Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for August 2021

Gi doc visit update/ primary visit

Hello everyone, I hope you’re all doing well. It’s Monday and A had her birthday on Saturday; she turned 11! I’m jumping in here on a high note. Just got off...

Hello everyone, I hope you’re all doing well. It’s Monday and A had her birthda...

JennaShi

•3 years ago

4 Replies

Dragonfly in the garden!

Went out to the garden to just have a sit down as the sun was nowhere to be seen. Saw this little creature near our little pond, on our washing on the line....

Went out to the garden to just have a sit down as the sun was nowhere to be seen...

Bowenlady

•3 years ago

15 Replies

Advice needed with Diagnosis

Hello everyone, I would like to start with a little bit of background with myself. I have been experiencing joint aches since I was around 18/19 that have...

Hello everyone, I would like to start with a little bit of background with mys...

SadGirlRaceClub

•3 years ago

13 Replies

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Mycophenolate

I have now been on full dose for 5 weeks now, one issue I have is diarrhoea, which is hopeless when out and about. I want to give this drug a shot as its...

I have now been on full dose for 5 weeks now, one issue I have is diarrhoea, w...

molly19

•3 years ago

4 Replies

Burning and Itchy Breast

I know this sounds a bit daft, but maybe I can get an answer, since I started to get sick I have been struggling with burning breast, internally and red hot...

I know this sounds a bit daft, but maybe I can get an answer, since I started t...

Gingernotwhinger

•3 years ago

19 Replies

I don’t know if anyone here can help me…

I have this problem where my Achilles’ tendon attaches to the back of my heel. I have a large bump and pain. Xrays show inflammation in that area, causing this...

I have this problem where my Achilles’ tendon attaches to the back of my heel. I...

Willow7733

•3 years ago

41 Replies

NICE Guidance on Chronic Fatigue Syndrome delayed

Most of us here will know the life-draining fatigue that often accompanies systemic autoimmune conditions. Many will have co-diagnoses of CFS or ME. For a long...

Most of us here will know the life-draining fatigue that often accompanies syste...

whisperit

•3 years ago

21 Replies

First outing on my disability scooter!

I just have to share this with everyone. I have said before that I was finding the fact that I needed to use a walking stick to get about was really...

I just have to share this with everyone. I have said before that I was finding t...

Bowenlady

•3 years ago

24 Replies

A sobering notice!

I couldn’t believe my eyes when I saw this notice as large as you like on the forecourt roof of this garage in Hermannsburg, N.T., Australia. 😳 Once I got...

I couldn’t believe my eyes when I saw this notice as large as you like on the fo...

Spotty-ewe

•3 years ago

32 Replies

Unable to upload pictures

Is anyone else having an issue putting images up recently or have I been censored 😉

Is anyone else having an issue putting images up recently or have I been censore...

Hidden

•3 years ago

21 Replies

Do you wear a Hidden Disability Sunflower Lanyard? You could take part in their Podcast!

Hi everyone, I was recently contacted by a representative from Hidden Disabilities Sunflower Lanyard Scheme. They have a podcast series, "The Sunflower...

Hi everyone, I was recently contacted by a representative from Hidden Disabiliti...

Paul_Howard

Partner•3 years ago

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New to lupus

Hi guys. I’m Danny. I was diagnosed with lupus yesterday, so I have no idea what lies ahead of me yet. Any tips would be much appreciated. Thanks.

Hi guys. I’m Danny. I was diagnosed with lupus yesterday, so I have no idea what...

Croyboy01

•3 years ago

15 Replies

Latest update & night sweats

Hi Folks I came home from hospital on Monday after full hysterectomy and removal of masses - the consultant rang me yesterday to say the mass that was melon...

Hi Folks I came home from hospital on Monday after full hysterectomy and removal...

svfarmer

•3 years ago

85 Replies

Horrendous Doctor Experience

Just had my worst experience with a doctor so far in my journey. I have not yet been diagnosed with Lupus but I been having a really bad “flare up” recently,...

Just had my worst experience with a doctor so far in my journey. I have not yet ...

ClodaghK

•3 years ago

27 Replies

Rant about festivals!

Daughter just back from attending Boardmasters' festival in Cornwell. Apparently it has been a super spreader event (50,000 attended). Her carshare friend...

Daughter just back from attending Boardmasters' festival in Cornwell. Apparently...

Cathyan

•3 years ago

20 Replies

Getting diagnosed with SLE : Has anyone been diagnosed and not had organ involvement?

I finally got to see the rheumatologist yesterday, after 8 months of waiting. I had seen the dermatologist but, they weren’t sure what was going on. Anyway...

I finally got to see the rheumatologist yesterday, after 8 months of waiting. I ...

Penelope-Pipin

•3 years ago

6 Replies

Updated on vacation refusal

Mother in law living in Spain has had her first vaccination and the second due in 4 weeks. She’s awaiting a knee operation and there is no admittance without...

Mother in law living in Spain has had her first vaccination and the second due i...

