working. Don't go mad and spoil it as i hope like me it lasts a long time for you.

Ive managed to get a gp appt for next weds for us to devise a plan of action!. It would have been sooner if he hadnt been newly back from hols.

Should have better news hopefully next 'cutie pic'. 🀞

Did you see that Rose and Giovanni won a tv bafta award for their incredible dance last year?. Im so thrilled for them as they've done so much good for deaf people.

Have a lovely weekend and enjoy your new hip. Keep safe Xx🐏❀🐏🀞🐏❀🐏

weathervane profile image
weathervane in reply to misty14

Thanks for lovely message mistyπŸ˜€ . I hope you don’t have to come of meds , unfortunately can have bad effect on liver , does a plain diet help, it helped my husband before got gallbladder out .

I hope your gp is going to be a ⭐️and come up with a good plan .πŸ™πŸΌπŸ™πŸΌ

Im trying to get out walking as much as possible within my limits, im definitely less painful at night so far 🀞🏻🀞🏻.

So pleased for Rose and Giovanni πŸ†, its an unforgettable dance , she has done alot for the deaf community.

Take care and good luck with gp appointment , enjoy the weather 🀞🏻 its nice with you as well .

Picture from local show on this week here
misty14 profile image
misty14 in reply to weathervane

Thanx weathervane , for your good wishes. Ill let u know how i get on, on Weds. Its great your walking carefully. Keep going and enjoy the 🌞too. Its still chilly with us but warming up at weekend i think.

I have a plain diet anyway but i am cutting out any fat and sugar and sometimes it helps , sometimes it doesnt. I just don't know and can't wait to see someone experienced in livers who just might be able to help.

I agree how many of our meds are distributed by our livers!. Its a lot but ill cross the change med bridge when i get to it .None of my specialists know the state im in at the mo and im due a rheumy appt this month but it won't happen. Ive got to see what my gp thinks first and go from there.

Take care and keep safe. Xx🐏❀🐏

weathervane profile image
weathervane in reply to misty14

I will keep everything crossed for you , hopefully some magic will be worked πŸ₯°πŸ’•πŸ€—πŸ€—πŸŒ»πŸŒ»

misty14 profile image
misty14 in reply to weathervane

Thank you so much weathervane. I really appreciate it. Ive forgotten to say ive emailed the gastro nurse and so far no reply after 8 days but i could still hear when it gets to 14 days which is up on same day i see my gp!. Wha5s the betting?. !!. Haha!. She must be swamped!. 🀞 Keep safe. Xx❀🀞❀🀞❀🀞❀

weathervane profile image
weathervane in reply to misty14

If you hear nothing by tomorrow phone again , maybe a different nurse might make it a priority and call you before that πŸ™πŸΌπŸ™πŸΌπŸ™πŸΌ

misty14 profile image
misty14 in reply to weathervane

There's only 1 nurse weathervane but thanx for great thought. X❀🀞

weathervane profile image
weathervane in reply to misty14

πŸ€·β€β™€οΈπŸ˜˜πŸ€—πŸ€—πŸŒΈπŸπŸ’•πŸŒ»

misty14 profile image
misty14 in reply to weathervane

β€πŸ€žβ€πŸ€—πŸ€žπŸ€πŸŒΌβ€πŸ˜πŸ€·β€β™€οΈπŸ€β€πŸŒ»Xx

weathervane profile image
weathervane in reply to misty14

Just watched latest Derry girls , laughed so much , highly recommend it xxx

misty14 profile image
misty14 in reply to weathervane

πŸ‘β€πŸ˜πŸ€—β€Xx

Hello lovely, what a super cutie pic, so joyous to see these lovely little lambkins πŸ‘πŸ’•I’m so pleased your foot injections have worked well, what a relief for you after such a long wait.

So sorry you’ve got this biliary problem 😞 we never seem to get any respite do we ?!

Good luck with getting that appointment Helen, will have everything crossed for you.

I’ve WhatsApped you today.

