Sneaky and Unpredictable

[Blessings101]

Every day, for half of the day, I feel okay enough to do what I need to do. Then out of nowhere it hits me like a ton of bricks. Pain all over, headache, fever. It's so crazy!!!

My legs are throbbing now, tummy cramping fever and headache of note.

This damn lupus, it's so sneaky and unpredictable.

[Oshgosh]

I hate lupus. The unpredictability of the symptoms is horrible and really hard to cope with

[Blessings101 in reply to Oshgosh]

Can't agree more. It's really hard to find the balance and rest when my body tells me to.

Blessings and love to you.

[Oshgosh in reply to Blessings101]

Thank you

[thestorm]

So sorry to read of your diffecties, that is the thing with these conditions they sneak up like thieves in the night, and try to drag you down. Do not let them get the better of you. Do you journal? I ask because if you do, you may find a marker, some pattern that sets these times apart from other times of what you do each day. Like a clue. Then if it is, There may be signs, impending ones that you may be able to re direct, correct, or mindful activities that retrain your brain to help you threw those times. It is all a very big balancing act. I fully understand how you feel, as do many of us here. I hope this helps a bit, and I am praying for you too. peace, blessings thestorm

[Blessings101 in reply to thestorm]

Hi Thestorm,

Thanks for the tip. I will most definitely start a journal.

Blessings and love to you.

[nanleighh]

Hi Blessings101, I hear you. I am the same way. I haven’t had any fevers in a while but I find if I get what I need to get done in the mornings, I leave the afternoon for rest just in case. I even make meals in advance so there is not much preparation just in case. Some evenings I feel fine but sometimes I am drained. I feel for you because I am right there with you. You never know when it’s going to sneak up on you. Hugs, Nan

[Blessings101 in reply to nanleighh]

Hi Nanleighh,

So great to chat with people who understand.

The mistake I seem to make is when I feel good, I push hard and that's never a good thing due to the consequences.

Blessings and love to you.

[nanleighh in reply to Blessings101]

I do that too Blessings 101, over the weekend I was at a birthday party and I was bragging to everybody about how good I was feeling. Well the day after I crashed and had upset stomach and fatigue all day long even though I didn’t eat anything that would’ve caused my stomach to be upset. I guess I should be more humble. Take good care, Nan

[Buckley123]

I get this too hOpe you feel better soon XX

[Blessings101 in reply to Buckley123]

Thank you so much