Migraines

[MissFG]

Any ideas what could help me with my migraines?

I’ve tried everything and although I can function my migraine recently has lasted over 4 weeks and is not letting up.

Of all my meds dispersible aspirin and paracetamol together work to ease it for a few hours, ice pack imigran nasal inhaler pills etc but I can’t shake it off.

I’m seeing my rheumy Thursday and advice on what I can say to him as I can’t cope Witt this continuing and I haven’t a clue why it won’t go? 😰

[MissFG]

Thank you that’s a huge help!

I remember seeing one blood test result which was slightly over range and it was about sticky blood but tbh the tests that’s I had access to we’re from my Endo nearly 2 years ago.

I’ll discuss this will my rhuemy and whatever happens I definitely need a referral to the headache clinic which I didn’t know even exited only heard of a pain clinic.

[Melba1 in reply to MissFG]

Oh that’s horrible isn’t it? I’ve become ‘stuck’ in a migraine before. Sometimes if you take too many painkillers to try and get rid of it (even just a few days) you can then get a headache from that - I had to stop all painkillers for a week for a week which was awful but the migraine did then get better.

Have you looked at your diet too? I was craving chocolate and Diet Coke (thought they were a cure when I was getting a migraine 🙄) but both make it much worse.

I find migraleve works well but sometimes they can be part of an active lupus flare for me so a cure is achieved through steroids and lupus meds but sometimes it’s just a migraine on its own. Difficult to know which though - I hope you get some help because it’s miserable having a permanent bad headache. Do you get all the neurological symptoms too - the pins and needles, disorientation etc?

X

[MissFG in reply to Melba1]

I’m carefully watching my diet and pretty strict anyway.

Don’t feel so bad today so won’t put my hair up as it seems to be a trigger or at least makes it a lot worse as they’re not easing up. Only aspirin seems to ease them temporarily atm.

I’ve been under a neurologist years ago and he said once a migraine suffered always a migraine sufferer. My symptoms vary depending on how severe they are but feels more part of a flare

[Chanpreet_Walia LUPUS UK]

Hi MissFG,

We published a blog article on 'coping with headaches and migraines' which I hope you will find useful: lupusuk.org.uk/headaches-an...

[JanJan63]

Hi MissFG

Sorry to hear you suffer with migraines. I used to get them nearly every week and they were awful, I would always vomit and they would last up to a week. I even had a MRI scan as the rheumatologist thought the SLE was messing with my brain. It turned out to be my diet like someone mentioned. I cut out chocolate, cheese, oranges and ALL artificial sweeteners like aspartame. Another terrible ingredient to avoid is MSG, a chemical food additive, it causes my joints to swell and brings on a migraine. I very rarely get migraines now I know. Good Luck.

[MissFG in reply to JanJan63]

I’m on the paleo diet so pretty strict already not sure there is much more I can cut out without having an adverse affect on me