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do I have lupus?

I have had many symptoms such as chest pains, butterfly rash sore joints (mostly around my ankles and inflammation in my feet). My face also swells up and I feel fatigued everyday at the moment. When i was admitted to hospital last year they done a full blood count to check for signs of lupus in which they said was clear, after a year of having more symptoms and hospital admissions, I visited my GP who done another full blood count and said my liver function was high and has sent me to see a rheumatologist. It seems I have all the typical symptoms but no diagnosis can be made? does this mean I do not have lupus? how long does it usually take for the specialists to diagnose lupus? so confused and frustrated with it all

2 Replies

Hello stephaniejpm,

Difficult times for you :( The process of getting diagnosed seems to be a prolonged and frustrating one for most people on here - I guess lupus and its related conditions present in so many different ways it's hard to pin down. I'd recommend reading the LupusUK leaflet on symptoms and diagnosis here. The other leaflets on the "Home" page are also very helpful. lupusuk.org.uk/wp-content/u...

Keep us posted on how things go x


Hi Stephaniejpm,

Welcome to the LUPUS UK HealthUnlocked Community!

It currently takes an average of seven years to diagnose lupus; there are specific tests and criteria that are required in order to make a diagnosis of lupus which you can read about here: lupusuk.org.uk/getting-diag...

Joint/muscle aches and pains, rashes and extreme fatigue are all common symptoms associated with lupus. To find out what other symptoms are associated with lupus, you can download or request our free information pack here: lupusuk.org.uk/request-info...

Skin involvement is common in lupus, with 60-70% of people with lupus reporting some skin problem. Rashes can be induced by sunlight as well as other factors which are discussed in our ‘Lupus and the Skin’ guide; lupusuk.org.uk/wp-content/u...

90% to 95% of people with lupus will experience muscle and/or joint pain. We published an article on our blog about pain management which contains helpful tips and information: lupusuk.org.uk/pain-managem...

If you would like someone to speak to, we can provide you with LUPUS UK contacts who you can chat with over the telephone. These contacts are volunteers who mostly have lupus themselves; they are not medically trained but are there to offer support and understanding. If you would like a contact to speak to, you can email me at chanpreet@lupusuk.org.uk .

Please keep us updated, wishing you all the best.


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