An Unusual Wedding Guest: Hello everyone Its 'cutie... - LUPUS UK

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An Unusual Wedding Guest

misty14 profile image
90 Replies

Hello everyone

Its 'cutie pic ' time again, the fortnight went fast didnt it?.

Ive chosen this fun one as this couple are vets and they met on a tortoise survey. So , they decided to give their pet tortoise the role of ring bearer at their wedding. They enticed him down the aisle with strawberries, his favourite treat.

I think its lovely and i hope it gives you some smiles in this tough month. 😀

Hope your all as well as possible. Keep safe.

MistyX

P.s. foot update, i saw my pain consultant yrsterday and she's confirmed i have a neuroma. She's willing to do another steroid injection in a months time and is writing to the foot surgeon . Rheumy's have okayed my mtx dose going up to 17.5mg to help with my steroid reductions. So, im getting lots of help which is a big relief. Thanx everyone for your lovely wishes. X

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misty14
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90 Replies
GloomyEeyore profile image
GloomyEeyore

Gorgeous pic. What an unusual but lovely ring bearer. I imagine it was a rather slow walk down the aisle!

I’m glad that you have been given a diagnosis and are getting the help you need. It is great when doctors work together and a treatment plan is put in place. Xx 🐢 💒 👰🏻‍♀️ 🤵🏼‍♂️ 💍

misty14 profile image
misty14 in reply to GloomyEeyore

I agree GE , it must have been snail's pace down the aisle but wonderful to watch.

I'm very fortunate all my consultants are working together to help me at the mo. I didn't mention Gastro tests too. It's taken years and a lot of suffering to get to this level of care. I'm reaping the reward of having all consultants under one roof!.

Any news of your Rheumy appt ge and how is your neice?. I do hope she is better now.

Keep safe and well. Xx🐢💕🐢

GloomyEeyore profile image
GloomyEeyore in reply to misty14

Still no news of my Rheumy appointment. I’m guessing there is a backlog.

Pleased to say my niece is fine now. Got her sense of smell back last week and her taste a couple of days ago. Her Uncle gave her a can of coke and she could taste it! Now her old self with the appetite too! Xx 🐢🐢

misty14 profile image
misty14 in reply to GloomyEeyore

Thats wonderful news about your niece's recovery ge. I bet she is enjoying everything she eats now and eating lots!. We take our senses so for granted😀.

Not so great about your rheumy appt. I bet they are way behind, trying to catch up. Always worth a phone call to chase it up, specially if your suffering.

Good luck in this storm and keep safe. Xx🐢❤🐢🤞❤🐢❤🤞🐢❤

Is it an ETERNITY ring 😂😂

misty14 profile image
misty14 in reply to

Hope so stills for the couple. Xx😀🐢❤

KayHimm profile image
KayHimm

That’s a great moral booster! 😀

misty14 profile image
misty14 in reply to KayHimm

The pic or steroid injection kay🧏‍♀️?

svfarmer profile image
svfarmer

Hi Misty just love this pic of the tortoise, how sweet- both Bea & Mira are going to be ring bearers at our wedding in July .

I had to look up neuroma as didn’t know what it was but sounds painful , at least you now know what it is and have a treatment plan . Sending big hugs and lots of love 🤗💕

misty14 profile image
misty14 in reply to svfarmer

Thats wonderful news svfarmer that Bea and Mira will be ringbearers at your wedding!. Thats why i wanted you to see this pic. I do hope you will share photos of your big day. They will look gorgeous im sure. How's the fitness going?.

Having a diagnosis and treatment plan makes such a difference. Im looking forward to the 15th and the steroid injection as it is painful.

Having 4th booster next week and then its reduce steroids again. No rest for the wicked!!. 😀

Have a lovely weekend and keep safe. Xx

svfarmer profile image
svfarmer in reply to misty14

Yes I will certainly share some photos of our wedding, my fitness has come to a standstill - I did some lunges last week with my kettlebells and have been in agony ever since, I’ve had to rest it up last 2 days as been so painful .

Have a lovely weekend too xx

Spotty-ewe profile image
Spotty-ewe in reply to svfarmer

Looking forward to seeing your photos in July SV. 🥰 In the meantime take good care with the fitness. Kettlebells are VERY heavy so might be worth starting with just doing the exercises without weights. 🤷🏼‍♀️ I sometimes put on my favourite music and just dance/exercise to that. Not sure that it helps that much but it is fun. 😉 I also do planks as I feel I’m only using my own body weight and there’s plenty of that! 🤣 Rest up now and take it VERY slowly when you start again. It is too easy to hurt our stiff in-elastic Lupy muscles and sinews. Love and hugs 🤗😘💖

misty14 profile image
misty14 in reply to svfarmer

I will look forward to seeing those svfarmer. Do take care with exercising as its easy to do too much as you've found. Do hope pain settles soon. Hope storm eunice hasnt bothered you all too much. Been very stormy here. Xx🐢❤🐢

Pumpkin2009 profile image
Pumpkin2009 in reply to svfarmer

Bea and Mira will be perfect and so cute! Can't wait for pictures of your special day.

Healing hugs.

cuttysark profile image
cuttysark

Dear Misty, This is one of your best Cuties!!!! So adorable!!!

