Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for April 2018

what I should do?help..

from somedays I m getting back pain in my surface side.and it feels like warm.what should I do to don't feel like warm??if there is any home remedies??please...

from somedays I m getting back pain in my surface side.and it feels like warm.wh...

ava97

•7 years ago

5 Replies

Occasional gasp for breath

Hi. Am a 69 years male and healthy. Keep myself fit. Have noticed I occasionally gasp for breath, especially when relaxed and watching TV, maybe slumped down...

Hi. Am a 69 years male and healthy. Keep myself fit. Have noticed I occasionall...

banjo08

•7 years ago

16 Replies

No help no financial no doctor no insurance..disability fight on and on forever

I think I'm just ready to surrender..I'm sick and tired of being sick and tired...nobody cares anyway

I think I'm just ready to surrender..I'm sick and tired of being sick and tired....

Dcharpia

•7 years ago

12 Replies

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Alternative to iodine contrast for CT colonograghy ?

Hi all, I urgently need to have a scan of abdomen and pelvic area, but I’m allergic to the iodine contrast dye that they inject. Has anyone had a similar...

Hi all, I urgently need to have a scan of abdomen and pelvic area, but I’m aller...

Foss

•7 years ago

16 Replies

Flu

I've had the flu since easter Sunday I can't seem to shift it tried all sorts of remedies as mentioned to me. Taken whole off work and it looks like it's back...

I've had the flu since easter Sunday I can't seem to shift it tried all sorts of...

Hidden

•7 years ago

10 Replies

BIO x4

Hi I have recently read about this BIO x4 on Facebook. Apparently it has everything in it to support a healthy gut and helps with food digestion supporting the...

Hi I have recently read about this BIO x4 on Facebook. Apparently it has everyth...

Hidden

•7 years ago

3 Replies

Does my daughter have ana negative neurophyschiatric SLE? Cyclophosamide side effects?

My 16 year old daughter has been ill since September 2016 following an insect bite which didn't disappear, before then she was a bright, happy, healthy and...

My 16 year old daughter has been ill since September 2016 following an insect bi...

Vickysmum

•7 years ago

16 Replies

Questions for Rheumatologists ?

Anyone have questions that they feel would be helpful to ask Dr Hakim? Brain seems to have gone, well just gone all together today. Any help would be most...

Anyone have questions that they feel would be helpful to ask Dr Hakim? Brain see...

Ladyuponthelake

•7 years ago

8 Replies

Difficulty swallowing!!!!! Own Sylvia mainly in the evenings . Feels like I’m going to suffocate

I post all my different flaws here as I go along, until I get a diagnosis. It’s like a diary but also reassuring to know that some of these symptoms are real....

I post all my different flaws here as I go along, until I get a diagnosis. It’s ...

Lisalou19

•7 years ago

27 Replies

Pro-biotic

Hi. Not posted in a while. I've been on mycophenolate since July. Rhumotologist is going try and take me off them at the end of the month. I'm hoping I can do...

Hi. Not posted in a while. I've been on mycophenolate since July. Rhumotologist ...

nutler

•7 years ago

2 Replies

Miserable

I’ve been getting dizzy spells and headache every day 😢

Mealfredo78

•7 years ago

5 Replies

April's Topic of the Month - Coping with Side Effects (We want to hear your tips and experiences)

Our Topic of the Month discussion for April is 'Coping with Side Effects'. It is common for someone with lupus to take many different medications over the...

Our Topic of the Month discussion for April is 'Coping with Side Effects'. It is...

Paul_Howard

Partner•7 years ago

18 Replies

To ignore or not to ignore?

When it comes to illness - charge through it or stop and recoup? Curious about what others have found in their own experiences. What do you find is more...

When it comes to illness - charge through it or stop and recoup? Curious about w...

maye1

•7 years ago

17 Replies

Feel Like a Hippo

Hi everyone, I am still fairly new to this site. So still finding my way. Feels like I'm blowing up like a balloon. I've been gaining wait but it feels so...

Hi everyone, I am still fairly new to this site. So still finding my way. Feels ...

Ladyuponthelake

•7 years ago

6 Replies

I'm new here....28 weeks pregnant with lupus

Hi - I've had lupus for quite a few years - I'm now 28.5 weeks pregnant with my first child. I was told on Wednesday that the baby's growth has slowed right...

Hi - I've had lupus for quite a few years - I'm now 28.5 weeks pregnant with my ...

Swifty77

•7 years ago

25 Replies

The cause of upper right hand breast ,I first had this pain on my back and the doctor says that it was bcos I lifted a kettle filled with w

Pains on the upper right hand of my breast

Jkosby

•7 years ago

1 Reply

NEW TO THIS

Hiya! I've literally just stumbled up this site whilst looking through the NHS website. I have been living with Lupus for 5 years this month. I'm looking...

Hiya! I've literally just stumbled up this site whilst looking through the NHS w...

