Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for February 2022

COVID-19 Treatments for Higher Risk Individuals - UPDATED 15/02/2022

Hi everyone, I have updated our website article about the COVID-19 treatments for those who are at higher risk for severe illness from COVID-19 infection....

Hi everyone, I have updated our website article about the COVID-19 treatments fo...

Paul_Howard

Partner•2 years ago

14 Replies

Lupus and trigeminal neuralgia

Hello everyone I haven’t posted in some time. Am really struggling atm and wondered if anyone could help? I have bad sle lupus which is quite well controlled...

Hello everyone I haven’t posted in some time. Am really struggling atm and wond...

Sarahjj87

•2 years ago

16 Replies

Volunteers are needed for a research study being conducted by a trainee psychologist at King's College, London

The study aims to explore stigma and other related experiences of people who live with chronic pain and aid in the understanding of how social factors affect...

The study aims to explore stigma and other related experiences of people who liv...

Alida_Bennett

Partner•2 years ago

12 Replies

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hydroxyc. and hypoglycaemia

Hi all I don't have lupus but do have Undifferntiated Inflammatory Arthritis and Raynauds and take hydroxychloroquine as I know lupus patients do and I have a...

Hi all I don't have lupus but do have Undifferntiated Inflammatory Arthritis and...

Brychni

•2 years ago

6 Replies

Valentine Wishes and Thanks

Wishing everyone a Happy Valentine's Day and a thank you for the caring, sharing, support and reminding me that no matter what, I am not alone. All the...

Wishing everyone a Happy Valentine's Day and a thank you for the caring, sharing...

Pumpkin2009

•2 years ago

13 Replies

Prednisone tips

I figured out that I have prednisone withdrawal symptoms that I though are flare up as symptoms are similar. I found this person online that explains very well...

I figured out that I have prednisone withdrawal symptoms that I though are flare...

Tanitani

•2 years ago

12 Replies

Newbie storytime

Hello there everyone 😁 I do hope you're staying safe and remaining blessed despite the hardship of the day. I'm new to here, but have been a ten year...

Hello there everyone 😁 I do hope you're staying safe and remaining blessed desp...

LottieLou96

•2 years ago

9 Replies

Help! Any ideas on good travel insurance companies in the UK that insure for Lupus?

I’m asking for any help that can be provided. We are not sure yet but we may like to go on a 14 day cruise to the Baltic areas. Obviously I need to declare the...

I’m asking for any help that can be provided. We are not sure yet but we may lik...

Bowenlady

•2 years ago

16 Replies

I didn’t want to be this different!

Hi lovely fellow Lupies, I hope you are all doing as well as can be. 🙏🏻 I’ve had a couple of months of not feeling great both physically and emotionally - my...

Hi lovely fellow Lupies, I hope you are all doing as well as can be. 🙏🏻 I’ve h...

Spotty-ewe

•2 years ago

106 Replies

Blood in urine for 3 wks but no infection- help.

Hello, I've had continuing blood in my urine for 3 wks but no sign of a UTI. Has anyone else had this problem? I've also had abnormal kidney+liver blood test...

Hello, I've had continuing blood in my urine for 3 wks but no sign of a UTI. Has...

Whitemagnum

•2 years ago

5 Replies

Newbie!

Hi everyone, I have had skin biopsy and been told I have cutaneous lupus. Its on my chest and seem to still be active - its covering about four times the area...

Hi everyone, I have had skin biopsy and been told I have cutaneous lupus. Its on...

girlinatent

•2 years ago

16 Replies

Is Marine Collagen a good idea? Is it helpful?

Hi, having MCTD with Lupus and RA, now quite bad arthritis too. My MCTD etc is well managed on the Mtx and Hydroxichloroquin. I have thought of taking Marine...

Hi, having MCTD with Lupus and RA, now quite bad arthritis too. My MCTD etc is w...

Taweet

•2 years ago

9 Replies

“Easy-BILAG: the new tool to record lupus disease activity”

https://www.rheumatology.org.uk/news/details/Easy-BILAG-the-new-tool-to-record-lupus-disease-activity Hello. Me again. This looks interesting.... will have a...

https://www.rheumatology.org.uk/news/details/Easy-BILAG-the-new-tool-to-record-l...

DJK99

•2 years ago

6 Replies

“Is ending the last Covid rule 'brave or stupid'?”

https://www.bbc.co.uk/news/health-60324928 Er....... Hi everyone.. I hope you are all doing as ok as possible. So. Couldn’t believe it what I saw when this...

https://www.bbc.co.uk/news/health-60324928 Er....... Hi everyone.. I hope you a...

DJK99

•2 years ago

46 Replies

NEW HealthUnlocked community research paper published

LUPUS UK is delighted to announce that a new research paper produced collaboratively with this online community has now been published. The paper "Will ‘the...

LUPUS UK is delighted to announce that a new research paper produced collaborati...

Chanpreet_Walia

LUPUS UK•2 years ago

2 Replies

Lupus and 4th Vaccine

Hiya Everyone I have Lupus SLE I posted about getting a 4th vaccine letter in the post. Now my doctor has told me I need to get the 4th. I am in two minds...

Hiya Everyone I have Lupus SLE I posted about getting a 4th vaccine letter in ...

Turquoise1999

•2 years ago

27 Replies

Anyone have experience of white brain matter changes?

What does this mean?

