Catheter fitted (update): Hi folks, a wee update... - LUPUS UK

LUPUS UK

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Catheter fitted (update)

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Hi folks, a wee update. Got my PD catheter fitted on Wednesday, god I feel like I've been punched in the stomach from Anthony Joshua. All went well and given pain relief when I left, spent all day yesterday sleeping the anesthetic off and still shattered. At least I have peace of mind knowing that the catheter is fitted and they can use it when needed now. Also hit with my Potassium level us far too high and need to change my diet, thank you lupus you've done me up like a kipper this time. 6 days after having the catheter fitted I still feel like hell, heart burn like I've never had before(doubled the dose) still not eating and only drinking water. For a bad cough obviously caused by the pipes down my throat. No energy or get up and go with me, trying to stay strong but it's hard I'll tell you.

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Lupiknits profile image
Lupiknits

A very big hug from me x

I know that change of diet is now being forced on you, but that is now the starting point of you regaining a life.

I didn't get to dialysis but my diet has changed over time and I attribute the fact that I have kept my kidneys limping on to dietary changes.

Sometimes this lupus thing teaches us lessons we would rather not learn. Hopefully you will see the positives when the pain and discomfort has settled.

As you have got a PD catheter, does that mean you will eventually be able to dialyse at home?

Glad all went as expected.

in reply to overnighthearingloss

It does indeed, they can train me up over the next 6 weeks to get me ready for it. Still be able to work is a major plus point for me

Barnclown profile image
Barnclown

👍👏👏👏👏Well done kitman...this is no picnic! Glad you posted: please keep this up...take care 🍀❤️🍀❤️ coco

Oshgosh profile image
Oshgosh

Stick with it!

I went to GP yesterday.

He was helpful as ever. The GP surgery have been really good since my diagnosis

I commented to him that lupus doesn’t make any sense.

He thought for a minute and said you’re right,it doesn’t!

I could make other comments about lupus,but they would not be appropriate for this forum

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