So sorry you now have a neuroma to contend with too but glad they will inject it soon. You have an awful lot on your plate just now!

Will catch up very soon.xx

misty14 profile image
misty14 in reply to cuttysark

Thanx so much Cutty for your lovely reply. So glad you liked the pic. My pain consultant was horrified at all I've got going on and was so willing to help. I've also added Gastro tests now too.

I do hope your feeling better dear Cutty. Will look forward to your email but NO RUSH. Have a safe weekend. Xx💕👍💕

weathervane profile image
weathervane

Hi misty 😊 , i love this story, it came up on my Twitter, very unusual ring bearer 🤩.So pleased to hear things are finally moving forward for you , i hope the change in meds help .

I hope you don’t get hit badly by this next storm , i do not like the wind 😕. It has been calm here today but high winds and rain expected tomorrow, i think it will a day to wrap up with a cuppa and a good book .

Take care and stay safe xxx🤗🤗🥰🌸🌸

misty14 profile image
misty14 in reply to weathervane

Thanx weathervane for your lovely message. Hope you've been feeling better after your retuximab.

I didnt include im having gastro tests too and having the 4th booster next week. Have you had yours?. It will be great to get more pain relief in march. Not long.

Its been tough today with storm eunice and several power cuts but not too much damage so i hope you stay storm free over the weekend. Its very unsettling isnt it the wind?.

Did you see that Bruno tonioli has been sacked from Strictly and Anton made his permanent replacement?.

Also Amy Dowden may be going to do a dance program so that will be lovely. Am missing it. Are you too?.

Good idea to curl up with a good book this weekend. Keep safe and well. Xx🐢❤🐢🤞❤🐢❤🤞❤🐢❤🤞❤🐢❤🤞

weathervane profile image
weathervane in reply to misty14

Thanks for your lovely reply misty🤗You are certainly keeping busy with all your appointments, it must be exhausting for you !!!

I have 2nd rituximab next week then i have to wait 8 weeks to have my booster. I only got the letter about it 4 weeks ago so I couldn’t have it before hand .

The storm hasn’t been too bad here compared to other places , i do hate the wind , i find it a bit unsettling.

Some of the photos and videos are awful , did you see the one of the church spire blown off in Wells !!!

I didn’t see the updates about strictly, though im not surprised as the journey back and forth to USA would be tough . Looking forward to strictly again but it does mean another year is nearly gone , time passes too quickly 😕.

Take care, i hope all goes well with your tests , stay safe xxx🙏🏼🙏🏼🥰😊❤️❤️

misty14 profile image
misty14 in reply to weathervane

Good luck weathervane for your 2nd retuximab next week. Hope it goes well and glad you can have your booster later.

It is all very exhausting, have to be 'fit to be ill' its so neverending. Im not sure how ill get on really but have to try. I did get the go ahead this week for mtx to be increased to help.

I did see the 'spire' come off and what about that tree in Bude just being uprooted. We know where it is as its in the centre and shops are all around it in a circle. Must have hit the shops coming down.

🤞this weekend your storm free and we're going to be calmer too. Thanx for your lovely wishes. Take care too and keep safe. Xx🐢❤🐢🤞🐢❤🐢

weathervane profile image
weathervane in reply to misty14

I saw the video of the tree !!! If it fell the other way it could have hit a tree , really scary!!Take care 😘 xxx

misty14 profile image
misty14 in reply to weathervane

I saw it again and it must have hit a shop too, they're all around the tree in a Square. I've sat near where it used to be. The tree has been a landmark there in Bude for years but not anymore!. Have you been ok today weathervane in any storm?. Take care too and Be Safe. Xx

weathervane profile image
weathervane in reply to misty14

It was a blessing that no one was hurt !!We were not to bad here , though we did have snow last night and this morning- disappeared by lunch time. We have another storm tomorrow but its not a name one 😕

Look after yourself and have a good week 🤗🤗🤗xxxx

misty14 profile image
misty14 in reply to weathervane

How have you been in this other storm weathervane?. Its really hit Ireland i saw on the news. We've been back to stormy winds but no rain or damage luckily.

Im having a quieter week for appt's this week. Just 4th booster on fri. Im going to enjoy the rest as so tired.

Take care too this week and keep safe . Not sure about all the restrictions easing after today. Will still be masked as we think its too soon. Good psychologically though!. Xx

weathervane profile image
weathervane in reply to misty14

Thanks for checking up on us misty🤗! We are all fine here , I couldn’t sleep with the noise of the wind but no damage . There were alot of trees down across the country and flooding , hope weather calms down . Good you got through it safely.

I hope you get on well on Friday with the booster, rest up over the weekend.

I’ve ordered FFP2 masks on amazon, up to now I’ve been wearing the surgical disposable ones . I feel very nervous about restrictions being lifted, I feel like going into lockdown again!!

Take care and stay safe 🤗🤗🥰❤️🌸

misty14 profile image
misty14 in reply to weathervane

Glad weathervane you've come thru the storm ok. Last thing we all needed to cope with. Hopefully we'll have more settled weather now.

I feel very nervous like you about restrictions easing so much. Its really too early so good idea to buy those better masks. Ill see what my parents think about them. I could go into locldown too and probably will after that jab!!. Haha!!.

