Hi friends, I’ve now been off work for 8 weeks with chronic extertional breathlessness, still no diagnosis. It started with the flu (not COVID) and never went away. Starting to wonder if this is becoming a permanent disability. I’ve been for tests and doctor’s appointments every week, sometimes every day. Most results so far are normal, except for low complement C4 (indicative of a lupus flare) and really strange arterial blood gas results which the specialist couldn’t explain. Had a repetitive nerve test last week with the neurologist which was mostly (?) normal, one result was inconclusive. Neuro said that while it is highly unlikely to be positive for myasthenia gravis, it was still possible, and he will refer me for further testing if I want…in the meantime, I’m lining up a cardiopulmonary exercise test, and awaiting results for blood serologies and a heart scan.
As much as I would like to ask the community here for answers, I realise no one here can tell me what’s going on for sure! So I guess I’m looking for a bit of cheering up (pics of furbabies welcome) but also if anyone can relate to becoming disabled after a virus. I’m worried about never being able to work again—I’m a counsellor but I can’t talk for more than a few minutes, or walk anywhere, without severe breathlessness. Can anyone else relate? How did you cope with the notion of losing your career? Thanks guys!