Hi guys hope you’re well I went to see Dr **** in Tuesday He was very different to the last time I saw him I think he’s taken what his colleague said into consideration he said that bloods do not change over time and antibodies will always be there therefore took away the Uctd diagnosis and told me that I didn’t have autoimmune.
He told me to go back to my neurologist and look for wire of my ace levels are high. However he did tell me to continue my hydro medication which is a little bit confusing he’s also still seeing me guys end of January also confusing he told me that antibodies will always have to be there to diagnose any condition and I cannot come and go is it on something is that even if you don’t have it right now it will develop and future if they are not there then it will never develop which is complete opposite to what everybody right about this is the reason I thought maybe it takes 5 to 7 years for a diagnosis of lupusI actually feel really let down by the doctors I’ve been to see Dr **** Who stated that I had probably APS and I’ve seen Dr I am I am I like and he told me I had the best I’ve seen a run-of-the-mill no ologist who told me I had a mass I have seen and sarcoidosis specialist and he told me that I don’t have sarcoidosis even though I have higher rates levels to be honest with you I don’t think anything is Doctors there any good because they have been continuously taking my money given me all these diagnosis with out actually write them in a letter tell me what they like in the appointments and then not sticking to it in the letters I’m going to write a long letter stating everything I’ve been told by various different doctors the amount of money that I’ve spent and now Im at a loss I have no more momey left and no where else to turn
I don’t even know what to do regarding my diagnosis I spoke into my neurologist to tell him I do not have UCTD according to my rheumatologist I asked him if this could be sarcoidosis and he completely ignored the question and asked me how I was feeling even though in my appointment he told me categorically that this is not Stockwood he is not willing to write it in a letter or give me any kind of written confirmation.
I understand that people think I must be pleased actually I don’t feel very well getting worse and everything I’ve been at believe that till now just told in my last appointment is completely on true if this is completely untrue I don’t understand why I was sent for more bloods are guys because I already had antibody testing privately via Dr ****** Charing cross hospital seems to me that they took my money on my private appointment and then gave me plants by the NHS just for a reason for my five appointment this may not be the case but this is how it seems if the bloods do not change then why are you looking at them again if the bloods do not change then why does it take so long for diagnosis of lupus I have hundreds of pictures I’ve shown in the rushes facial flashing joint pains swelling I just completely shot me down and not before walking me to the door to pay for my appointment basically by the hand.
I’ve seen the best in London and I have no idea what’s wrong they just keep saying nothing and somthing between them all .
At a complete loss
I then asked about my thyroid antibodies because if antibodies show that you have disease then why am I not being treated for underactive thyroid and he said you don’t have a just antibodies 🤦🏼♀️
My partner wants me to go back to work I’ve spent all my mum’s inheritance I promise my children are holiday still feel like I can’t move I get up in the morning and everything is different so he made a comment that I might just have a neurological disorder which just take me back to ms or worse But I have had all my neurological tests.Anyway this is my last loan how do you want to thank you for your help really appreciate it take care love Jade
PS if so if this doesn’t make sense I’m using the voice activating is my hand is so sore xx