Thanx for your good wishes and i hope you have a safe week yourselves and weekend ready for your 2nd infusion. 'Cutie pics' will pop up again next week and its a pic you'll specially like.

TAKE CARE and KEEP SAFEXx

weathervane profile image
weathervane in reply to misty14

Looking forward to your next wee cutie pic 🥰, they always put a smile on everyones face 😊😊. Take care and good luck for Friday 🙏🏼🙏🏼🤗🤗😘🐱🦉🦔xxx

misty14 profile image
misty14 in reply to weathervane

Thanx so much weathervane. Take care and keep safe too. Xx🐢❤🐢🤞

Vixen2 profile image
Vixen2

Hi Misty. I’m listening to the wind building up. (Not me! Eunice!!!!) Feeling a bit nervous. I wouldn’t go out at all today. But i have RA & iritis. Having a flare up in both eyes. Ran out of my steroid eye drops. So i’m going to have to go out later, to get my prescription. That pic really cheered me up. All 3 looked beautiful. The lovely ‘tortie’ was even smiling! The power of strawberries!

Glad you’re getting help too. X

Spotty-ewe profile image
Spotty-ewe in reply to Vixen2

Storms are really horrible Vixen and frightening but I’m glad the wind belongs to Eunice and not you! 🤣 Take care and I hope you come through the storm unscathed. 🙏

Vixen2 profile image
Vixen2 in reply to Spotty-ewe

Hi Spotty. I know. I’m getting really nervous. One of my bedroom windows is a bit loose. The handle & there’s a bit of a gap under it. It’s really rattling. Eunice is only warming up!! It makes you feel so vulnerable when mother nature shows her power!! I’m very nervous that if i have to leave my flat, i don’t have a carrier for my lovely hamster Eric. I could never leave him alone in my flat!! So i might move him to my hall & shut all the doors. Good luck to you too x

Spotty-ewe profile image
Spotty-ewe in reply to Vixen2

Sorry to hear about the rattling window. I wouldn’t know what to suggest. I did see in a hurricane warning in the States people putting thick duct tape or parcel tape right across the windows to hold them together. You’d then need meths to remove the sticky residue of the tape though.🤔 But putting your lovely hamster in the hall with all the doors shut sounds a good idea until the storm is over. 👍🏻👍🏻 Good luck Vixen. Thinking of you. 🙏

Vixen2 profile image
Vixen2 in reply to Spotty-ewe

Thank you Spotty. You’re really sweet! X

Vixen2 profile image
Vixen2 in reply to Spotty-ewe

Eric update. He has a massive cage. So it took all my strength to move him to my bathroom. There are no windows in there. I feel like camping out with him!!!! X

Spotty-ewe profile image
Spotty-ewe in reply to Vixen2

Sounds like a good plan Vixen! Camping with wee Eric until the storm passes could even be fun. 😃 🐹💕xx

Vixen2 profile image
Vixen2 in reply to Spotty-ewe

Yes. Thank God for technology!!! I can put my cordless headphones on. Listen to my music & try & forget about eunice!!Ps.

My neighbour has a lovely dog called STORM!!! I can hear him barking now. Stay safe Spotty!!! X

Spotty-ewe profile image
Spotty-ewe in reply to Vixen2

Is that one Storm trying to outdo the other noise-wise?🤣 Cordless headphones sound ideal. 👍🏻👍🏻 Wishing you and Eric a safe and enjoyable weekend. Xxx

Vixen2 profile image
Vixen2 in reply to Spotty-ewe

Hey Spotty. Thank God my window didn’t ‘blow’. I half did what you said. I put some tape. (Not duct tape). My mum was a nurse. So i only had surgical tape!!!! & a big piece of cardboard infront of the window. I doubt it would have really helped. But it made me feel a bit better.Those poor people that died yesterday. A tree fell on one poor woman. What a way to go. I always think of this sad case. A woman was an accountant, working in the city. She was on her lunchbreak, eating a banana. When all of a sudden. A big gust of wind knocked a massive sheet of glass over her. Some workmen hadn’t been careful enough. The poor woman died. She was eating a banana at the time. Then her life ended! Freak accidents are scary. Hope Eunice left you alone. Have a nice weekend. X

Spotty-ewe profile image
Spotty-ewe in reply to Vixen2

Hi Vixen, I think what you did with the window will have helped.👏🏻 And it was good it made you feel a bit better too.👍🏻 Yes I heard about the poor woman who had the tree fall on her. Tragic. We stayed in all day to keep safe and we were very lucky to only have the edge of the storm hit us so nowhere near as fierce as you poor folk down south. Storms terrify me because I’ve seen the damage they can do having grown up in Australia (Qld) where we had cyclones every January. On one occasion a sheet of corrugated iron was carried by the wind with such force that it cut a cow in half. That news item has stayed with me all my life and when I saw sheets of corrugated iron lift on the barns of the dairy farm next to us a few years ago during a storm it brought it straight back to me again. 😩 Absolutely best to stay indoors if at all possible on such days. Glad you and Eric are okay.👍🏻👍🏻 Don’t tell me - did he sleep right through it?🤣🤣 Our forecast says we have gales coming this way later today with up to 70 mph winds, so not quite over yet. Anyway, you relax now and have a great weekend Vixen. 🤗😘xx

