I have recently been diagnosed with Fibryomylgia but have realised I have several symtoms that are in common with SLE. In particular this year I have started to experience very significant hair loss and some unusual symptoms involving skin including:
Malar type rash? Took me a while to suss that this was triggered by ( although in retrospect I don't know why) being in an uncomfortably warm environment that I cannot control ie ( not decent to remove more clothes , unable to open windows or leave building whist awaiting appointment) I experience what looks like a typical malar rash which persists for several hours with skin noticeably warm to touch , burning / itchy and uncomfortable. I have been told that the malar rash associated with SLE is permanent - is this true?
Sun Sensitivity. - 15 mins or so exposure to bright sunshine my entire face/ neck / ears become inflamed , bright red with burning sensation similar to sun burn , symptoms persist several hours ( or gone when I awake next day). Symtoms not associated with skin cream or other as happens on clean skin.
Recently diagnosed with Dermagraphism by Dermatolgist during consultation for my hairloss.
I am uncertain as to exactly which blood tests were taken earlier this year by the Reuhmatologist who diagnosed fibromyalgia and I am requesting copy in order to compare with the tests used to diagnose SLE - although I would be more than happy to have SLE ruled out as a diagnosis!