Interesting

[Lupiknits]

I saw my ⭐️ Nurse today who has been helping me with my bladder incontinence. She recognised my bowel incontinence and treatment that would help long before the consultants got around to seeing me.

For my bladder, we are using internal muscle stimulation. It will be some time before we can start biofeedback. After some unpleasant physiological tests of my rectum, I’m expecting biofeedback for that.

I asked why my pelvic floor seemed to have a problem on one side only. She knows my medications and my mixed bag of autoimmune disorders and said she’d come across it once before, with a lady who had scleroderma. That ticks a box ☹️

[EOLHPC]

🤔 VERRRRY 🦓 INTERESTING 🥰🍀 Coco

[NeuronerdDoaty]

Yay! To the nurse.

Take care of yourself💛

[eekt]

Here’s to the 🌟s in our lives, long may they be around...keep us posted! Xxxx

[Hidden]

As always I follow your posts with great interest and empathy and this one is no exception! X

[honeybug]

☹️🤗💗😘🙏🌿🌸😇🕊

[catblue1865]

I too have bladder incontinence, and chronic diahoraha with some bowel incontinence, am due to see the bowel and bladder clinic in January, didn't know either of these symptoms could be associated with ammounine disorders.

[Lupiknits in reply to catblue1865]

It’s one of those “might, or might not” I think. All my problems started with my oesophagus and over the years have travelled down. The bladder is the newest, but I was seen most rapidly for that (female GP).

I do have a positive blood marker for systemic sclerosis but haven’t been aware of anything much arising from that.

This nurse was particularly interested in the one sided muscle weakness. As a post menopausal woman who had two babies ( one was born two weeks early but was a whopper) pelvic floor problems and some bladder incontinence can be expected, but mine isn’t typical.

After a colonoscopy I was told I had diverticula disease usually only seen in someone who has been constipated most of their life. I certainly haven’t !

She wasn’t diagnosing in any way, but found it interesting that she’d only encountered it once before.

I do hope you get help. For me it’s a really isolating problem.

[lowraind]

Disagree about the diverticulosis only seen in someone who has been constipated most of their life. I had an attack of diverticulitis that almost killed me and I had not been constipated most of my life.

[Lupiknits in reply to lowraind]

The consultant may have been having a bad day. I certainly felt humiliated!