I have recently joined, I was diagnosed with SLE in the middle of last year, docs still not sussed my treatment so recently had rituximab drip - been four weeks and not one sign of any improvement - I know doc said could take 2-16 weeks to work - patience is not a virtue I possess much of so was just wondering am positive experiences out there from this treatment?
Thanks
Written by
HelenL75
To view profiles and participate in discussions please or .
Hi Helen , i have Sjögrens and i was started on rituximab 2 years ago . After the first it did take the 12 weeks before I noticed a change, particularly in my lymph nodes which were all really enlarged. After the second set of infusions I found even more of an improvement. The infusions have made suich a difference to me in regards to the muscle and joint pain and exhaustion . I find i can tolerate the infusion better if the drip is slowed down. I hope that it starts to kick in soon and you get real benefits from the treatment. Best wishes 🌸
Welcome to the LUPUS UK community forum. I hope that you find this a helpful place for information and support.
I have heard quite a few positive experiences of rituximab in helping to alleviate lupus symptoms, but it does often take a while before it is effective, so unfortunately you may need to be patient a bit longer.
Lots of people have shared their experiences of this treatment on this site in the past. You can read some of these by taking a look here - healthunlocked.com/search/r...
Hello, I had 2 rituximab infusions end of January and started to really feel the benefit after about 8 weeks so hang on in there and hopefully you will feel the benefit soon too. It worked very well for my CNS lupus and also I have absolutely no pain at all! I didn’t realise my joints had hurt so much for so many years until the pain was gone! I still have some fatigue but it’s improving every week and I think some fatigue is a part of life for most of us regardless of treatment.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.