Vixen2 profile image
Vixen2 in reply to Spotty-ewe

Hey Spotty. Bloody hell. That poor cow. Not the woman with the tree! I would never forget about cyclones either, if i heard of that happening. I’m glad i’m a Londoner. I couldn’t handle weather like Eunice on a regular basis. In India of course. They have the monsoon season. So they’re used to extreme weather. In this country. If a leaf falls on the track. All trains are cancelled! We Brits must look a bit whimpy.Yes. Eric slept right through Eunice. He’s lucky. He gets free food & accommodation!! Anyway. Good luck with Eunice’s ‘left overs’. Stay safe. Xx

Spotty-ewe profile image
Spotty-ewe in reply to Vixen2

Haha, yes we Brits can appear a bit whimpy I suppose, but looks can be deceptive. 😉 Thanks for your good wishes Vixen and I hope you and Eric stay safe in every possible way too. 🙏🏻 xxx

Vixen2 profile image
Vixen2 in reply to Spotty-ewe

Thanks Spotty. It’s Saturday night. I’d usually be up for a boozer & a few 🍷🍷. But seeing as the weather’s crap. I don’t mind staying in the warmth. Have a warm, safe weekend. X

Spotty-ewe profile image
Spotty-ewe in reply to Vixen2

Hoping you are enjoying your Saturday night. I can’t drink due to certain meds I’m on but I’ll raise a glass of orange and tonic to you and Eric! Have a lovely warm evening and a great Sunday. 🤗xx

Vixen2 profile image
Vixen2 in reply to Spotty-ewe

Hey Spotty. I’ve got a friend round. We’re glugging on some vino. I love gangster films & comedies. We’re busy oggling Ray Liotta in Goodfellas. He was beautiful in that film. Not now. He’s all bo toxed & plastic now. Then we might lust after Aiden in Sex & the City. Very sexy man. He’s married to Bo Derek. She’s a few yrs older than him. (Good for her!) Cheers. 🍷🍺x

Spotty-ewe profile image
Spotty-ewe in reply to Vixen2

Sounds like you had a great evening. 👍🏻👍🏻 Take care. 🤗x

misty14 profile image
misty14 in reply to Vixen2

Hi vixen, thanx for your lovely reply. The wind is a little less now and we lost our power for a time but its back on now. Do take care if ypu do go out, i find storms really scary too. Hope you sorted your hamster out, bet he was scared too. Could ypu ask someone to go for you?.

So sorry your out of your steroid eye drops, always the one we need the most isnt it?. Sorry too your eyes are bad.

TAKE CARE and i hope we have a calmer weekend. Xx🐢❤🐢🤞🐢❤🐢🤞🐢❤

Vixen2 profile image
Vixen2 in reply to misty14

Hi Misty. Glad your power’s back on. My Eric has a lovely, private, secure little igloo bed. I got his massive cage on the floor. Knocked it a bit & dragged it along the floor. I thought he would poke his head out. But no. He’s a deep sleeper!!! He doesn’t even know i’ve moved him. I’m worried about the birds. Eventhough i live in Central London. There are loads round here. Tiny sparrows hang out in some ivy that’s growing over the school fence. Plus we have loads of pigeons, blackbirds & crows. The seagulls are used to extreme weather! I am nervous. I live on the 4th floor, which is the highest floor of my building. So i’m feeling it more than people lower down. My partner & i don’t live together. He’s mad. He’s gone out for a walk. He says it’s just windy. He’s just sent me a video of a tree that’s been uprooted. Because i’m higher up. I’m feeling it more in my flat. Glad i don’t live in a tower block! Stay safe! X

misty14 profile image
misty14 in reply to Vixen2

Sorry vixen for taking a while to reply. Ive had the best response yet to the tortoise so a lot of lovely messages to reply to.

Eric sounds like he's made all snuggled up in his cozy igloo. Wonderful he slept thru it. Hope you've been ok, can so understand your worries being on the 4th floor of flats. Thank goodness no higher in a tower block but scary all the same. Its blowing strongly again here today and it shouldnt have been. Its making me feel very unsettled. Yesterday was much better.

Hope you stayed in and keep safe with Eric. Xx🐢❤🐢🤞🐢❤🐢🤞

Vixen2 profile image
Vixen2 in reply to misty14

Hey Misty. Thanks for replying. Yes. Eric’s a very lucky boy. He never has to deal with anything outside my 4 walls. Food & bedding & shelter come to him. But he’s such a sweet tempered beautiful boy. I don’t mind. Other hamsters i’ve had have been quite ‘bitey’. I’ve read female hamsters are more moody & agressive!!! The males are more docile. (Want a quiet life). Thank God Eunice was kind to my windows. I was very nervous. But i’ve just found some great meditation guides on utube. Very good. Wish i’d had them when Eunice was here. Great with earphones. Maybe they would help you today. There are loads. Good luck x

misty14 profile image
misty14 in reply to Vixen2

Hope its quieter for you now vixen after a busy, noisy weekend and second storm!!. Hope your windows survived. I can really understand you being so scared. Hope Eric is tucked up, didnt know the females are more of a problem than the males!!.

I do meditation and have done for many years. Its helped me thru difficult times with the medics so im glad you've found it. I wouldnt be without it now!!.

