I recognise that my question may seem absurd, on this forum but my diagnosis of lupus, made in 2011 or so, was on the basis of blood tests and a persistent hip joint inflammation. I was prescribed Hydroxychloroqine and Losartan (for my life-long Raynaud's) and carried on with my life. Erythromelalgia has been a much greater trial.
However, I have spent the last several days in bed, feeling more ill than ever in my life to date, so this is something of a "poor me". The symptoms include:
Utter exhaustion, so I struggle to stay awake and have dozed on and off throughout the 24 hours, waking with my heart racing., which I can hear inside my ears. The nights feel interminably long.
Total loss of appetite and managing only sips of water. Nausea and retching (yuck).
Inability to concentrate and what I think must be "brain fog". Even familiar names and places have vanished from my memory.
My skin feels very sensitive and sometimes my legs or my feet tingle or I feel painful 'electric shocks'.
When I stand up, I feel lightheaded and my pulse starts racing again.
I have no energy.
If I could think more clearly, I'm sure that I could remember other symptoms but I expect you get the gist.
We feared Covid despite both of us having had both vaccinations but PCRs came back yesterday, both negative.
Before these things started, I had a urine tract infection; something that happens every so often, a legacy of injury sustained during the birth of my daughters. I completed a course of antibiotics but the UTI persisted, which has never happened to me before., so my GP prescribed a different antibiotics, which worked but oh dear, what an effort, to swallow those.
My question, to all you experienced Lupies, is can an infection trigger a lupus flare? Thank you.
And if one has to spend a few days in bed, what better view could there be from my bedroom window?
Hello skylark 15. Yes it sounds like your symptoms are lupus related. But it sounds like 2 other things to me. One is, you do not wholly believe you have lupus. And two, Given that and your symptoms a doctor appointment is what you really need. Best
Hi, Titters. Thanks for your prompt response to my question. I wrote a reply but it must have got lost in the ether (or I forgot to press Send), sorry. Anyway you're right, my symptoms did turn out to have been a lupus flare, undoubtedly triggered by an unresponsive UTI.xx