F1zz

•2 years ago

12 Replies

Covid and Lupus

Hello I recently had Covid, I have SLE Lupus and fibromyalgia, I feel extremely tired and all my usual pains are getting stronger and more often. Does anyone...

Hello I recently had Covid, I have SLE Lupus and fibromyalgia, I feel extremely ...

Da_vinci

•2 years ago

9 Replies

Vitamin D & SLE - seeking participants for an online questionnaire as part of a BSc dissertation

From the author of the questionnaire: We are interested in finding out about your experience and knowledge about vitamin D through an online...

From the author of the questionnaire: We are interested in finding out about you...

Alida_Bennett

Partner•2 years ago

4 Replies

LUPUS UK WEST LONDON SUPPORT GROUP – NEW FOR 2022

Do you live in the West London area? Would you like to connect with other people affected by lupus near you? We are very fortunate to have a LUPUS UK member...

Do you live in the West London area? Would you like to connect with other peopl...

Alida_Bennett

Partner•2 years ago

Be the first to reply

Anemia and Different Blood Test Results Help

I have been taking iron for anemia for some time. My latest CBC had some different test results on it. I researched and they relate to different shapes of red...

I have been taking iron for anemia for some time. My latest CBC had some differe...

Pumpkin2009

•2 years ago

3 Replies

Any tips on coping with lively dog while unwell please?

Looking for advice please fellow lupus warriors 🙏 After a gap of 5 years I gave in to family pleading and got us another dog. She’s a lively Cockapoo and...

Looking for advice please fellow lupus warriors 🙏 After a gap of 5 years I gave...

Cathyan

•2 years ago

53 Replies

surveys

i can never take part in surveys about lupus because i have not been diagnosed with it. in 2006 I first went to my gp with a written list of symptoms and...

i can never take part in surveys about lupus because i have not been diagnosed w...

catblue1865

•2 years ago

1 Reply

Lion king

I think my sons dog has an identity crisis and thinks he’s a lion not a wee French bulldog ! Hope this raises a smile 😊

I think my sons dog has an identity crisis and thinks he’s a lion not a wee Fren...

Hidden

•2 years ago

20 Replies

Breast cancer and Lupus.

Not been on here for a while. Was diagnosed with breast cancer last November, so because of family history, I've had a mastectomy. I'm now due to have...

Not been on here for a while. Was diagnosed with breast cancer last November, s...

awareness75

•2 years ago

12 Replies

Beautiful

I saw this and thought of you all, many struggling, frustrated, anxious. I truly hope you get the joy of this little dormouse and he makes you smile today....

I saw this and thought of you all, many struggling, frustrated, anxious. I truly...

CecilyParsley

•2 years ago

43 Replies

Running trainers? Any suggestions?

I've recently returned to jogging after a hiatus of 4 years. I was diagnosed with lupus in 2020, but felt dreadful for several years before the diagnosis was...

I've recently returned to jogging after a hiatus of 4 years. I was diagnosed wit...

Ophelia1

•2 years ago

14 Replies

Anemia and Red Blood Shapes Results - Do They Mean Anything

Hi! I have had anemia for some time and take iron pills that keep what the doctors call stable anemia. My recent blood work had these other results that I have...

Hi! I have had anemia for some time and take iron pills that keep what the docto...

Pumpkin2009

•2 years ago

Be the first to reply

Any ideas why feet change colour ?

Hi lovely people Hope you’re managing to stay warm today . Would appreciate any thoughts on funny feet and what could cause them to be white / red / blueish...

Hi lovely people Hope you’re managing to stay warm today . Would appreciate an...

Tiggywoos

•2 years ago

12 Replies

Are you currently experiencing issues around treatment and/or appointments in Northern Ireland?

Scleroderma & Raynaud’s UK have contacted us in relation to concerns which have been raised by their members regarding various challenges with care in Northern...

Scleroderma & Raynaud’s UK have contacted us in relation to concerns which have ...

Alida_Bennett

Partner•2 years ago

Be the first to reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2022

COVID-19 Treatments for Higher Risk Individuals - UPDATED 15/02/2022

Lupus and trigeminal neuralgia

Volunteers are needed for a research study being conducted by a trainee psychologist at King's College, London

hydroxyc. and hypoglycaemia

Valentine Wishes and Thanks

Prednisone tips

Newbie storytime

Help! Any ideas on good travel insurance companies in the UK that insure for Lupus?

I didn’t want to be this different!

Blood in urine for 3 wks but no infection- help.

Newbie!

Is Marine Collagen a good idea? Is it helpful?

“Easy-BILAG: the new tool to record lupus disease activity”

“Is ending the last Covid rule 'brave or stupid'?”

NEW HealthUnlocked community research paper published

Lupus and 4th Vaccine

Anyone have experience of white brain matter changes?

Covid and Lupus

Vitamin D & SLE - seeking participants for an online questionnaire as part of a BSc dissertation

LUPUS UK WEST LONDON SUPPORT GROUP – NEW FOR 2022

Anemia and Different Blood Test Results Help

Any tips on coping with lively dog while unwell please?

surveys

Lion king

Breast cancer and Lupus.

Beautiful

Running trainers? Any suggestions?

Anemia and Red Blood Shapes Results - Do They Mean Anything

Any ideas why feet change colour ?

Are you currently experiencing issues around treatment and/or appointments in Northern Ireland?

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