Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,854 members • 28,194 posts

All posts for January 2019

Evening meal fear - and other problems.

Hello I have been diagnosed with POTS, but they are thinking that the underlying cause could be lupus. I struggle with food so badly. I am now unable to a...

Hello I have been diagnosed with POTS, but they are thinking that the underlyin...

emma_louise

•5 years ago

10 Replies

Could I have Lupus?

Hi, I'm new to this site but I could do with a bit of advice. I've been looking into the possibility of having Lupus and I seem to have a lot of the symptoms,...

Hi, I'm new to this site but I could do with a bit of advice. I've been looking ...

Biff2019

•5 years ago

4 Replies

A good endocrinologist

Hi everyone. I am from Scotland. I was wondering if anyone can recommend a good endocrinologist. Near the area of Edinburgh?

Hi everyone. I am from Scotland. I was wondering if anyone can recommend a good...

Hidden

•5 years ago

1 Reply

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Anti thyroid peroxidase >1000

Hi just wondering if there is a connection between lupus and autoimmune thyroid disease. Currently my thyroid levels are within normal range. A blood test in...

Hi just wondering if there is a connection between lupus and autoimmune thyroid ...

Hidden

•5 years ago

10 Replies

Apple cider vinegar

Hi there, I am wondering if anyone had experienced any benefits of using apple cider vinegar. I have lupus and keen to try natural remedies over anti...

Hi there, I am wondering if anyone had experienced any benefits of using apple ...

Jmcb123

•5 years ago

11 Replies

I have some questions concerning my health regarding suspected lupus! I’d love everybody’s views please!

Right my aunt has lupus and had overactive thyroid! My mother had antibiodies in her blood when she was pregnant with me and I was born with severe jaundice...

Right my aunt has lupus and had overactive thyroid! My mother had antibiodies in...

Sharshar001

•5 years ago

3 Replies

First Rheumatologist appointment

On Thursday I went to my first rheumatologist appointment and I was so scared and nervous at one point they were 7doctors around my looking In my mouth at my...

On Thursday I went to my first rheumatologist appointment and I was so scared an...

Elishaannxx

•5 years ago

28 Replies

Sudden agonising hip/groin pain. Can anyone relate or explain?

Hi everyone, Now, I'm possibly just empathising with Andy Murray...but.... I'm in sudden groin/hip pain as of yesterday afternoon. I am limping and shouting...

Hi everyone, Now, I'm possibly just empathising with Andy Murray...but.... I'm i...

panda2

•5 years ago

14 Replies

Dr. Gs 6 steps to reversing disease. Anyone doing it??

Hope everyone is having a good start to 2019! As well as having my usual daily lupus pain my lupus rash has got at lot worse, my face and arms are covered and...

Hope everyone is having a good start to 2019! As well as having my usual daily l...

sarahalice

•5 years ago

11 Replies

Melatonin and lupus

Did anyone experience a flare after taking Melatonin? There is conflicting info saying we can't have melatonin and some say it helps...

Did anyone experience a flare after taking Melatonin? There is conflicting info ...

miccika1

•5 years ago

8 Replies

Suicidal thoughts out of the blue, could this be a flare up?

Hi everyone, For the past two days I’ve been having strong suicidal thoughts and wonder if this could be indicative of a flare up. I get these images in my...

Hi everyone, For the past two days I’ve been having strong suicidal thoughts and...

MerB90

•5 years ago

28 Replies

Anyone tried UVA1 therapy for lupus?

Some studies reported good effects on fatigue when using UVA1 therapy. Dis anyone try this?

Some studies reported good effects on fatigue when using UVA1 therapy. Dis anyon...

miccika1

•5 years ago

6 Replies

PIP assessment

Hi, I have got my PIP assessment on Monday 14th January, it's for Lupus and fibromyalgia. I am feeling very anxious and nervous, which is not helping the...

Hi, I have got my PIP assessment on Monday 14th January, it's for Lupus and fibr...

JanJan63

•5 years ago

8 Replies

Hydroxychloroquine and Eye test advice

Hi, I am new on here and have been familiarizing myself with the site. I have found lots of posts saying how important annual eye tests are. My rheumatologist...

Hi, I am new on here and have been familiarizing myself with the site. I have fo...

Jbo16

•5 years ago

9 Replies

Hair changes in

Has anyone else noticed a big change with the texture if their hair? Mine seemed to change instantly. Going from being very healthy and in good condition to...

Has anyone else noticed a big change with the texture if their hair? Mine seemed...

Hidden

•5 years ago

37 Replies

Lupus nephritis Grade IV...... Proliferative

Kidney biopsy in match 2012 confirmed lupus nephritis Grade IV. When I was diagnosed, initially my nephrologist prescribed me 'endoxen' which is...

Kidney biopsy in match 2012 confirmed lupus nephritis Grade IV. When I was diag...

Drakula

•5 years ago

11 Replies

Lupus rash?

