Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,918 members • 28,239 posts

All posts for November 2017

Prednisolone withdrawal

I'm new here. I've had Lupus for 17 years but wasn't diagnosed as lupus till 2011. I've had all the topsy turvy of medications and all. Finally on HCQS 400mg...

I'm new here. I've had Lupus for 17 years but wasn't diagnosed as lupus till 201...

Khadibuh

•7 years ago

18 Replies

Hydroxychloroquine and my menstrual cycle

Hello Lupus UK members and followers, I am somewhat new to this posting thing.. I am 30 years and was diagnosed with Lupus last year however, have been...

Hello Lupus UK members and followers, I am somewhat new to this posting thing.. ...

Kev98

•7 years ago

1 Reply

So confused and frustrated

Hello everyone, My blood test results were positive (srp antibodies and cq1 and slightly positive ana) so the consultant decided to do a kidney biopsy and emg...

Hello everyone, My blood test results were positive (srp antibodies and cq1 and...

Tulipano

•7 years ago

5 Replies

Want to take advantage of all our features? Just log in!

New to group just home from hospital last night

Does anyone have rash on palms during a flare

Agasga

•7 years ago

3 Replies

Another St Thomas update

Hi. Day 7... results of CT scan of lungs shows pulmonary hypertension and fibrosis 😞😢. Bloody lupus and mixed connective tissue disease. Just had an hour...

Hi. Day 7... results of CT scan of lungs shows pulmonary hypertension and fibros...

Wolf1

•7 years ago

12 Replies

my confused personality

day by day i m lacking my confidance... i dnt know why but i get scared of long conversation... i scared of crowd nd i start avoiding ppl... even my reports...

day by day i m lacking my confidance... i dnt know why but i get scared of long ...

Zarick

•7 years ago

10 Replies

Chronic Illness App - Need Feedback!

Hey everyone! I'm doing a project at university, it's a conceptual project about an app specifically designed to help people with chronic illnesses. I would...

Hey everyone! I'm doing a project at university, it's a conceptual project about...

mangotea

•7 years ago

4 Replies

Fed up and low

Just having a bad day today, I feel like I'm being bombarded by a large number of new symptoms and I don't know if they are all lupus and I'm struggling to...

Just having a bad day today, I feel like I'm being bombarded by a large number o...

MelAlice

•7 years ago

5 Replies

Diagnosis for RF positive + anti-CCP positive + ANCA positive + Positive MPO .

Hi, I wondered if anyone here had RF positive + anti-CCP positive + ANCA positive + Positive MPO . I am struggling to get a formal diagnosis. I have Autoimmune...

Hi, I wondered if anyone here had RF positive + anti-CCP positive + ANCA positiv...

Lisam19

•7 years ago

1 Reply

Lupus and hormones

Hi all Well my ladytime is a week away and already all of my symptoms are getting worse. I know that my hormones have a big part to play with my SLE which is...

Hi all Well my ladytime is a week away and already all of my symptoms are gettin...

sarahalice

•7 years ago

12 Replies

Sjogren's and dehydration

Hi all, I am new to this fourm. Am not sure where exactly to ask my question, so I'll start here. Does anyone have sjogren's? I am newly diagnosed with UCTD or...

Hi all, I am new to this fourm. Am not sure where exactly to ask my question, so...

krazy-girl

•7 years ago

1 Reply

Lupus and fibromyalgia

I am seriously wondering if I have lupus and fibromyalgia after reading up on both of the diseases. I don't get joint pain as such but aching painful neck,...

I am seriously wondering if I have lupus and fibromyalgia after reading up on bo...

Mandypandy1969

•7 years ago

12 Replies

Hello & catchup

Hi everyone, I’ve been off for a while, so I’m sorry, I’ll have to do a bit of catching up. I had my knee op and I’m still off work. I don’t think my line...

Hi everyone, I’ve been off for a while, so I’m sorry, I’ll have to do a bit of c...

Rubylu

•7 years ago

1 Reply

Weird bruising on finger and toe update.......

Well I finally got an appointment with the doc, I told her about my chest pains and the regular bruising on my toes etc She was more concerned about the chest...

Well I finally got an appointment with the doc, I told her about my chest pains ...

tiredmum

•7 years ago

2 Replies

Anti Ro Antibodies

Hey folks I saw my haematolgist today & he informed me I have anti ro antibodies, I was hoping anyone could tell me how this is going to affect me & my unborn...

Hey folks I saw my haematolgist today & he informed me I have anti ro antibodies...

Lollz

•7 years ago

4 Replies

in pain and so fatigued. pain killers useless.

I was on naproxen twice a day along with paracetamol which the naproxen had no effect anymore. I was told by my g.p. that naproxen is the strongest anti...

I was on naproxen twice a day along with paracetamol which the naproxen had no e...

Mandypandy1969

•7 years ago

28 Replies

CT contrast scan of abdomen & pelvis - (Allergic)

Hi all, Yesterday I had a CT contrast scan booked in for 8.30am. When I got there I handed in my questionnaire & was given a 1 Litre bottle of water...

