Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,927 members • 28,255 posts

All posts for April 2018

DSDNA

Can you have positive DSDNA and not have Lupus also can DSDNA go from positive (literally off the chart) to negative thanks

Can you have positive DSDNA and not have Lupus also can DSDNA go from positive ...

Dearne

•6 years ago

1 Reply

Big Bad Flare!

Hello Everybody, I’ve had the mother of all flares for nearly 3 weeks now and I am more or less just over the worst of it. I really felt like my world was...

Hello Everybody, I’ve had the mother of all flares for nearly 3 weeks now and I ...

Wolf_1

•6 years ago

1 Reply

Painful lymph nodes/tissue?

Does anyone else have painful lymph nodes and tissue in their stomach during flare ups?? Please tell me I'm not alone...

Does anyone else have painful lymph nodes and tissue in their stomach during fla...

Museumgirl

•6 years ago

3 Replies

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ARE SKIN BIOPSIES ALWAYS RELIABLE?

Regarding lesion biopsies, would the timing of the punch biopsy be of any relevance in whether lupus is detectable? If the lesion/s have almost faded by the...

Regarding lesion biopsies, would the timing of the punch biopsy be of any releva...

Poppet2308

•6 years ago

4 Replies

Lichen planus or Lupus?

Can lupus lesions on the scalp mimic lichen planus - known as lichen planopilaris when it causes scarring alopecia? I'm finding it an impossibility to get a...

Can lupus lesions on the scalp mimic lichen planus - known as lichen planopilari...

Poppet2308

•6 years ago

4 Replies

Update - Started Ciclosporin

Good evening! Sorry I haven’t posted for a while. I started Ciclosporin on Wednesday - and so far I feel achey, a tad unwell, and have abit of a cough. I’m not...

Good evening! Sorry I haven’t posted for a while. I started Ciclosporin on Wedne...

Cellul

•6 years ago

9 Replies

Fatigue and support

Hi all lupies Well I have just read again an article again which I think will be of value to lupies everywhere ....the article is called “but you don’t sick...

Hi all lupies Well I have just read again an article again which I think will b...

MEDIT3

•6 years ago

5 Replies

Just a bit more about me.

Ive all so got arthrtisi oestoposis artrtisi rhematioid arthtis raynaauds syndrome carpaltunnel syndrome anxiey and food allergies. One of them be chocolale....

Ive all so got arthrtisi oestoposis artrtisi rhematioid arthtis raynaauds syndro...

Mybe

•6 years ago

1 Reply

Finally a referral appointment, what to ask?

Thanks to the joys of the NHS (I love it really, just don't understand how useless they can be sometimes) I finally have an appointment this week to see a...

Thanks to the joys of the NHS (I love it really, just don't understand how usele...

Hidden

•6 years ago

1 Reply

Diverticulitis

Hi I have bad diverticulitis disease, at the moment I am having a bad flare up. Currently taking 2 types of antibiotics. I am wondering if is common in lupus....

Hi I have bad diverticulitis disease, at the moment I am having a bad flare up. ...

Tulipano

•6 years ago

1 Reply

Where's the daftest place you've fallen asleep?

I went to ride my horse on Friday but was overwhelmed with tiredness. The yard girl found me asleep on an upturned bucket 😂. Needless to say, my horse got a...

I went to ride my horse on Friday but was overwhelmed with tiredness. The yard ...

HeKe

•6 years ago

7 Replies

Lupus depression

Been suffering through really bad lupus flare ups for the past few weeks. Just recently the depression has hit me hard. Any advice?? I am desperate to stop...

Been suffering through really bad lupus flare ups for the past few weeks. Just r...

Museumgirl

•6 years ago

22 Replies

New to lupus - bad facial rash

About 7 weeks ago I started with a small patch of rash on my cheek, since then it's spread over my entire face. It's not the butterfly. I also started to...

About 7 weeks ago I started with a small patch of rash on my cheek, since then i...

Lynderland

•6 years ago

31 Replies

New to Lupus and need advise

Hi All, I am 32 and have been recently been diagnosed with Lupus. I am still in denial about this and haven't fully accepted it and keep holding out that the...

Hi All, I am 32 and have been recently been diagnosed with Lupus. I am still in ...

Jacpat

•6 years ago

19 Replies

Eating Problems

I've realised when I'm sick or when the rain is about to fall I find it very hard to eat. When I do eat and feel extremely full, I have the urge to puke and...

I've realised when I'm sick or when the rain is about to fall I find it very har...

Stephanie0210

•6 years ago

3 Replies

What symptoms does sunlight cause in lupus folks ?

Hi - I’ve yet to have a lupus diagnosis . One of the reasons Lupus was ruled out in my case was lack of photosenstivity . (Although I use to have sunlight...

Hi - I’ve yet to have a lupus diagnosis . One of the reasons Lupus was ruled out...

