Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,933 members • 28,260 posts

All posts for November 2017

symptons / illness

I was diagnosed with discoid lupus 12 months ago, although I have seen my consultant 3 times since the diagnosis, I am suffering with lethargy, aches, general...

I was diagnosed with discoid lupus 12 months ago, although I have seen my consul...

chloelm23

•7 years ago

3 Replies

Heliobacter

Is heliobacter and sle linked, if so what's the treatment plz

luupysue

•7 years ago

3 Replies

Different dosage of plaquenil on alternate days

HI everyone, recently saw my rheumatologist and she stated there are new guidelines for Plaquenil. I have been on plaquenil for 8 years , started with 400 mg a...

HI everyone, recently saw my rheumatologist and she stated there are new guideli...

Jances13

•7 years ago

13 Replies

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Under Water

Hi Guys, For the last couple of weeks I have had blocked ears. When I speak it sounds like I am under water. I keep swallowing and trying to clear them but as...

Hi Guys, For the last couple of weeks I have had blocked ears. When I speak it s...

Liberton

•7 years ago

6 Replies

Hi, I'm new here and need some help please.

I was told I have sjorgrens due to high ro and la, but I haven't had any other tests done. Is this normal ?

I was told I have sjorgrens due to high ro and la, but I haven't had any other t...

Nikkipool

•7 years ago

24 Replies

memory problems.

recently my e.s.a. benefit was stopped and forced to go on e.s.a. I was sent on a course to start online. I found I was reading sentences over a d over again...

recently my e.s.a. benefit was stopped and forced to go on e.s.a. I was sent on ...

Mandypandy1969

•7 years ago

5 Replies

Lupus and memory problems.

Has anyone experienced terrible memory loss,im getting really worried as feel its getting worse and i feel so stupid at times,do silly things and my mind goes...

Has anyone experienced terrible memory loss,im getting really worried as feel it...

Jeffscott69

•7 years ago

9 Replies

St Thomas update

I’m only going home!!!!! After 10 days. I’ve got shrinking lung syndrome, hemi diaphragm, fibrosis of lungs, Pleuritis, abnormal bone marrow in keeping with...

I’m only going home!!!!! After 10 days. I’ve got shrinking lung syndrome, hemi d...

Wolf1

•7 years ago

5 Replies

does this look like a lupus rash?

this rash has just appeared tonight and wondered if it looks like a typical lupus rash? doesn't feel sore but is hot to touch

this rash has just appeared tonight and wondered if it looks like a typical lupu...

stephaniejpm

•7 years ago

8 Replies

Medication

As I now have full time job and am 18 I'll have to pay for my prescriptions. Can anyone tell me - am I charged per item - or per prescription Is there any...

As I now have full time job and am 18 I'll have to pay for my prescriptions. Ca...

LouLamb

•7 years ago

30 Replies

Is it possible?

Hello everybody I wonder if anybody could help me. I have a burning question, and I thought I’d ask you guys first. My question is this: Is it possible to...

Hello everybody I wonder if anybody could help me. I have a burning question, an...

Tisket

•7 years ago

14 Replies

ANXIETY!

Hi, ive had really bad anxiety since i had a really bad life threatening flare with lupus 4 years ago. I was treated with very high dose steroids and had...

Hi, ive had really bad anxiety since i had a really bad life threatening flare w...

Rach459

•7 years ago

8 Replies

Wearing a sunshade?

Thought you might find this sun protection article interesting:...

PMRpro

•7 years ago

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Butterfly Rash treatment

Hi all, diagnosed with Lupus 3 months ago, had 2 months on steroids and now on another medication, the name of which I cannot say never mind spell!! My problem...

Hi all, diagnosed with Lupus 3 months ago, had 2 months on steroids and now on a...

netherthong

•7 years ago

5 Replies

Constant sore throat

Hi everyone, I seem to have a constant sore throat except the doctors say it is fine? It feels like an ulcer is way down and swallowing is quite sore....

Hi everyone, I seem to have a constant sore throat except the doctors say it is ...

Hidden

•7 years ago

4 Replies

Random grasp for air

Hi everyone I was just wondering any body out There experiencing random grasping for breath? A little bit of back ground my X-ray and CT scan shows lung cavity...

Hi everyone I was just wondering any body out There experiencing random grasping...

ceceliac10

•7 years ago

11 Replies

CBD and Lupus

Anyone using CBD? If so, how's it going?

