Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,737 members • 28,097 posts

All posts for September 2019

Diagnosed with UCTD 10 years ago - confused by recent blood tests -told normal: Ferritin19 Iron17.8 B12 62 Folate 12

Help requested with blood tests (am told all are normal so presumably means B12 is 620 not 62.Was not given ranges)

Help requested with blood tests (am told all are normal so presumably means B12 ...

Annj

•5 years ago

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Large Bruise without bruising myself...anyone get this?

Hi all, I woke up with this bruise this morning. There was nothing there last night and I've not banged my leg. It is not the slightest bit sore or bruised...

Hi all, I woke up with this bruise this morning. There was nothing there last n...

panda2

•5 years ago

44 Replies

Skin changes

I was diagnosed with S.L.E APS Arthritis and Raynaud’s when I was 18 I’m now 29. A good few months ago I noticed that my skin colour is changing. Some parts...

I was diagnosed with S.L.E APS Arthritis and Raynaud’s when I was 18 I’m now 29....

Pug-Mum-89

•5 years ago

8 Replies

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Critical illness insurance

Has anymore successfully claimed off their critical illness policy after receiving a diagnosis of sle please ?

Has anymore successfully claimed off their critical illness policy after receivi...

Harry19

•5 years ago

5 Replies

Planning pregnancy: questions to ask

Hi all, Sorry, this is a bit of a "personal" one but I have a follow-up rheumatology appointment in a week and a half and I am trying to plan what to ask about...

Hi all, Sorry, this is a bit of a "personal" one but I have a follow-up rheumato...

November90

•5 years ago

10 Replies

Sjogren’s lip biopsy

Morning everyone! I hope you’re all having a good weekend. I’m having a lip biopsy for Sjogren’s tomorrow and am wondering if anybody who has had it can tell...

Morning everyone! I hope you’re all having a good weekend. I’m having a lip biop...

Jasmine22

•5 years ago

33 Replies

Needing a miracle now!

Looking like my SLE is under control and going into remission for a 2nd time, no water tablets for 3.5 weeks all looking well and now I'm back on them at 2 per...

Looking like my SLE is under control and going into remission for a 2nd time, no...

Hidden

•5 years ago

7 Replies

Reducing plaquenil dosage and the effects.

Hi. I have had lupus for 16 years. For the past decade I have been on 400mg of plaquenil and recently my rheumatologist decided that my lupus was under control...

Hi. I have had lupus for 16 years. For the past decade I have been on 400mg of p...

Shellhar

•5 years ago

11 Replies

Lupus is so underestimated by so many people.

I have Systemic Lupus in a very bad way. I also have mild Discoid Lupus. On top of that I have six other autoimmune diseases. What I really don't understand at...

I have Systemic Lupus in a very bad way. I also have mild Discoid Lupus. On top ...

emma40e

•5 years ago

11 Replies

I think this photo of my cat sums up how I feel today. 5.5 years of suffering. Am I about to function again? 🥳

I think many of you know , what I have been going through is nothing short of living a life of hell. After my Rheumatologist appointment yesterday , which...

I think many of you know , what I have been going through is nothing short of li...

Lisalou19

•5 years ago

10 Replies

Throbbing in glands

4 months on myfenax now but experiencing nasty throbbing in the glands on my neck and a fewchest palpitations ..pain in my knees ongoing but not as frequent so...

4 months on myfenax now but experiencing nasty throbbing in the glands on my nec...

Hidden

•5 years ago

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Something I spotted for the Zebras here!

https://www.bbc.co.uk/news/av/world-africa-49776940/spotty-zebra-in-kenya-maasai-mara-reserve

https://www.bbc.co.uk/news/av/world-africa-49776940/spotty-zebra-in-kenya-maasai...

Lupiknits

•5 years ago

10 Replies

Latest Appointment at Rheumatology

Nothing much to report! The research study I took part in last year confirmed I have some/early/ wait and see Sjögren’s which is currently helped by eye drops...

Nothing much to report! The research study I took part in last year confirmed I...

Lupiknits

•5 years ago

13 Replies

Up date on, just a kind request🤗

I just wanted to Thank Everyone for there so very kind replies to this special request. My dear friend, "Keepstrong", is home from the hospital, and doing...

I just wanted to Thank Everyone for there so very kind replies to this special r...

thestorm

•5 years ago

16 Replies

RA and biologic injections

Anyone been prescribed biological injections for RA? Since starting them my sister is getting a blister rash which rheumatologist and dermatologist can’t...

Anyone been prescribed biological injections for RA? Since starting them my sist...

Lupusrelative

•5 years ago

18 Replies

Not sure if I have Lupus

Hi there I'm Rebekah, I'm 29 and I'm not even sure if I have been diagnosed with Lupus yet. I have been under investigation recently at my fertility centre for...

Hi there I'm Rebekah, I'm 29 and I'm not even sure if I have been diagnosed with...

Bekah4673

•5 years ago

8 Replies

Palindromic arthritis

Does anyone have palindromic arthritis. My consultant is teetering on that as diagnosis . Just wondering how it affects others and what medication you take?...

Does anyone have palindromic arthritis. My consultant is teetering on that as d...