Angelamarston1963

•6 years ago

11 Replies

Mouth full of ulcers and sores ☹️

Yesterday I woke up with these painful sores and ulcers in my mouth and on my tongue. It filled me with dread as last time I had this, it was the start of a...

Yesterday I woke up with these painful sores and ulcers in my mouth and on my to...

lisa___s

•6 years ago

5 Replies

What is life like once a diagnosis has been reached and on medication ?

Past few days have been awful for me. I think I’ve suffered so many years and tried so many different things to make myself feel better I think I’ve finally...

Past few days have been awful for me. I think I’ve suffered so many years and t...

Lisalou19

•6 years ago

10 Replies

Stressed!

Why can't the people close to me just understand I cannot do everything yes I may not look ill but I cannot keep pushing myself to please others!

Why can't the people close to me just understand I cannot do everything yes I ma...

Hidden

•6 years ago

7 Replies

Fatigue book...can’t stay awake to read it!! Ha ha!

I was recently recommended this book as I struggle with fatigue quite badly. It’s arrived and after 10 pages I can barely stay awake to read it! This isn’t...

I was recently recommended this book as I struggle with fatigue quite badly. It’...

Sara_A

•6 years ago

6 Replies

Chicken pox - when is it safe to visit?

Our 3 year old grandson has just come out in spots and their local pharmacist has said it’s probably chickenpox. I have SLE and APS and take immunosuppressants...

Our 3 year old grandson has just come out in spots and their local pharmacist ha...

Rockhopper

•6 years ago

14 Replies

Having a second opinion soon

Hi, I have been seeing my rheumatologist for over 10 years; I have Raynaud's, scleroderma, connective tissue disease, chronic pain, etc. For the last three...

Hi, I have been seeing my rheumatologist for over 10 years; I have Raynaud's, sc...

sublime

•6 years ago

4 Replies

Lupus rash or something else?

Is this a lupus rash? It's moving up my arms and now on my neck

Kmeyer

•6 years ago

15 Replies

Private rheumatologist - is a GP referral necessary?

I've decided that enough is enough and to seek out a private rheumatologist. Will I still need a GP referral in order to get an appointment with the...

I've decided that enough is enough and to seek out a private rheumatologist. Wil...

Poppet2308

•6 years ago

33 Replies

Anyone broken bones without injury?

Hi. Anyone broken bones without injury? In Early February I woke with a very sore wrist and something protruding from it. Went to my GP as I was not allowed...

Hi. Anyone broken bones without injury? In Early February I woke with a very so...

Nickymck

•6 years ago

10 Replies

Chester, Cheshire Lupus Group?

Hello. Are there any Lupus support groups in the Chester, Cheshire area? Thank you

Hello. Are there any Lupus support groups in the Chester, Cheshire area? Thank ...

Poppet2308

•6 years ago

1 Reply

Query re Rituximab and being licensed treatment for lupus?

This is a query for one of my support group members. She has given me permission to post this, as we can’t solve her situation ourselves. So she has lupus and...

This is a query for one of my support group members. She has given me permission...

Wendy39

•6 years ago

52 Replies

My employer is great!

I posted a few weeks ago about an adjustment proposal I put forward at work to change some of my roles and responsibilities to suit my health. I requested to...

I posted a few weeks ago about an adjustment proposal I put forward at work to c...

eescvc

•6 years ago

10 Replies

Charlie horses and twitching

I have lupus and sjogrens for over years and this month I have been getting really bad muscle cramps in my legs along with muscle twitching as this is new to...

I have lupus and sjogrens for over years and this month I have been getting real...

kingsnorth43

•6 years ago

4 Replies

Azathioprine 50mg (BD) and folic acid 5mg

Hi all, I got SLE and RA. I’ve been taking the following medications for the past 3 years as I have been trying to get pregnant without any success. Is it ok...

Hi all, I got SLE and RA. I’ve been taking the following medications for the pas...

Sezvic

•6 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2018

DSDNA

Big Bad Flare!

Painful lymph nodes/tissue?

ARE SKIN BIOPSIES ALWAYS RELIABLE?

Lichen planus or Lupus?

Update - Started Ciclosporin

Fatigue and support

Just a bit more about me.

Finally a referral appointment, what to ask?

Diverticulitis

Where's the daftest place you've fallen asleep?

Lupus depression

New to lupus - bad facial rash

New to Lupus and need advise

Eating Problems

What symptoms does sunlight cause in lupus folks ?

Mouth full of ulcers and sores ☹️

What is life like once a diagnosis has been reached and on medication ?

Stressed!

Fatigue book...can’t stay awake to read it!! Ha ha!

Chicken pox - when is it safe to visit?

Having a second opinion soon

Lupus rash or something else?

Private rheumatologist - is a GP referral necessary?

Anyone broken bones without injury?

Chester, Cheshire Lupus Group?

Query re Rituximab and being licensed treatment for lupus?

My employer is great!

Charlie horses and twitching

Azathioprine 50mg (BD) and folic acid 5mg

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