Hi all, Yesterday I had a CT contrast scan booked in for 8.30am. When I got t...

LauraMk30

•7 years ago

1 Reply

Possible Lupus?

Hi everyone, I have Rheumatoid Arthritis and have had some issues over the last two years. I have had gastro issues and problems with my skin (rashes on my...

Hi everyone, I have Rheumatoid Arthritis and have had some issues over the last ...

pancake123

•7 years ago

14 Replies

Update at St Thomas

Hi There. Day 5 in the .. Albert Ward. Eventually had mri lower limbs, echo, lung function tests yesterday. Awaiting cardiac mri and nerve tests. I’m getting...

Hi There. Day 5 in the .. Albert Ward. Eventually had mri lower limbs, echo, lun...

Wolf1

•7 years ago

6 Replies

Can anyone with SLE do intense exercise?

My son Fin, diagnosed and hospitalised in September with severe lupus nephritis is attempting to get to the fitness level he was at before he became ill. He...

My son Fin, diagnosed and hospitalised in September with severe lupus nephritis ...

Deegraham

•7 years ago

8 Replies

please advise

Hello lovely people, I wonder if I can ask for your opinions about my situation as the doctors seems to be confused.However, it doesn't help as I haven't been...

Hello lovely people, I wonder if I can ask for your opinions about my situation ...

Svete

•7 years ago

5 Replies

What Holidays are for 😶

I am not here today to complain about anything, just to pass on what I did this past week, because I know everyone wants to know, lol. About five months ago,...

I am not here today to complain about anything, just to pass on what I did this ...

Chapter

•7 years ago

5 Replies

Last minute meds, hoooray!

I was trying to get fresh prescriptions for meds last week, but the electronic system wouldn't behave and in a fog I didn't go back to it often enough, then I...

I was trying to get fresh prescriptions for meds last week, but the electronic s...

Lupiknits

•7 years ago

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A story for friends, family and others

I posted this experience of my illness on the mighty website that lets people publish experiences and thoughts of their illness. Hasn’t been published or...

I posted this experience of my illness on the mighty website that lets people pu...

Jess_doyle

•7 years ago

4 Replies

ANA used to be 1:1320 but is now negative. Thoughts?

Hi. I'm new here. Hope that explains the slightly long intro :). In 2014, my ANA was ~1:1320. I was diagnosed with ITP and SLE; I was in the ER 3 times and was...

Hi. I'm new here. Hope that explains the slightly long intro :). In 2014, my ANA...

Newla

•7 years ago

6 Replies

Overcoming fatigue on azathioprine

Hi all I’ve now been on azathioprine for 3 weeks and am starting to feel really tired 💤 any advice on how to overcome/deal with this? Thanks for any advice!...

Hi all I’ve now been on azathioprine for 3 weeks and am starting to feel really ...

Kelihunt41

•7 years ago

3 Replies

Anyone with SLE have daily fatigue and dizziness?

Thanks for your imput ...

jennyall12

•7 years ago

12 Replies

flare?

SLE diagnosed years ago. Started feeling more ill than normal a few months ago. Fatigued, in pain and now this weekend vertigo, blurred vision,headaches. Got...

SLE diagnosed years ago. Started feeling more ill than normal a few months ago. ...

mainlyconfused

•7 years ago

3 Replies

It never rains but it pours !

Hi ....l have just been called back for more films after a mammogram I had last week. This was 16 years after I had a mastectomy of my right breast. I am now...

Hi ....l have just been called back for more films after a mammogram I had last ...

bones-bones

•7 years ago

12 Replies

MMF Fragile stomach

Hello All, I have a bad belly- constipation/ diarrhoea and feel like I am about the be sick but most of the time not actually sick. My GP thinks this could...

Hello All, I have a bad belly- constipation/ diarrhoea and feel like I am about...

HannahLupus

•7 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2017

Prednisolone withdrawal

Hydroxychloroquine and my menstrual cycle

So confused and frustrated

New to group just home from hospital last night

Another St Thomas update

my confused personality

Chronic Illness App - Need Feedback!

Fed up and low

Diagnosis for RF positive + anti-CCP positive + ANCA positive + Positive MPO .

Lupus and hormones

Sjogren's and dehydration

Lupus and fibromyalgia

Hello & catchup

Weird bruising on finger and toe update.......

Anti Ro Antibodies

in pain and so fatigued. pain killers useless.

CT contrast scan of abdomen & pelvis - (Allergic)

Possible Lupus?

Update at St Thomas

Can anyone with SLE do intense exercise?

please advise

What Holidays are for 😶

Last minute meds, hoooray!

A story for friends, family and others

ANA used to be 1:1320 but is now negative. Thoughts?

Overcoming fatigue on azathioprine

Anyone with SLE have daily fatigue and dizziness?

flare?

It never rains but it pours !

MMF Fragile stomach

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