BillScotland

•7 years ago

3 Replies

Barefoot Because Of Lupus

I am having a another flare, the skin on my feet is so thin that shoes rub blisters and or raw spots. My doctors have told me and even given me a statement to...

I am having a another flare, the skin on my feet is so thin that shoes rub blist...

Tiras

•7 years ago

12 Replies

Hello everyone

I want to thank Bacardibabe76 for sending me a message, and thinking of me. It has been almost a year since I posted anything. I had a rough time when Dad...

I want to thank Bacardibabe76 for sending me a message, and thinking of me. It ...

Tiras

•7 years ago

12 Replies

Droopy Eye

Hey guys, Just wondering if anyone has had any experience of a droopy eye? Mine seems to come and go but has been getting a lot worse recently. I also think...

Hey guys, Just wondering if anyone has had any experience of a droopy eye? Mine...

Unf4bul0us

•7 years ago

16 Replies

Possible lupus diagnosis

I’ve been having a variety of symptoms for years now but things started getting worse about a year ago. From head to toe my symptoms can vary from any...

I’ve been having a variety of symptoms for years now but things started getting ...

Jacbar

•7 years ago

6 Replies

Sometimes you're caught off guard

My niece had a much longed for baby a few months ago. Family dynamics are a little fraught as she's ex's niece and I was cut dead by his family at the divorce....

My niece had a much longed for baby a few months ago. Family dynamics are a litt...

Lupiknits

•7 years ago

9 Replies

Hospital admission and balls of mucus.

Hi. I was taken into hospital on Friday night with a fever of 41, vomiting along with aches and pains. I was discharged the next day however I have been...

Hi. I was taken into hospital on Friday night with a fever of 41, vomiting alon...

imzi

•7 years ago

11 Replies

do I have lupus?

I have had many symptoms such as chest pains, butterfly rash sore joints (mostly around my ankles and inflammation in my feet). My face also swells up and I...

I have had many symptoms such as chest pains, butterfly rash sore joints (mostly...

stephaniejpm

•7 years ago

2 Replies

Tremors, twitching, neurological symptoms

I am officially diagnosed as uctd, but it is called lupus and sjogrens. I have an ana of 1/1280 and a positive anti ro. It's been fairly stable, I also have...

I am officially diagnosed as uctd, but it is called lupus and sjogrens. I have a...

Kangamum

•7 years ago

6 Replies

PUS FILLED LUMP ON LIP

Hi all, hope you are having a healthy weekend. I have woken up this morning to find a big lump on the bottom of my lip, it wasn't sore but when I started...

Hi all, hope you are having a healthy weekend. I have woken up this morning to f...

llewelyn2405

•7 years ago

11 Replies

Is Malar type rash in Lupus a permanent feature ?

Hi all I have recently been diagnosed with Fibryomylgia but have realised I have several symtoms that are in common with SLE. In particular this year I have...

Hi all I have recently been diagnosed with Fibryomylgia but have realised I hav...

Ziggyplayedguitar

•7 years ago

4 Replies

Seeking a cure!

Hi I'm Laura, dx with lupus and sjogrens in 2007. Trying to stay informed...

lad61

•7 years ago

4 Replies

Why not join Lupus UK for £10

I have always supported the RNLI, if your boat is sinking off Llandudno they don’t ask for your membership card they rescue everyone. If someone requires help...

I have always supported the RNLI, if your boat is sinking off Llandudno they don...

Kevin53

•7 years ago

7 Replies

Medication

Hi I have just started my steroids and immunesopressant. How long does it take to feel better? Xx

Hi I have just started my steroids and immunesopressant. How long does it take ...

Tulipano

•7 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2017

symptons / illness

Heliobacter

Different dosage of plaquenil on alternate days

Under Water

Hi, I'm new here and need some help please.

memory problems.

Lupus and memory problems.

St Thomas update

does this look like a lupus rash?

Medication

Is it possible?

ANXIETY!

Wearing a sunshade?

Butterfly Rash treatment

Constant sore throat

Random grasp for air

CBD and Lupus

Barefoot Because Of Lupus

Hello everyone

Droopy Eye

Possible lupus diagnosis

Sometimes you're caught off guard

Hospital admission and balls of mucus.

do I have lupus?

Tremors, twitching, neurological symptoms

PUS FILLED LUMP ON LIP

Is Malar type rash in Lupus a permanent feature ?

Seeking a cure!

Why not join Lupus UK for £10

Medication

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