Keep safe and sound . Xx

Vixen2 profile image
Vixen2 in reply to misty14

Hey Misty. I’ve had a quiet weekend. (Glad it was safe!) I’ve just come back from getting a haircut. I have a lovely hairdresser. She has a lovely kind manner. I tell her all my health stuff. She’s like a therapist. I have to take the bus to see her. But my joints feel ok at the mo. So i walked home. Felt fantastic. Was so windy. But i felt so good that i pushed myself to walk. Feeling sore now. So i’m in bed with a snack, a cuppa & watching the vicar of dibley on my tablet! Comedy is great therapy!!! X

misty14 profile image
misty14 in reply to Vixen2

Its such a boost to get a haircut vixen. Well done for going out and walking to her. Glad you've got a lovely one. Mine, comes to my home and we have a great chat. Known her for years.

🤞thats the worst of the storms done now. Have a lovely rest of the week, Do agree about comedy, its such a tonic helping us thru. Keep watching out for more 'cutie pics'. Keep safe and well. Xx❤🐢❤

Vixen2 profile image
Vixen2 in reply to misty14

Thanks Misty. They should give haircut discounts on the NHS. BECAUSE WE’RE WORTH IT!!! X

misty14 profile image
misty14 in reply to Vixen2

DEFINITELY. Vixen.Xx🤗👍❤

CecilyParsley profile image
CecilyParsley

I love it Misty. What an amazing wedding guest. I would have had my cocker spaniel Crockett as my ring bearer, although he would have piddled on every pew as he went down the aisle lol but sadly he passed in the May and we got married in the July.I am so delighted to hear that you are at ladt getting the help you have needed for so long. My lovely carer Rosemary had a Mortens Neuroma on her foot and the steroid injections really helped her. Xxx

Spotty-ewe profile image
Spotty-ewe in reply to CecilyParsley

I’ve been thinking of you Cecily and the fact you are in the red warning area of Eunice. I hope all is well and you escape any power cuts or the like. Hugs 🤗😘xx

CecilyParsley profile image
CecilyParsley in reply to Spotty-ewe

We are now being hit. It is ferocious, two of my neighbours fences are in bits. The noise is dreadful so tv up, heating on and hope we get through unscathed and that no one gets hurt xxx

Spotty-ewe profile image
Spotty-ewe in reply to CecilyParsley

Sounds awful and reminiscent of when I lived on the islands off west Scotland. Good idea to have the TV up high 🤣 I hope everybody keeps safe. 🙏🏻xxx

CecilyParsley profile image
CecilyParsley in reply to Spotty-ewe

Thank you lovely xxx

misty14 profile image
misty14 in reply to CecilyParsley

TAKE CARE, cecily. Xx

CecilyParsley profile image
CecilyParsley in reply to misty14

I am not putting my nose outdoors lol. Thank you Misty xxx

misty14 profile image
misty14 in reply to CecilyParsley

Thanx so much cecily for your lovely message. That gives me such heart about the steroid injection. This is my 2nd to hopefully avoid the op.

Im so very sorry at how you were treated by that gp. It was shocking and uncalled for so well done for filing a complaint. All the very best for when you see the Orthapod next week!!. I just hope he doesnt treat you similarly as you need help to break the awful cycle your in!!.

Keeping my 🤞 for you and will think of you. TAKE CARE and keep safe. I see storm eunice has devastated wales on its way.Xx🐢❤🐢🤞❤🐢❤🤞🐢❤🐢🤞

CecilyParsley profile image
CecilyParsley in reply to misty14

Thank you Misty. If it is my usual Orthopaedic Surgeon he is a true gent and would not dream of being so unprofessional. I had heard he retired but now he is back so I truly hope I see him. Yes Eunice ( My Nan’s name lol) was fierce but we are ok. She has passed now but it has just started to snow. Crazy weather . Take care lovely xxx

misty14 profile image
misty14 in reply to CecilyParsley

I will keep my fingers firmly crossed and pray cecily that you see your fav orthapod!!. 🙏🤞. I think you've truly earned it for what you've been thru. Hope snow not too much. Its quieter here today thankfully!!.

Let me know how you get on. Xx🙏🤞

CecilyParsley profile image
CecilyParsley in reply to misty14

Thank you so much for your kindness and support. I am so grateful cxx

2013mayo profile image
2013mayo

Hi, Love the photo.

I too had a Morton’s neuroma and after trying steroid inj twice I had op to take it out, it’s very painful condition, I couldn’t walk it was so painful.

Hope you get sorted soon.

misty14 profile image
misty14 in reply to 2013mayo

Glad you have mayo. Im sorry you've also had a morton's neuroma. Its very painful isnt it?. Im trying a steroid injection for the second time like you did then if it doesnt settle its the operation!.

How did you get on with the op and what was the recovery like?. Must have been wonderful to walk pain free!!.

Hope you've not had storm eunice bothering you. Keep safe. Xx🐢❤🐢

2013mayo profile image
2013mayo in reply to misty14

Hi, Sorry had power cut, couldn’t answer.

Yes op was very painful but worth it to get rid of pain. Absolutely fine now.

Hope you get on fine with it.

Xx💐

misty14 profile image
misty14 in reply to 2013mayo

Sorry for delay mayo, had power cuts too. Don't we rely on these things. Im sorry op was very painful but so glad it was worth it in the end. How long did recovery take if you don't mind my asking.?.

Its blowing a gale here again. Yesterday much quieter, its so unsettling isnt it?. Keep safe Xx

2013mayo profile image
2013mayo in reply to misty14

Hi,We had another power cut about 10 mins after they put it back on, this time without power 12 hours, so all in all no power for 17-18 hours, terrible shock to the system for everyone.

Yes, re the Morton’s neuroma, I remember it was very painful but the recovery was very quick, can’t remember too much about it so it can’t have been that bad.

Hope all goes well for you.

Take care.

Spotty-ewe profile image
Spotty-ewe

Aww I love this ‘cutie’ Misty, so heart-warming.🥰 I wonder if they put the tortoise on roller skates like the one in the train travel advert on TV - the ring would have been at the altar in no time then! 🤣🤣 Sorry to hear about your neuroma but that is great news you are having so much help and I’m sure the steroid injection will make a huge difference to you. Take care Misty and I’m thinking of you being in the red warning area for Storm Eunice. 🤗😘xxx

misty14 profile image
misty14 in reply to Spotty-ewe

Thanx spotty for your lovely messages. We've had more power cuts but luckily not for long. Makes you realise though what we rely on and take for granted. Hopefully we'll have a quieter weekend and ill be thinking of you as you may get snow. It looked so awful up north.

Im very grateful at all the offers of help ive had from the hospital but am having to juggle a lot from each dept!!. I think its their recognition of this. Not long till the steroid injection luckily. Foot is very painful as she found the 'spot'. Ill be in touch soon. All the very best for the weekend. Keep safe, thinking of you. Xx🐢❤🐢🤞🐢❤🐢🤞❤🐢❤🤞❤🐢❤

Spotty-ewe profile image
Spotty-ewe in reply to misty14

Glad to hear the power cuts were only short.👍🏻👍🏻 Long ones are so awful with freezers defrosting, the house getting cold (except for rooms heated by a log burner, open fire or gas heater) etc. No snow here as yet but plenty further north and some forecast for here overnight.

I’m sorry your foot is so very painful 😫, but I hope it will improve quickly once you get your steroid injection. 🙏🏻

Wishing you a very peaceful and pleasant weekend, especially after all the drama of today. Take care lovely Misty. Thinking of you too. 💕🤗😘xx

StriatedCaracara profile image
StriatedCaracara

Hi Misty, nice picture and very, very original. 🐢So glad to hear you are getting more help, and now there is plan of action etc.

Hope you are keeping safe - and there is no danger from weather or flood your way. I think we must all be staying put today where possible. Just heard Isle of Wight recording wind speeds of 122 miles / hour at the moment. Take care everyone.

misty14 profile image
misty14 in reply to StriatedCaracara

Thanx striated for your lovely message. Its been a tough day thanx to storm eunice with power cuts and trees down but luckily nothing major for us. Hope you and your mum have been ok. Its such a worry for you being so responsible for her.

Im sorry you've been suffering recently just saw your post. I can't help with the symptoms as not experienced anything like it. I just hope hydroxy kicks in soon and starts to help. Keeping my 🤞for you.

Im so glad ive got a treatment plan and diagnosis for my foot. It helps us so much doesnt it?. Not long till steroid injection now which will give me relief.

Keep safe and as well as you can. Glad you liked the tortoise, something different. Take Care. Xx🐢❤🐢🤞🐢❤

Pumpkin2009 profile image
Pumpkin2009

So very glad to hear from you Misty. I love the whole romantic story and pic. I am happy that the doctors are working together and There are some answers on the foot. That is interesting also to me as you know I am still dealing with my foot issues. I have a neuroma with the hammertoe and bunion and of course, the fracture. My doctor explained at the last appt. that surgery would be difficult and since it has taken so long for the fracture to heal, would rather not go that route nor do I. Will just have to see how it goes. It still is swollen and have to make sure not to distress the hammertoe to keep from getting it infected again. Have you heard any more about the adrenal issues? That concerns me. What kind of gastro tests are you going to have? I have been referred to an immunologist for gastro and sinus problems as well as a hematologist for the anemia. My GP is thinking that iron infusions might be considered rather than pills. Not sure of any of this.

Again, love this picture and so glad you found it for us.

Healing and hopeful hugs.

misty14 profile image
misty14 in reply to Pumpkin2009

Hello dear pumpkinThanx for your lovely message and im so very sorry your foot problems are still so ongoing. We've got similar problems but i was lucky in that my fractures healed well and quickly despite my meds.

Are you still having to be in the special shoe to protect your hammer toe?. Ive got one on my other foot with a bunion like you and there painless at the mo!!. I do hope yours improve as you must be fed up with it.

Im sorry your being referred to so many specialists. It gets too much for us doesnt it?. My gastro tests are a stool test and a camera one. What gastro problems are you having. Its unusual to go to an immunologist for them unless its maybe allergic symptoms as you have sinus problems too!!.

Iron infusions can be better than tablets due to absorption but must be done under a specialist. It must seem overwhelming at the mo. Are you diagnosed yet or trying to be?.