Sallmell

•5 years ago

4 Replies

Help

Hi Iv been unwell for the past 10+ months finally my gp did a range of tests and found me positive for ana and had a dsdna if 700 . Therefore she’s referring...

Hi Iv been unwell for the past 10+ months finally my gp did a range of tests a...

Harry19

•5 years ago

9 Replies

Hello my ❤️

Hey guys ❤️ I have found my skin is burning in the sun ☀️ not going red apart from my face but just getting really quite hot any ideas to why this is I never...

Hey guys ❤️ I have found my skin is burning in the sun ☀️ not going red apart f...

Buckley123

•5 years ago

17 Replies

Scarring alopecia and SLE lupus?

I have SLE lupus, at the moment just on hydroxychloroquine. About 8 months in I think I have had my first flare. Feeling shivery, noticeable hair loss and pain...

I have SLE lupus, at the moment just on hydroxychloroquine. About 8 months in I ...

Goldie49

•5 years ago

3 Replies

Is there any other car hire scheme if you loose your motability allowance? Scrambling around for alternatives after loosing my Tribunal.

Is there any other car hire scheme if you loose your motability allowance? Scrambling around for alternatives after loosing my Tribunal. They might not think I...

Is there any other car hire scheme if you loose your motability allowance? Scram...

LilyMistri2

•5 years ago

5 Replies

Headache

I am sorry to make a stupid post, but I'm a bit worried! I was diagnosed with lupus in the summer and I was on MPA because of kidney involvement. I haven't had...

I am sorry to make a stupid post, but I'm a bit worried! I was diagnosed with lu...

November90

•5 years ago

31 Replies

New intolerances

Hi all, I am newly diagnosed with Lupus and have been on hydroxychloroquine for about 6 months now. Since my diagnosis and the medication ,I have noticed that...

Hi all, I am newly diagnosed with Lupus and have been on hydroxychloroquine for ...

Becky1995

•5 years ago

16 Replies

Mouth Issues - any advice?

Hi everyone, Hope everyone is well, I’ve been having some trouble with my mouth recently. I’ve always had ulcers in my mouth periodically and they can be...

Hi everyone, Hope everyone is well, I’ve been having some trouble with my mouth...

Leenie0811

•5 years ago

5 Replies

CBD for Lupus pain

Hello everyone I hope everyone is doing well. Has anyone tried CBD oil for lupus? What brands have you tried? I have been on high levels of steriod...

Hello everyone I hope everyone is doing well. Has anyone tried CBD oil for lupu...

SLE-Warrior

•5 years ago

5 Replies

Lost my PIP Tribunal today. No more Motability car.

Dear Friends, Thanks to all of you who supported me through my PIP over the last year. This week I went to Tribunal to get my mobility component changed from...

Dear Friends, Thanks to all of you who supported me through my PIP over the last...

LilyMistri2

•5 years ago

11 Replies

Flare up due to a viral infection

Morning lovely Lupies. I am just wondering if anyone also has a flare up of their Lupus when you have a viral infection. I have been feeling dreadful for the...

Morning lovely Lupies. I am just wondering if anyone also has a flare up of thei...

Summerrain14

•5 years ago

10 Replies

Tracking symptoms

Hi all I'm so grateful for this community and your helpful support. I wanted to share something that is helping me understand all my symptoms, medications etc....

Hi all I'm so grateful for this community and your helpful support. I wanted to ...

lupus_paradise

•5 years ago

2 Replies

Breathing in the Fall🍃🌾🍂🍂

Hi all, here is a web site article that may be of some interest to anyone who suffers with lupus breathing and Asthma related symptoms. This Fall season is a...

Hi all, here is a web site article that may be of some interest to anyone who su...

thestorm

•5 years ago

9 Replies

Hopeful for diagnosis tomorrow!🤞

Tomorrow I see my rheumatologist consultant after over 6 months on hydroxychloroquine and two depomedrone steroid injections. I have positive ANA and have had...

Tomorrow I see my rheumatologist consultant after over 6 months on hydroxychloro...

Sallmell

•5 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2019

Diagnosed with UCTD 10 years ago - confused by recent blood tests -told normal: Ferritin19 Iron17.8 B12 62 Folate 12

Large Bruise without bruising myself...anyone get this?

Skin changes

Critical illness insurance

Planning pregnancy: questions to ask

Sjogren’s lip biopsy

Needing a miracle now!

Reducing plaquenil dosage and the effects.

Lupus is so underestimated by so many people.

I think this photo of my cat sums up how I feel today. 5.5 years of suffering. Am I about to function again? 🥳

Throbbing in glands

Something I spotted for the Zebras here!

Latest Appointment at Rheumatology

Up date on, just a kind request🤗

RA and biologic injections

Not sure if I have Lupus

Palindromic arthritis

Help

Hello my ❤️

Scarring alopecia and SLE lupus?

Is there any other car hire scheme if you loose your motability allowance? Scrambling around for alternatives after loosing my Tribunal.

Headache

New intolerances

Mouth Issues - any advice?

CBD for Lupus pain

Lost my PIP Tribunal today. No more Motability car.

Flare up due to a viral infection

Tracking symptoms

Breathing in the Fall🍃🌾🍂🍂

Hopeful for diagnosis tomorrow!🤞

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