Bjw95

•7 years ago

3 Replies

What about the AQP4 antibody? Just another twist in this sordid tale to diagnosis...

Welcome friends to the latest episode of "As the Stomach Turns". I've been to see Dr. P, my #1 sleuth and he surprised me with a rare disease and I am firmly...

Welcome friends to the latest episode of "As the Stomach Turns". I've been to s...

DRunnerchick

•7 years ago

Be the first to reply

Lupus diagnoses

Hi everyone today the Dr diagnosed me with lupus after my blood test came back positive. I have a couple of questions as the doctor is just training and didn't...

Hi everyone today the Dr diagnosed me with lupus after my blood test came back p...

Heidi2791

•7 years ago

14 Replies

Metal taste

Is it me or dose anybody else get a horrible metal taste in there mouth I can’t get rid of it

Is it me or dose anybody else get a horrible metal taste in there mouth I can’t ...

Ianrussell69

•7 years ago

5 Replies

Lupus Dizzy ess

I was diagnosed in November 2016 with lupus and rhumatoid arthritis. I have recently been suffering with dizziness and my Dr also things I may be developing...

I was diagnosed in November 2016 with lupus and rhumatoid arthritis. I have rece...

Clcp1

•7 years ago

2 Replies

For Twitchytoes and Fred

It’s covered with a wire mesh for grip 👍

weathervane

•7 years ago

5 Replies

March's Topic of the Month - Lupus and Pregnancy

Our blog article for March about lupus and pregnancy has now been published. https://www.lupusuk.org.uk/lupus-and-pregnancy/ Thank you so much to everybody who...

Our blog article for March about lupus and pregnancy has now been published. htt...

Paul_Howard

Partner•7 years ago

1 Reply

Kidney testing

Not sure if I feel asked this but please can you advise. I have high dsDNA and ANA. My doctor GP says I have lupus. I am worried about kidney health as I aget...

Not sure if I feel asked this but please can you advise. I have high dsDNA and A...

Gcart

•7 years ago

4 Replies

Vasculitis lupus

Does anybody have vasculitis affecting the brain causing neurological stmptoms ie pins and needles and leg cramps

Does anybody have vasculitis affecting the brain causing neurological stmptoms i...

kingsnorth

•7 years ago

21 Replies

SLE

My 11 year old son was diagnosed with SLE in November 2017. Currently he is taking Hydroxychoroquin, calcium D3, and asprin. He will be coming off...

My 11 year old son was diagnosed with SLE in November 2017. Currently he is tak...

amy209

•7 years ago

8 Replies

Hi all !

Just wanted to say Hi to everyone again I am back ,Iv been offline for a long time mainly to learn to live with all the illness’s and get my head in a better...

Just wanted to say Hi to everyone again I am back ,Iv been offline for a long ti...

JL1w

•7 years ago

2 Replies

SLE and ITP

Hi I have both the above immune disorders, I also have a few others, trust me to be greedy, I was wondering if anyone who has Itp feels exhausted when your...

Hi I have both the above immune disorders, I also have a few others, trust me to...

Manclady61

•7 years ago

Be the first to reply

Muscle spasms in legs

Ive had lupus and sjogrens for over 12 years l have been getting very painful muscle spasms in my legs it started 2 weeks ago with pins and needles im also...

Ive had lupus and sjogrens for over 12 years l have been getting very painful mu...

kingsnorth

•7 years ago

5 Replies

Oral/nasal sores

Hi there I don’t have a lupus diagnosis but have been getting a lot of symptoms. I get ulcers on my tongue and in my gums however not on the top of my mouth...

Hi there I don’t have a lupus diagnosis but have been getting a lot of symptoms....

alice2800

•7 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2018

what I should do?help..

Occasional gasp for breath

No help no financial no doctor no insurance..disability fight on and on forever

Alternative to iodine contrast for CT colonograghy ?

Flu

BIO x4

Does my daughter have ana negative neurophyschiatric SLE? Cyclophosamide side effects?

Questions for Rheumatologists ?

Difficulty swallowing!!!!! Own Sylvia mainly in the evenings . Feels like I’m going to suffocate

Pro-biotic

Miserable

April's Topic of the Month - Coping with Side Effects (We want to hear your tips and experiences)

To ignore or not to ignore?

Feel Like a Hippo

I'm new here....28 weeks pregnant with lupus

The cause of upper right hand breast ,I first had this pain on my back and the doctor says that it was bcos I lifted a kettle filled with w

NEW TO THIS

What about the AQP4 antibody? Just another twist in this sordid tale to diagnosis...

Lupus diagnoses

Metal taste

Lupus Dizzy ess

For Twitchytoes and Fred

March's Topic of the Month - Lupus and Pregnancy

Kidney testing

Vasculitis lupus

SLE

Hi all !

SLE and ITP

Muscle spasms in legs

Oral/nasal sores

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