Weird headaches: Over the last 2 months or so I ve... - LUPUS UK

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Weird headaches

clova profile image
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Over the last 2 months or so I ve been experiencing pain at the roots of my hair and what feels like nerve pain under my scalp. I also have nerve pain in my arms and legs. About a year ago my rheumatologist said I have fibromyalgia as well as lupus ray Audi and sticky blood . Has anyone else experienced this and any advice on how to deal with it.

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clova profile image
clova
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pmrkitty profile image
pmrkitty

I have fibro/polymyalgia and have nerve pain all over my body, I never know where or when it will hit. I have not had it feel like it's in the roots, just on my scalp. That is usually the fibromyalgia. My Sister has the same with her fibro. I hope this helps you.

FlowerdownAnnC profile image
FlowerdownAnnC in reply topmrkitty

I’ve experienced this feeling- I describe it like nettle rash under my skin. It’s unpleasant rather than painful & is mainly isolated to my scalp / face. I have lupus but think I’ve also got fibromyalgia but never been diagnosed ( or even discussed it with anyone) I was prescribed amitryptiline a few years ago for shoulder pain / impingement & hey presto the odd scalp sensation has almost gone. I’ve kept on it even tho my shoulder is repaired now as it’s helped so many lupus / sleep issues too.

Good luck & hope you get some relief from it soon

Ann

clova profile image
clova in reply topmrkitty

Thanks for your reply I don't really understand the difference in symptoms between lupus and fibromyalgia

NRM10 profile image
NRM10

I find a gentle drainage massage every day keeps this pain at bay.

Look up lymp drainage techniques. Start very slowly and gently and build up. At first I could hardly touch my head, neck, upper arms and chest region but now I can do my drainage every day. If I miss a day I can feel it becoming painful again. It takes a few weeks to feel a difference. Hope this is helpful

clova profile image
clova in reply toNRM10

I will have a look at this thank you

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