Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,927 members • 28,255 posts

All posts for April 2018

Aquatics

Hot tub really helps me...only if I could live in it!!!

Dcharpia

•6 years ago

3 Replies

Thank u all for concern...I'm in USA..big issue

Thank u all for concern...I'm in USA..big issue there!!! Wish I could transplant over pond with u guys...sorry I was so crude..I needed to...

Thank u all for concern...I'm in USA..big issue there!!! Wish I could transplant...

Dcharpia

•6 years ago

1 Reply

Feels like fire ants on my feet!

For the past few months, everytime I shower I notice a tingling feeling on top of my feet that feels JUST like fire ants are biting me. I notice a little...

For the past few months, everytime I shower I notice a tingling feeling on top o...

Savvy123

•6 years ago

4 Replies

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Warrior

The ninja warrior is about to come out because I just had someone ask me if I was in a fight because my face is so red. Throat chop is what I have in mind!!...

The ninja warrior is about to come out because I just had someone ask me if I wa...

Macsimum_de

•6 years ago

11 Replies

Just learning

Hello all I have recently joined, I was diagnosed with SLE in the middle of last year, docs still not sussed my treatment so recently had rituximab drip -...

Hello all I have recently joined, I was diagnosed with SLE in the middle of las...

HelenL75

•6 years ago

5 Replies

Negative ANA tests

At 14, I first went to a rheumatologist to get an ANA test done, because all but 3 women in my family have lupus and and/or rheumatoid arthritis, and I had...

At 14, I first went to a rheumatologist to get an ANA test done, because all but...

0EmilyWanamaker0

•6 years ago

7 Replies

need a friend

hi my name is Nadine im 31 yrs old ..Since being diagnosed with sle for over 10 years now I've seen all my friends slowly seem less interested in me nothing...

hi my name is Nadine im 31 yrs old ..Since being diagnosed with sle for over 10 ...

SILENTl

•6 years ago

28 Replies

I'm important too!

Hello all, As some of you will have seen through previous posts, I am 26 and have had a 9 year battle to get answers and help. This week I went down to Swindon...

Hello all, As some of you will have seen through previous posts, I am 26 and hav...

Jessie_2014

•6 years ago

6 Replies

Top down or bottom up?

So, I have a neuro appointment today. No idea who requested it nor what it’s for but I’m going anyway as I’m not getting anywhere after 6 mths and who knows I...

So, I have a neuro appointment today. No idea who requested it nor what it’s for...

MsAndyIvy

•6 years ago

21 Replies

Ref Support Groups in West Sussex?

Hi there, Well my sister and I both have SLE and she is currently struggling big time.Would anyone know of any support groups in Sussex that could help her at...

Hi there, Well my sister and I both have SLE and she is currently struggling big...

MEDIT3

•6 years ago

2 Replies

Private blood tests

Hi all, I have lupus and I am experiencing a flare after my pregnancy 8 months ago. My consultant left and I am having issues in being seeing by a different...

Hi all, I have lupus and I am experiencing a flare after my pregnancy 8 months ...

Marta37

•6 years ago

5 Replies

Getting to know me

Hi every one. Ive just joined. Ive had luspus over 30 years. Ive also got other health issues has well. Ive not been to good lately. Ive just have to live...

Hi every one. Ive just joined. Ive had luspus over 30 years. Ive also got other ...

Mybe

•6 years ago

9 Replies

Tender scalp

Does anyone get a sore tender scalp in patches?wondering if it is related to Lupus. I never wear my hair up so it cant be because of that x

Does anyone get a sore tender scalp in patches?wondering if it is related to Lup...

Rach459

•6 years ago

13 Replies

Lupus (SLE) & anti-phospholipid antibodies - unexpected pregnancy and very worried if I'll be well enough

Hi, I have been unwell for 10 years and I was diagnosed with Lupus (SLE) & anti-phospholipid antibodies about 1.5 years ago. My lupus is fairly under control...

Hi, I have been unwell for 10 years and I was diagnosed with Lupus (SLE) & anti-...

Veethebee

•6 years ago

7 Replies

PIP Appeal Update

So my appeal went though in October 2017 - the paper work . I’ve been waiting for an appeal date since . I braved and rang up to ask about it ( hate phoning...

So my appeal went though in October 2017 - the paper work . I’ve been waiting fo...

LouLamb

•6 years ago

7 Replies

Newbie with drug question

Hello everyone, I am new to the group, also fairly new to Lupus (2 years) - perhaps. My rheumy thinks my new rheumatoid arthritis (20+ years) has been...

Hello everyone, I am new to the group, also fairly new to Lupus (2 years) - perh...

WordWeaver

•6 years ago

7 Replies

It upsets me when people notice I’m unwell

I’m with my son and his wife who’ve just had their first baby. The labour was long and my daughter in law had no proper sleep for 60 hours. My son came home...

I’m with my son and his wife who’ve just had their first baby. The labour was l...

HeKe

•6 years ago

4 Replies

Soooo exhausted still........!!!! Sorry!

Hi all, Need to just do something to try keep myself awake til my partner gets home in 2 1/2 hrs!!!! Feels like a lifetime at the mo! I’ve come over with the...

Hi all, Need to just do something to try keep myself awake til my partner gets ...

Sara_A

•6 years ago

5 Replies

Rituximab

Hi- has anyone received the Rituximab drip and what type of side effects have people been experiencing? I have had a cough for the last 4 weeks with sore...

Hi- has anyone received the Rituximab drip and what type of side effects have pe...

yasmine

•6 years ago

4 Replies

I am magic

The scene: my hallway, this morning. I am on the phone to my GP, discussing the results of my recent synacthen test. Me: Thank you for sending me the copy of...

The scene: my hallway, this morning. I am on the phone to my GP, discussing the ...

whisperit

•6 years ago

31 Replies

First appointment with a rheumatologist today !!!! A long road to victory but heading in the right direction

Yesterday I could barely move off my sofa due to extreme fatigue. Didn’t even want to answer the phone Eventually at 5.15pm I answered and it was the hospital...

Yesterday I could barely move off my sofa due to extreme fatigue. Didn’t even w...

Lisalou19

•6 years ago

3 Replies

Looking for a support Group?

Would anyone know of any support groups in the West Sussex Area? For LUPUS? Near Haywards Heath? Thank you!!

Would anyone know of any support groups in the West Sussex Area? For LUPUS? Near...

MEDIT3

•6 years ago

1 Reply

Stress and lupus

Never underestimate the effects of stress on your body. I have never in my life gone through stress or depression. Since a few months I have been intentionally...

Never underestimate the effects of stress on your body. I have never in my life ...

iffa28

•6 years ago

5 Replies

Stress and lupus

The hardest thing with lupus is to not be stressed as it can cause a flare up...how are you not meant to be stressed its scary to think that it can really...

The hardest thing with lupus is to not be stressed as it can cause a flare up......

Hidden

•6 years ago

21 Replies

Lupus versus Diabetes

It is really unfair that lupus patients can not get free medication while diabetics patients does. I have been diagnosed with lupus for over 7 years now and I...

It is really unfair that lupus patients can not get free medication while diabet...

Adlinejohn

•6 years ago

2 Replies

Unsure

I think I have lupus it started 2 weeks ago my eyes were sore, irritated and the bottom eyelids were swollen. Optician thought allergy conjunctivitis then few...

I think I have lupus it started 2 weeks ago my eyes were sore, irritated and the...

Heatherd1986

•6 years ago

1 Reply

I am losing the use of my left arm and noticed in the last threeemonths that my hands are having great difficulty holding

I have LupusSLE andinclude photograph of the fingers have had suggestion of Jacobs Lupus ,! Thank you in anticipation of ideas as I have never seen mention...

I have LupusSLE andinclude photograph of the fingers have had suggestion of Jac...

notoverthehill

•6 years ago

4 Replies

Swollen painful legs

Recently I have been getting swollen legs not just a bit but like tree trunks and the skin is very tight and walking very hard had anyone else had this

Recently I have been getting swollen legs not just a bit but like tree trunks an...

Dearne

•6 years ago

9 Replies

GI AND DIVERTICULITIS

I suffer with very bad GI and diverticulitis disease. Recently it has been very bad. Heartburn, felling bloated etc. Spoke to my lupus nurse hoping to see my...

I suffer with very bad GI and diverticulitis disease. Recently it has been very...

Tulipano

•6 years ago

2 Replies

Hydroxychloroquine for fatigue?

Hi folks, I am not diagnosed yet but I have some blood markers (positive ENA and anti-RO) for Lupus or Sjogren's. (more symptoms of Lupus but playing the...

Hi folks, I am not diagnosed yet but I have some blood markers (positive ENA and...

AmyG6500

•6 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2018

Aquatics

Thank u all for concern...I'm in USA..big issue

Feels like fire ants on my feet!

Warrior

Just learning

Negative ANA tests

need a friend

I'm important too!

Top down or bottom up?

Ref Support Groups in West Sussex?

Private blood tests

Getting to know me

Tender scalp

Lupus (SLE) & anti-phospholipid antibodies - unexpected pregnancy and very worried if I'll be well enough

PIP Appeal Update

Newbie with drug question

It upsets me when people notice I’m unwell

Soooo exhausted still........!!!! Sorry!

Rituximab

I am magic

First appointment with a rheumatologist today !!!! A long road to victory but heading in the right direction

Looking for a support Group?

Stress and lupus

Stress and lupus

Lupus versus Diabetes

Unsure

I am losing the use of my left arm and noticed in the last threeemonths that my hands are having great difficulty holding

Swollen painful legs

GI AND DIVERTICULITIS

Hydroxychloroquine for fatigue?

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