Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2019

Cramps!! Legs, arms, hands...you name it!!

Hi everyone. I am hoping someone here might be able to help me. I’m new to this community but have had Systemic Lupus Nephritis since I was 7 years old (am now...

Hi everyone. I am hoping someone here might be able to help me. I’m new to this ...

Cat_Mum

•5 years ago

11 Replies

FEEL TO OLD TO DEAL WITH BEING...

FEEL TO OLD TO DEAL WITH BEING LUPIE

Naz2005

•5 years ago

1 Reply

UPDATED PROFILE

NAZ2005 from strawberries pic

Naz2005

•5 years ago

2 Replies

Want to take advantage of all our features? Just log in!

WHATS WRONG WITH ME ???

😳😳😳

Naz2005

•5 years ago

4 Replies

This is me why????? ...

This is me why?????

Naz2005

•5 years ago

Be the first to reply

FED UP WITH BEING FED UP & TIRED

Just so tired literally have no energy to even have a conversation with anybody or do anything even doing the simplest & slightest task tires me out just wana...

Just so tired literally have no energy to even have a conversation with anybody ...

Naz2005

•5 years ago

6 Replies

Amitriptyline and heart plus lupus

Hi wonder if any one can help me Have been dionosed with lupus but also have heart issue wear frist heart beat further away from second . I have mussle and...

Hi wonder if any one can help me Have been dionosed with lupus but also have he...

Marie2000

•5 years ago

3 Replies

Utv

my utp is normal.last month protein was 1 plus but this month utp result came normal.but utv is high.should i be worry??going to doctor Tommorow

my utp is normal.last month protein was 1 plus but this month utp result came no...

ava97

•5 years ago

Be the first to reply

This year’s diary is filling up, but not in the way I’d like!

So far I have a blood test, physio therapy, urology and the Dental Hospital. I’m also seeing the Welfare Rights Officer for advice on my PIP Tribunal (for...

So far I have a blood test, physio therapy, urology and the Dental Hospital. I’m...

Lupiknits

•5 years ago

Be the first to reply

Rheumatoid arthritis

Hiya everyone, I’m going through the diagnosis for lupus and I have my first rheumatologist appointment on the 10th January, but recently my toes, knees and...

Hiya everyone, I’m going through the diagnosis for lupus and I have my first rhe...

Elishaannxx

•5 years ago

11 Replies

ME TIME!!! After years of pushing through the barriers I am taking some much needed time out.

Ive no idea how I have managed to keep on going. I have taken a few days off here and there but always managed to get to work. I think without diagnosis I...

Ive no idea how I have managed to keep on going. I have taken a few days off he...

Lisalou19

•5 years ago

7 Replies

Finally ANA Positive

Hello Everyone, After a year of getting nowhere with my diagnosis I made the decision to get a second Rheumatology opinion. I am so glad I did! I have all...

Hello Everyone, After a year of getting nowhere with my diagnosis I made the d...

Crazy_Cat_Woman

•5 years ago

8 Replies

Lupus and Strokes. Are we most vulnerable?

I thought it was time to say a wee bit more about the latest " thing" that this mystery disease has brought me now. I have always had seronegative everything...

I thought it was time to say a wee bit more about the latest " thing" that this ...

cuttysark

•5 years ago

37 Replies

Itch driving me nuts

Does anyone else with lupus get split skin on finger tips, I have had it on & off for years, I can also see the raw skin layers as it happens or when it starts...

Does anyone else with lupus get split skin on finger tips, I have had it on & of...

Cal66

•5 years ago

7 Replies

Prednisolone diary 16 - review of the year

This is a summary of how steroids have treated me over the past year. I began 2018 on 4mg pred, but with daily nausea, headache and extreme fatigue. After...

This is a summary of how steroids have treated me over the past year. I began 20...

whisperit

•5 years ago

41 Replies

Update

I went to see the rheumatologist in Bath on the 31st December. She told me that my Lupus had got worse since I last saw her in October. I am quite shocked....

I went to see the rheumatologist in Bath on the 31st December. She told me that...

Wrexlu

•5 years ago

4 Replies

Information

Is there anything that you can recomend to help? Does anyone else suffer with diarrhoea?

Is there anything that you can recomend to help? Does anyone else suffer with d...

Hidden

•5 years ago

5 Replies

New to the oil

Hi, first time poster. I've been hearing quite a few people asking about Black Seed Oil & pain.. The only reply I have to the pain is what got me started in...

Hi, first time poster. I've been hearing quite a few people asking about Black S...

ceaquarian

•5 years ago

4 Replies

Dr Connie Jeon ( and Celery Juice)

I’m coming under pressure from Number Two Son to try celery juice as a “cure”. He has a friend who was an excellent gymnast, hoping for the Olympics. Injury...