Ive definitely got adrenal symptoms but must try to reduce the steroids in order to have this 2nd test. Steroids can affect the results apparently!. Im having my 4th booster next week and then must start reducing after that. Just not sure how ill be but luckily there' s an Endo nurse for advice and Rheumy's have agreed to mtx going up to help. I can ask their advice if needed too. Im grateful for all the hospital advice as do feel daunted at what ive got to do!!.

Do hope storm eunice didnt affect you or your furry friends. Its been an unsettling day for us today with power cuts etc.

Sending you lots of healing hugs too. Keep safe and take care. Xx🐢❤🐢🤞🐢❤🐢

Pumpkin2009 profile image
Pumpkin2009 in reply to misty14

Thank you Misty for your great response and insightful information. Rough weekend. The almost daily diarrhea with chills, headache, nausea, etc. is definitely getting me down. I had been to a gastro in the past and he wasn't very helpful - IBS which I feel is a catch phrase for we don't know. I had been tested 3 times for gluten, stool sample, colonoscopy and repeated stomach scopes and cat scan of the stomach. I have had stomach inflammation show up since my lupus dx. I do not want anymore scopes. After getting Covid in Nov. 2020, the intestinal and sinus symptoms have gotten way worse. That is why my GP has referred me to an immunologist. The symptoms can fit histamine intolerance, but then there is the crazy lupus factor. Then the stupid foot. The swelling is a little bit better at times. Hope that means something good. I have had chronic anemia iron deficiency and abnormal red blood cells for a few years so the GP thinks it might be a good idea to consult a hematologist. Sorry for rambling on. Just feeling so worn out right now. I know you are also going through so much. At times it just gets overwhelming and I can't help worrying about your adrenaline symptoms.

Many healing hugs.

misty14 profile image
misty14 in reply to Pumpkin2009

Dear pumpkin, so sorry your really going thru it with your intestinal symptoms which are so bad daily. You can't go on like this as it can make you feel so poorly.

IBS is regarded as a condition of its own. Its a case of ruling out others like inflammatory bowel and if all clear then they say its IBS which can be triggered by stress. You've had so much to deal with since your lupus and covid diagnoses!!. Covid would upset your gut again as its an infection.

Are you losing weight, have you had any blood?. These are red flag symptoms for further investigation like a scope test as things can change. Ive got colitis and im having repeated scopes and a stool test to check for inflammation on top of everything else.

If you still answer no to the above then your gp could help you with your bowel by prescribing drugs like buscopan or mebeverine which can help with any pain by smoothing it along better. Also , there is the Fodmap diet where ypu cut out wheat, lactose and fructose to see if your intolerant to them but it has to be done under medical supervision and only for 6 weeks as its a strict diet. Google it for info. Have you tried any of these?. Also don't eat fibre if you've got diorrhea as it helps to fuel it.

I also have red cells that get bigger. What do yours do?. Its a good idea to get a haemotologist's help with yours and an immunologist to help with the more unusual condotions that you might have.

Hope some of that is helpful dear pumpkin , i come with 35 years of ill health experience so glad to help. please don't worry about me or even think about me as you must think of yourself and cut down on stress as much as you can.

TAKE CARE . Sending healing hugs to you. Xx🐢❤🐢🤞❤🐢❤🤞❤🐢

ExtremeDuvetDaze profile image
ExtremeDuvetDaze

What a lovely story Helen, I wonder how long it took him to get down the isle 🥰 I had a tortoise when I was little, my parents got him at a reduced price because he had a crooked mouth, but he was lovely as he looked like he was permanently smiling 😁 🐢 we named him Shelley😆.I’m so glad you’re able to have another steroid injection and hopefully it will last a lot longer than the last, it’s good you’re getting lots of help, that’s how it should be!

I’ll do a longer message soon, I’ve had a bad week with neuralgia in my back which has been excruciating and costochondritis along with a cold so coughing isn’t a good thing with rib pain 😬, 50mg Lyrica twice a day has helped but zonked me out and I’ve been to the surgery this morning for a depo injection to try and get in top of this flare. So I’ll be sure to catch up again soon.

I hope you’ve been ok in this storm, our back wall has been blown down and smashed the garden table, it’s still quite bad here.

Take care my lovely, am thinking of you.

🥰💕💨🔆😘xxxx

misty14 profile image
misty14 in reply to ExtremeDuvetDaze

Thank you dianne for your great mesdage. Glad the pic brought back wonderful memories of your tortoise Shelley. They are amazing creatures aren't they?. .lovely she had a permanent smile.Im really sorry i havent looked at your lovely Whats app message yet. I will over the weekend.

Im so very sorry at how much your suffering . Costochronditis and a cold on top of neuralgia in back is no fun at all. I hope your injection helps the flare. Ive been meaning to say that my rheumy appt is due in may. How about yours?. Hope its soon. Lyrica is a strong drug so no wonder your zonked. I hope its helped the pain.

I did manage to get the rheumy to agree to mtx increasing to 17.5mg as im just not sure how ill be after 4th booster next week and reducing steroids. Just dread it but am very grateful at all the help ive been offered. Rheumy nurse said i could phone anytime.

Its been tough today with storm eunice. How about for you. ?. We've had power cuts and trees down near us thankfully garden ok.

