I just wanted to share how well things have been going with you all!
You might remember I was struggling to find meds that worked for me. I've been on 100mg azathiropine now since about Feb without stopping it and I'm on 2.5mg steroids. I can honestly say it has made such a difference for me. Still in daily pain but it has improved and fatigue has as well. I've managed to make it through work with only 2 days off and I was averaging a lot more than that.
I actually have more of a life now! I've started a new relationship and have been able to manage weekend visits to Camden! I've also just submitted my 5th assignment to complete my first ever year with the open university. Which is something I have wanted to do for a while now! I've even enrolled for 2 modules starting in October. I've been a part of a few really call zoom calls to do with lupus and that has been amazing!
When I was first diagnosed nearly 8 years ago, I really thought I would have no life, I just did not see it being possible. It hasn't been easy at all. But I am truly grateful for this really good period I'm currently having. I hope it lasts but I know it may not. So I am making sure to pace myself and rest still!
Thank you to everyone on here who has been around since the start. Without all the help and support I received at the beginning of my journey I don't think I'd be where I am. You helped me to understand and see those good things can still happen despite having lupus.
I've got work tomorrow then I am off for May half term! So I'm looking forward to a trip to Clacton and just chilling out! Enjoy the bank holidays and jubilee next week everyone!
Written by
LouLamb
To view profiles and participate in discussions please or .
Really pleased things have improved for you .I am also pleased you are keeping things in perspective too. I hope it lasts and good luck with the new relationship 🤗 x
It is wonderful to hear how you have been able to make progress like this. You have been determined in every way - seeing out second opinions and trying to keep up your working life.
You will help many here who need hope when they feel discouraged by the pain, fatigue and so much else.
Im so happy for you LouLamb , everything is going well in every aspect of your life 😀😀. A friend of mine’s daughter is graduating this year with a degree from the open university, it was hard work but she’s got there.
Hi loulambIts so wonderful to read such a lovely inspiring post from you. Its great news you've found the right combo of meds and your having a life with lupus. Well done to get the steroids down to 2.5mg. Thats such a good achievement in its own right.
Enjoy the Half term break, you've earned it and keep us posted with all your doing. Its so inspiring. Keep safe .Xx
really good news Loulamb it makes a change to hear someone have good news best of luck with your university course enjoy a well deserved break in Clacton xxxx
Lou I remember reacting to your posts. Yes they have been challenging times and it’s great news that life has improved and so glad to hear positive thoughts. Wish you all the best for the future. Keep going girl!
LouLamb how you have changed since those early days, then passing your driving test. You have done so well. I don't come on here often now but I always look for your posts. Keep smiling and growing , you're brill
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
LDN success!
Full time student and Lupus: any tips?
Help please - just can’t get off steroids and flares return even more acute every time I try - is it steroid rebound?
Slowly getting better—it’s about time!
