Update... soon?: Hi . So many of you were kind and... - LUPUS UK

LUPUS UK

32,146 members28,486 posts

Update... soon?

Apricot100 profile image
4 Replies

Hi . So many of you were kind and supportive to my post a few weeks ago ("confused and angry") about my appointment at chapel Allerton hosp with a rather frustrating rheumy. Since then I've spoken to and emailed the incredible and mega helpful nurse, she now has a list of all my symptoms (thank you gang for your advice) and mentioned that she has flagged up my appointment with her superiors as she felt it was "just wrong".

So, I was called after sending my email expressing my dissatisfaction and anger, as well as my symptom list, plus my thoughts on making an official complaint. I was offered an appointment with the main consultant. The appointment is tomorrow morning.

Wish me luck! Annoyingly I have been quite will since the last appointment and since stopping hydroxy! 🙈.

Sleep well lovelies x

Written by
Apricot100 profile image
Apricot100
To view profiles and participate in discussions please or .
4 Replies
Sekka profile image
Sekka

Please let us all know. I hope you get some answers with the appt. Thinking of you.

I have a dear friend in Chapel Allerton and I live all the way down under kn Australia. We autoimmune people are all over the world. Wish our solutions were easier! Good luck.

Apricot100 profile image
Apricot100 in reply to Sekka

Thank you Sekka. The AI world is a small and close one! Xx

Lupiknits profile image
Lupiknits

Good. Do let me know how it goes. I have an appointment there this week x

Apricot100 profile image
Apricot100 in reply to Lupiknits

Will do. Thank you xx

Not what you're looking for?

You may also like...

Update

Just thought I would let you all know I now have an appointment with the rheumatologist but not the...

Appointment update

Hello👋 , We’re on our way back home from the appointment. It surprisingly went very well and...

POTS update

Hiya. A quick update. I've been poorly since last December. I spent Xmas in hospital after having...

Nurse Appointment

Had my rheumy nurse appointment today. Well it went a lot better than i could have expected. My...

Unbelievable!

I gave in and went to the docs today as I can't stand the pain in my ribs any longer. I saw the...