Rest up this weekend lovely and i hope you feel better soon. Thinking of you and ill be in touch. Keep safe. Xx🐢❤🐢🤞

ExtremeDuvetDaze profile image
ExtremeDuvetDaze in reply to misty14

Thank you 🙏 I do hope you’ll be ok after your 4th booster Helen, I know you’re worried, it’s hard having something that can make you feel so rough even if we know it’s for our own good, let’s hope that this one will be better than the others 🙏 I’m glad that you can increase the MTX to try and compensate for the steroid reduction. There’s been no talk/reassurance of how long the boosters give you full protection for, it’s been nearly 5 months since I had mine thinking I would be protected when I go for my op now I don’t really know or when we’ll be eligible for another booster.

As for the storm it was pretty rough here and a little scary at times, it blew our garden wall down and broke the garden table, so on top of everything else that wall will need rebuilding 😩 still our roof didn’t blow off and we weren’t hurt so I’m not complaining.

Take care my lovely, have a nice weekend if you can, I hope you wildlife are all ok.

🥰💕🤣💨🔆🐢💕💕💕xxx

honeybug profile image
honeybug

Love these tortoises; once I got to feed one watermelon which is their Summer fav.

Happy for your diagnosis and treatment sweetie.

Sending lots of ♥️🤗🥰🙏🕊

EJ 🌿🌸🦋❤️‍🩹

misty14 profile image
misty14 in reply to honeybug

That must have been lovely honeybug. They're fascinating creatures, so different. Thanx for your lovely wishes. Keep safe lovely. Xx🐢❤🐢🦋🌈👍🌈❤🐢❤😀🦋👋🐢❤🐢🤞🦋❤

honeybug profile image
honeybug in reply to misty14

Thank you sweetie 🤗. It was amazing. Since watermelon 🍉 is a special treat for them I was mesmerized to see him make a hurried trek to get it and just how much he enjoyed it. He had escaped from our friend’s fenced yard and our dear neighbor and friend next door brought him into his fenced backyard. He was next to our home when I first saw him and tossed the 🍉 to him.

He eventually was returned home and left me with a treasured memory.

Thank you for listening to me and the opportunity to share my experience lovely Misty.

Love and prayers.

EJ 🤗♥️🥰🙏🕊❤️‍🩹🤝🌿🌸🦋🐢 best emoji I have sorry.

misty14 profile image
misty14 in reply to honeybug

Its lovely that I've invoked a treasured memory honeybug and it all adds lovely stories to the forum so thanx so much for writing. That must have been lovely. Keep safe.Xx

Krazykat26 profile image
Krazykat26

Fabulous pic n a wonderful story Misty 🤗Thank you for posting it.My my you are a busy gal!! I hope the steroid injection helps your foot. Remember to rest up in-between appointments.. stock up on some shortbread maybe? 💜🌈😽😽Xx

misty14 profile image
misty14 in reply to Krazykat26

Thanx krazykat for your lovely message and good wishes. If it doesnt help much it will be an op, this is last chance saloon!.

How are you getting on with steroid withdrawal and the extra mtx!. Hope its helping ypu.

Ive been fortunate that my rheumy has agreed to my mtx dose going up to 17.5mg, starting from today so we're still taking same amount. Im delaying my first reduction till ive had my 4th booster too.

Its crazy coping with it all. Ive coined a phrase, 'fit 2 be ill'.

Im going to need a bucket load of shortbread as facing gastro tests too!!. Thats a brill idea, thanx krazykat.

Any news on your car?.

Do hope you werent affected by storm eunice yesterday or the snow!. Keep safe Xx😻❤🌈🙏🌈🤞😻🤗🌈🙏🌈🤞🦋❤

Krazykat26 profile image
Krazykat26 in reply to misty14

Yes we're in sync again aren't we? 😹I've had two weeks on increased mtx..I'll take my third dose tomorrow. I'm toying with the idea of reducing pred on Monday too to 4.5mgs. Only thing is I've got to have blood tests every two weeks for the first six weeks..so I'm trying to juggle so I don't reduce pred n then have a blood test in couple of days coz I don't know how I'll be 🤔It's constant juggling ain't it? I went out on weds in storm Dudley to have bloods done..cor it wore me out!! I had to have two days 'off'..fit for nothing!!! 😴😴

Still no car!! It's been over a year since our last car died..I'm amazed at how well we've managed tbh!! Hopefully it will happen soon 🤞

Bit of fence damage here today but it's repairable. Hope all is well with you n your folks Misty 💜🌈😽😽xx

misty14 profile image
misty14 in reply to Krazykat26

Its lovely we're in sync krazykat but its oh so wearing trying to work out when's best to reduce.

Glad you've been on new dose a few weeks now to give you confidence to reduce. Sometimes its best just to do it and not think about it too much. Good luck if you do ,do it tomorrow.

Thats shocking about the car krazykat but glad you've coped better than you thought you would.

My cousin who was also waiting for a mobility car last year did wait 5 months but did get his.

Maybe somethings gone wrong with your order and it needs chasing again?.

Its blowing a gale again here today. Hope you don't lose more fencing. Take care and keep safe. 🤞for the reduction. Xx😻❤👋🌈🦋🌈🤞

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