North Devon Group

[misty14]

Hello everyone

Just to tell you of North Devon's Coffee and Chat Group meeting on Tuesday 8 th January 11 am at the Barnstaple Hotel( new venue). Braunton Road. Barnstaple EX31 1LE.

All welcome if you can come, will be great to see you. X

[Fennella02]

I’d love to come but the kids are still on holiday. I’ll have to wait for the Tiverton one. Hope you have a great day xx

[misty14 in reply to Fennella02]

Not to worry Clareb, they're late to go back to school. I can't go to this one either but thought I'd publicise it nevertheless !. How are you?. Did you hear from Rheumy with a better plan?. Hope 2019 is a healthy year for you. X

[Fennella02 in reply to misty14]

Hi Misty. The letter did eventually arrive. I was disappointed and angry initially although Hidden talked some sense into me before I went up in smoke!

Basically it summarised that we had gone through my symptoms in detail and that I had reported episodes of chest pain at ‘the worst possible level’ which was accompanied by ‘gagging’ and ‘coughing’. Actually, he misread his own writing because I gasp rather than gag and I certainly don’t cough through these episodes because the pain is too severe. The letter recounted our discussion of a possible re-trial of MTX although he thought that I might not tolerate it. Consequently, he planned to discuss my symptoms and photos at the Multi Disciplinary Clinic. Not what I had expected - I thought he was planning to discuss with his Rheumy colleagues, particularly the new lady rheumy.

I think he has probably forgotten to do any of the options as my appt was early October and I’ve heard nothing since. With the exception of sore salivary glands, I’m relatively ok at the moment so I’m not too bothered. I don’t have any follow up, as per usual . . . Xx

[misty14 in reply to Fennella02]

Oh Clareb , it's awful isn't it when clinic letters don't reflect the consultation and you feel so let down!. I'm sure twitchy would have said that the Multidiscilinary team would be made up of the Rheumy colleagues . I definitely think so and a letter to your Rheumy asking what progress has been made wouldn't go amiss either. I'm sure twitchy said this too!. Besides you need to know when your next follow up is!. We have to keep putting ourselves on their radar to get anywhere!. Xx