Early morning thoughts and worries

[JennaShi]

Was fine all day, went fishing off the pier and as it got chilly my Raynauds started acting up and short periods of vertigo. I was frustrated with A and let her constant arguing get me worked up. After a hard talk i went upstairs and started to get chills and my whole body is achy, limbs in fire and not feeling good. My husband says that I feel like a normal temp but my eyes and body feel warm and get chills. Can taste and smell fine, been fully vaccinated for a while and careful but am unsure if this is Covid, a cold/ flu, or, or getting all worked up, or lupus. Still no face rash and last labs said lupus wasn’t active.

Hoping not Covid because I set up my endoscopy and colonoscopy for the 15th. Please keep me in your thoughts and prayers . Saw new Gastro dr and glad she saw me, she saw that continuing anemia problem needs to be checked out. On psyllium powder and miralax hoping for more normal bowel movements soon 🙌.

[Pumpkin2009]

You will be in my thoughts. Hope you are starting to feel better. If not, I hope you can reach out and get some help.

Healing hugs.

[JennaShi in reply to Pumpkin2009]

Thank you Pumpkin2009, I emailed a primary physician I am to see tomorrow. I ended up having a ruptured cyst and wonder how much contributed it contributed to my symptoms. Took a couple advil and some symptoms have improved while only pain in my body/legs and neuropathy linger. Looking forward to a better day and hope you have a better day too!

[KayHimm]

Hi Jenna -

It is always good to be tested for Covid. You sound sort of “autonomic dysfunction” to me.

The miralax and fiber are working wonders for me. Really hoping it helps you. That may be autonomic related. What did GI doctor say?

😍k

[JennaShi in reply to KayHimm]

Hey Kay, I ended up emailing a primary care physician that I am to see tomorrow and will most definitely get tested if she says I should. It was weird, I was on the pier and kept getting intermittent vertigo; we fished one other day before and didn’t have this problem but maybe just looking at the water and crystals in my ear? 🤷🏼‍♀️

This morning I had a ruptured cyst and am wondering how much of that contributed to my symptoms. Not sure why my legs are hurting though.

That’s wonderful news! I’ve heard it’s much easier on the stomach too in comparison to stimulating laxatives. Did it take long for things to start moving forward?

Yes, I think it is autonomic related. We have small fiber nerves in our intestines too that move things along, isn’t that interesting?!

She seemed pretty on top of it and said she wanted to start those things to solidify and move it forward, and do an endoscopy and colonoscopy to check everything out and look specifically for evidence of autoimmune gastritis. Not excited for the procedures as they will be in the same day and it will be with someone else since she is booked out; but I’m excited that she will make sure the dr is thorough and looking specifically for evidence of AIAG and the cause of my ongoing chronic anemia.

[KayHimm]

As far as the GI issues, I have had to keep re-adjusting. I would say it took me about two weeks to get straightened out after radiation, though when I first went on Acacia fiber years ago, it was fast and as if I had had bowel transplant. Alternating constipation and diarrhea is harder. But stay in touch with your doctor. I regret that I didn’t up the Miralax sooner.

Feel free to message any time.

😘 k

[JennaShi in reply to KayHimm]

It sounds like a process, as our bodies change with all the health stuff happening, I guess we have to adapt and make changes. what you're saying makes sense. I'm so sorry you've had to go through radiation, I've had a couple family members go through it and it's tough on the body for sure. Do you feel that it has helped you? I've never heard of Acacia fiber, but that sounds amazing! There's always hope though. I think I'm going to try Acacia fiber too and see if it helps. Hugs to you and hope you're doing well. I definitely will, thank you Kay <3

[lufibabe]

Thinking of you! Hope you start to feel better soon.xx

[JennaShi in reply to lufibabe]

Thank you for thinking of me, I am as my Rheumy prescribed Naproxen 500mg yesterday and I got some relief and sleep last night with the joint and muskoskeletal pain🙌. Hoping to keep moving forward 💜

[lufibabe]

Oh glad to hear..hope you have been given something for the stomach lining too? PPI? Something like omeprazole..

[JennaShi in reply to lufibabe]

I'm so glad you mentioned this. The Aleve has been causing more stomach pain and I have asked for this. I'm not sure? Its called Naproxen but is more commonly known as Aleve. I've heard of the detrimental affects of PPIs to the stomach, its a tough side effect in response to hopeful pain relief.

[lufibabe]

Hi,I took Naproxen for a year and half straight, and although its a great NSAID it can upset your stomach and can cause bleeding (please I am not trying to scare you!) that's why you have to have a PPI with it if usage is long term. This is what my GP told me. And she has managed to wean me off. But now my stomach lining is very sensitive and I have gastritis. Not sure if its due to NSAIDS. I do take now and again when I cant bear the pain.

I hope you find the right balance for yourself. Perhaps worth discussing with your GP the pros and cons?

Sending you best wishes.