Hello everyone, a question about the rashes you can get with lupus. I've never had rashes before and have had SLE for 10 years now, and all of a sudden out...

Hello everyone, a question about the rashes you can get with lupus. I've never...

SarahLuna

•5 years ago

10 Replies

Drug interactions - SSRIs and treatment of Lupus Nephritis (pred, hydroxychloroquine and MMF)

Following a recent hospital admission and stay whereby my SLE developed into nephrotic syndrome due to the deterioration of my kidneys later diagnosed as lupus...

Following a recent hospital admission and stay whereby my SLE developed into nep...

ButterflyEffect96

•5 years ago

2 Replies

Heat intolerance

Hi just wondering if anyone else suffers from extreme heat/cold intolerance? In thr last few months I have been suffering from unbearable hear episodes....

Hi just wondering if anyone else suffers from extreme heat/cold intolerance? In ...

Hidden

•5 years ago

37 Replies

Visit to Welfare Rights Officer about PIP Tribunal

It’s a little unnerving when someone rolls their eyes up so often you worry they will get stuck. That was her response to some of my previous PIP being...

It’s a little unnerving when someone rolls their eyes up so often you worry they...

Lupiknits

•5 years ago

6 Replies

Reducing Hydroxycloroquine, any success stories?

Hello I’ve been taking hydroxcloroquine at 400mg a day for nearly 3 years. The crippling fatigue, fevers and rash are largely under control. I still have pain...

Hello I’ve been taking hydroxcloroquine at 400mg a day for nearly 3 years. The ...

Beau2016

•5 years ago

11 Replies

Pembrokeshire Lupus Support Group - Meetings in 2019

Just reaching out to anyone in Pembrokeshire area, or indeed anyone under Hywel Dda UHB, please find attached a poster with our meeting details for 2019. We...

Just reaching out to anyone in Pembrokeshire area, or indeed anyone under Hywel ...

Wendy39

•5 years ago

5 Replies

Is it just me?

just tell me if I'm just weird but I wondered if this is a type of neuropathy. I look at things and my eyes tell me one thing but my brain says it is something...

just tell me if I'm just weird but I wondered if this is a type of neuropathy. I...

suzannah16

•5 years ago

19 Replies

The lack of understanding of work colleagues

I was asked this morning by my direct line manager what I was going to the hospital for, i started woth the line you really dont listen to me do you? His...

I was asked this morning by my direct line manager what I was going to the hospi...

Hidden

•5 years ago

12 Replies

Looking ahead to summer - questions

Hello all and a happy new year! Just a little update on me- I was diagnosed with lupus at the milder end of the spectrum last October. My rheumatologist has...

Hello all and a happy new year! Just a little update on me- I was diagnosed with...

123MrsG

•5 years ago

8 Replies

What is your experience with Mysiotis?

If any of you could shed some light on this I would be most grateful xxx

Lisalou19

•5 years ago

40 Replies

Autopat369

Hi i'm new here, I was first diagnosed with C. F. S. ( Chronic Fatigue Syndrome ) in 1981. But really I have been like this since childhood. Around 1999 I...

Hi i'm new here, I was first diagnosed with C. F. S. ( Chronic Fatigue Syndrom...

Autopat369

•5 years ago

3 Replies

Back to work

I went back to work yesterday. It was just training wasn’t actuall that bad. Learnt some great stuff about visual impairments ( most of the pupils have some...

I went back to work yesterday. It was just training wasn’t actuall that bad. Lea...

LouLamb

•5 years ago

11 Replies

Update on Night Sweats & Itching

Hi lovely people. I’m just home from being admitted to hospital Sunday afternoon with chest pain. I have a heart condition called Coronary Artery Spasm - which...

Hi lovely people. I’m just home from being admitted to hospital Sunday afternoon...

Selwin2000

•5 years ago

19 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2019

Evening meal fear - and other problems.

Could I have Lupus?

A good endocrinologist

Anti thyroid peroxidase >1000

Apple cider vinegar

I have some questions concerning my health regarding suspected lupus! I’d love everybody’s views please!

First Rheumatologist appointment

Sudden agonising hip/groin pain. Can anyone relate or explain?

Dr. Gs 6 steps to reversing disease. Anyone doing it??

Melatonin and lupus

Suicidal thoughts out of the blue, could this be a flare up?

Anyone tried UVA1 therapy for lupus?

PIP assessment

Hydroxychloroquine and Eye test advice

Hair changes in

Lupus nephritis Grade IV...... Proliferative

Lupus rash?

Drug interactions - SSRIs and treatment of Lupus Nephritis (pred, hydroxychloroquine and MMF)

Heat intolerance

Visit to Welfare Rights Officer about PIP Tribunal

Reducing Hydroxycloroquine, any success stories?

Pembrokeshire Lupus Support Group - Meetings in 2019

Is it just me?

The lack of understanding of work colleagues

Looking ahead to summer - questions

What is your experience with Mysiotis?

Autopat369

More Questions

Back to work

Update on Night Sweats & Itching

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