I’m coming under pressure from Number Two Son to try celery juice as a “cure”. H...

Lupiknits

•5 years ago

29 Replies

Soapstone stove and Systemic lupus erythematosus

My girfriend has Systemic lupus erythematosus and we are reading confusing messages regarding the health impact of infrared light on persons with SLE. On some...

My girfriend has Systemic lupus erythematosus and we are reading confusing messa...

polarbearcv

•5 years ago

9 Replies

Happy new year all

Hi everyone, hope you have all had an amazing Christmas and new year, I had a great time, started my new year with my sympathectomy operation on 3rd January,...

Hi everyone, hope you have all had an amazing Christmas and new year, I had a gr...

Dousey85

•5 years ago

7 Replies

Don't need my blood anyway 🙄

So this morning I cough up a little flem with some blood in. Mild panic insues but a check on the NHS website reassures me a little can be normal with a...

So this morning I cough up a little flem with some blood in. Mild panic insues b...

Penguintaz

•5 years ago

9 Replies

Weird headaches

Over the last 2 months or so I ve been experiencing pain at the roots of my hair and what feels like nerve pain under my scalp. I also have nerve pain in my...

Over the last 2 months or so I ve been experiencing pain at the roots of my hair...

clova

•5 years ago

5 Replies

Important Information on Tranemaxic Acid

Hi guys, just been scrolling through the posts and saw some of them were also about giving information so i thought I should post that if you’ve been given...

Hi guys, just been scrolling through the posts and saw some of them were also ab...

Sandy1212

•5 years ago

Be the first to reply

Regarding tinnitus

Hi guys, My rheumatologist told me to stop taking hydroxy for one month due to tinnitus. After a one month pause and lots of gingo biloba and bcomplex...

Hi guys, My rheumatologist told me to stop taking hydroxy for one month due to...

Lili18

•5 years ago

25 Replies

Tooth Extraction while platelets are low??

Before I was diagnosed i was meant to get my wisdom tooth taken out. Now my platelet count is 12 and they told me that it was still find to get my tooth taken...

Before I was diagnosed i was meant to get my wisdom tooth taken out. Now my plat...

Sandy1212

•5 years ago

11 Replies

No name given yet, but finally I am diagnosed as having a rheumatic disease. Need to have a lot more tests done to confirm the anti bodies.

Finally finally finally!!!! I have no name yet for my disease as they want to run a lot more tests to confirm the anti bodies that are present . Just to...

Finally finally finally!!!! I have no name yet for my disease as they want to r...

Lisalou19

•5 years ago

23 Replies

North Devon Group

Hello everyone Just to tell you of North Devon's Coffee and Chat Group meeting on Tuesday 8 th January 11 am at the Barnstaple Hotel( new venue). Braunton...

Hello everyone Just to tell you of North Devon's Coffee and Chat Group meeting o...

misty14

•5 years ago

4 Replies

Hydroxychloriquine update...

Happy 2019 everyone! My rheumatologist advised starting these at my Sept appointment as didn't think my blood tests would come back negative.... Surprisingly...

Happy 2019 everyone! My rheumatologist advised starting these at my Sept appoint...

Hidden

•5 years ago

4 Replies

Lupus flare, thyroid problems, cfs?

Hello everyone, I wondered if anyone had any advice or similar experiences, or can just shed any light onto what now feels like a very big mess that has...

Hello everyone, I wondered if anyone had any advice or similar experiences, o...

SarahLuna

•5 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2019

Cramps!! Legs, arms, hands...you name it!!

FEEL TO OLD TO DEAL WITH BEING...

UPDATED PROFILE

WHATS WRONG WITH ME ???

This is me why????? ...

FED UP WITH BEING FED UP & TIRED

Amitriptyline and heart plus lupus

Utv

This year’s diary is filling up, but not in the way I’d like!

Rheumatoid arthritis

ME TIME!!! After years of pushing through the barriers I am taking some much needed time out.

Finally ANA Positive

Lupus and Strokes. Are we most vulnerable?

Itch driving me nuts

Prednisolone diary 16 - review of the year

Update

Information

New to the oil

Dr Connie Jeon ( and Celery Juice)

Soapstone stove and Systemic lupus erythematosus

Happy new year all

Don't need my blood anyway 🙄

Weird headaches

Important Information on Tranemaxic Acid

Regarding tinnitus

Tooth Extraction while platelets are low??

No name given yet, but finally I am diagnosed as having a rheumatic disease. Need to have a lot more tests done to confirm the anti bodies.

North Devon Group

Hydroxychloriquine update...

Lupus flare, thyroid problems, cfs?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive