Hi folks, I am not diagnosed yet but I have some blood markers (positive ENA and anti-RO) for Lupus or Sjogren's. (more symptoms of Lupus but playing the waiting game)
When I last saw the rheumatologist he gave me three options, do nothing, try a steroid injection, try hydroxychloroquine. He gave me a steroid shot last time and it made no real difference.
My main problem is overwhelming fatigue (like I'm up for an hour or two between naps and I can't think straight even then).
Does anyone have experience with this medicine and fatigue?
I've had hair loss in the past, does this medicine cause hair loss? (something I've heard about anti-malarials)
How does it affect your digestion? I'm already on treatment for acid-reflux and B12 injections for pernicious anemia so MORE gut issues I could do without.
Any other suggestions?