Sending big hugs πŸ€— πŸ’•πŸŒΈπŸ‘πŸ‘πŸ‘πŸ‘xxx

Hello lovely dianne, thanx for this lovely message and your whatsapp one which ill enjoy listening to. Been wondering how you were and then by magic you pop up!!.

So glad you liked the lambs, they're so cute at this time of year. If only we had their energy!!.

Ive managed to get a gp appt for next weds to discuss this pain further and he said we'll decide a plan of action. Can't wait and im also hoping the gastro nurse will reply. She's had my email 8 days now but must be swamped!!.

I will enjoy listening to you and will let u know how weds goes. I do hope your infected wound is better.

TAKE CARE and BIG HUGS lovely. Keep safe. Xx🐏❀🐏🀞🐏❀🐏🀞🐏❀🐏❀

P.s, did you see that Rose and gio won a tv bafta for that beautiful dance last year?. Im so pleased cos they've done so much for the deaf community. X

Glad you’ve got an appointment Helen, if only we could get the help when we need it, I’m sure it must feel ages away when you’re suffering, I’m so sorry 😞 fingers crossed for you🀞Yes thank you, once the consultant took those two stitches out and with the antibiotics it really helped, still waiting for all the others to fall out 😬.

Yes Rose and Gio well deserved their award didn’t they, so pleased for themπŸ₯³πŸ‘.

Take care lovely, good luck, chat soon πŸ₯°πŸ’•πŸ‘πŸ’•πŸ‘xxx

Happy world lupus dayπŸ˜ŠπŸ€—πŸ€—πŸ€—

misty14 profile image
misty14 in reply to WaakyeGob3

Thank you. Xx

Ahh just look at all those bouncing lambs , so so cute πŸ‘πŸ‘ .

I’m so pleased that your foot injection has worked Misty and at last given you some peace. Sorry your getting gastro pain - really hope your appointment arrives soon xxx

misty14 profile image
misty14 in reply to svfarmer

Thanx so much svfarmer for your good wishes. So glad you loved the lambs. Hope your lupus day yesterday was a good one and your lovely 'furs' are looking after you. Not long till July now is it?. Coming fast now too!. Exciting!. πŸ˜€

Im hoping to get my gastro appt re-graded to urgent by my gp as ive got this awful pain. Speaking to him today!. 🀞

Have a lovely weekend and keep safe. Xx

svfarmer profile image
svfarmer in reply to misty14

πŸ€—πŸ€—β€οΈ

misty14 profile image
misty14 in reply to svfarmer

Ive got a gp appt next weds for help with this awful pain. Svfarmer. He said we'll come up with an action plan!!. Can't wait!!. Keep safe. Xx🀞❀🀞

svfarmer profile image
svfarmer in reply to misty14

πŸ€—πŸ€—πŸ€—β€οΈ

misty14 profile image
misty14 in reply to svfarmer

πŸ€—β€πŸ€—πŸΆβ€

Love the sweet spring lambs. They are so joyful. I am glad your foot is pain free. My break has healed which has given some relief. The bone deformities still cause discomfort , but if I don't put shoes on, I can keep the swelling down. Your gastro pain is such a concern. I hope you are able to get seen sooner. I will keep you in my thoughts. Thank you for the wonderful little lambs that brightened my day.

Healing hugs.

misty14 profile image
misty14 in reply to Pumpkin2009

Thanx pumpkin for your lovely message and good wishes. Im glad your foot has healed but those deformities still sound tough to deal with.

Good luck for your Rheumy appt. I hope it goes well. Your fingers did look like mine and i have Raynauds Phenomenon. Do ask your rheumy as they can diagnose and treat it.🀞

I spoke to my gp today and he wants to see me to talk about a plan of action for this pain . Ive got an appt for next weds to see him. Im fine if i don't eat and my liver readings have been high for a long time now so something's going on.

Always is i think with these illnesses.

So pleased you liked the lambs. They're a wonderful distraction.

🀞and sending thoughtwaves for your appt. Keep safe and well as possible too. XxπŸβ€πŸπŸ€žβ€πŸβ€πŸ™πŸβ€πŸπŸ€žβ€πŸ

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