Pain returned...: Hello, it's been awhile since I... - LUPUS UK

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Pain returned...

heatherose profile image
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Hello, it's been awhile since I posted as my lupus / RA has been calm for years. Fairly recently my little finger swelled, followed by aching shoulders, elbows and sore hands and wrists.

I have been on methotrexate for probably 8 years , and hydroxy for 25 years before that. Mthx felt like a wonderdrug. But now I'm worried about the next step if this combo has stopped working for me.

I would really appreciate any advice. Does physio work for anyone ?

Thank you so much for your time.

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heatherose
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Bobbydoodle profile image
Bobbydoodle

Hi I’m no expert as I’m still learning about my lupus and flares but I know it feels so disappointing when you have a flare after a relatively stable period.

Have you requested to see your specialist sooner? I recently rang the rheumatology depart of my specialist and spoke to a nurse and she has referred me to Occupational Therapy.. not sure how much it will help but I am willing to try.

Could you contact your rheumatology department and see if they can offer any check up referrals or support?

heatherose profile image
heatherose in reply to Bobbydoodle

Thank you so much for your supportive message 😁Yes, that's exactly it !! I thought I had found the answer to the pain, but its return is so disappointing. Yes, I have contacted the lupus nurse who was great , as always. I have done a blood test and she will ring me to talk about my results and discuss what to do next.

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