Hidden

•3 years ago

9 Replies

5 weeks on recovering from Covid-19

What can I say really? For the first time I’m posting after along time and the reason was the whole pandemic (Cov-19/SARS) was too much for me to deal with in...

What can I say really? For the first time I’m posting after along time and the r...

Ironmytherapy

•3 years ago

17 Replies

A question about lupus and love

Hi All, So there's something I struggle with having been diagnosed young and that's letting people love me. Now I have my friends and family and that's great....

Hi All, So there's something I struggle with having been diagnosed young and tha...

Insomniacette

•3 years ago

21 Replies

Covid and lupus

Is everybody on here just getting on with their lives regarding Covid or is anyone still more or less unofficially sheilding? Are people very anxious about it...

Is everybody on here just getting on with their lives regarding Covid or is anyo...

Fluffypip

•3 years ago

18 Replies

I’m running the Great North Run for Lupus UK

Hi All As this is my go to group for anything lupus related I am hoping this may be a good place to share this! I’m a fellow lupus warrior and will be...

Hi All As this is my go to group for anything lupus related I am hoping this ma...

Chin-up

•3 years ago

1 Reply

Seeking person for LUPUS UK's Lupus Awareness Month radio campaign day

Hi everyone, October is coming upon us quickly and with it, our Lupus Awareness Month campaign. This year, we will be sharing the stories and experiences of...

Hi everyone, October is coming upon us quickly and with it, our Lupus Awareness ...

Paul_Howard

Partner•3 years ago

1 Reply

Received a letter from NHS

Hi I’ve received a letter from the NHS saying that I’ve been coded does anyone know what this is about

Hi I’ve received a letter from the NHS saying that I’ve been coded does anyone k...

Liz2468

•3 years ago

15 Replies

Feeling bad in the morning, well at night.

What is everyone's daily symptoms pattern if any? I usually know how most of my day will be when I wake up. Most days mornings are the worst when I feel...

What is everyone's daily symptoms pattern if any? I usually know how most of my ...

Tanitani

•3 years ago

71 Replies

Lichen sclerosis

Does anyone have experience or knowledge of this condition, and could it be linked to Lupus as it is an autoimmune condition? Would be very grateful for any...

Does anyone have experience or knowledge of this condition, and could it be link...

Larks0ng

•3 years ago

27 Replies

GP rant..frustration..no diagnosis

Hi everyone... I feel awful at the moment..just got off the phone with my GP..had facial rash that came back last month..its on/off..they repeated my...

Hi everyone... I feel awful at the moment..just got off the phone with my GP..ha...

lufibabe

•3 years ago

34 Replies

Lupus & Coronavirus (COVID-19) - UPDATED (17/08/2021)

We have reviewed and updated our information and guidance about lupus and COVID-19 at https://www.lupusuk.org.uk/coronavirus/ The information and guidance...

We have reviewed and updated our information and guidance about lupus and COVID-...

Paul_Howard

Partner•3 years ago

2 Replies

New to the forum

I have just been diagnosed with Lupus and have Hashimoto too. Starting on Hydroxychloroquine. Should I make dietary changes? Thanks so much for sharing

I have just been diagnosed with Lupus and have Hashimoto too. Starting on Hydrox...

Liyaelize

•3 years ago

16 Replies

Up up and away

How’s this for a picture of childhood innocence, happiness, carefree summer day out. Let’s pretend we’re all flying kites high today 😀

How’s this for a picture of childhood innocence, happiness, carefree summer day ...

Hidden

•3 years ago

20 Replies

Lupus and jaw/gum pain

Hi everyone. I hope you’re having a good day. Does anyone suffer with severe pain in their jaw and gums? This has come on for me in the past 10 days and it’s...

Hi everyone. I hope you’re having a good day. Does anyone suffer with severe pa...

Jasmine22

•3 years ago

15 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2021

Gi doc visit update/ primary visit

Dragonfly in the garden!

Advice needed with Diagnosis

Mycophenolate

Burning and Itchy Breast

I don’t know if anyone here can help me…

NICE Guidance on Chronic Fatigue Syndrome delayed

First outing on my disability scooter!

A sobering notice!

Unable to upload pictures

Do you wear a Hidden Disability Sunflower Lanyard? You could take part in their Podcast!

New to lupus

Latest update & night sweats

Horrendous Doctor Experience

Rant about festivals!

Getting diagnosed with SLE : Has anyone been diagnosed and not had organ involvement?

Updated on vacation refusal

5 weeks on recovering from Covid-19

A question about lupus and love

Covid and lupus

I’m running the Great North Run for Lupus UK

Seeking person for LUPUS UK's Lupus Awareness Month radio campaign day

Received a letter from NHS

Feeling bad in the morning, well at night.

Lichen sclerosis

GP rant..frustration..no diagnosis

Lupus & Coronavirus (COVID-19) - UPDATED (17/08/2021)

New to the forum

Up up and away

Lupus and jaw/gum pain

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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